Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    How to help child fearful
    avatar
    GrandmaGallagher posted:
    My grandson started having seizures last year. Ben is 12yrs. He had a malignant brain tumor removed when he was 3 yrs. He is in remission and has been doing weel till this. The problem is he is terrified about having a seizure. He can't sleep unless someone is with him. He is afraid to do anything for fear it will bring one on. He gets so upset that he has headaches and I think his fear may be contributing to the seizures. Does anyone have any advise or know of any books that might help us put him at ease? Thank you
    Reply
     
    avatar
    dancer86442 responded:
    Hello GrandmaGallagher,

    Welcome to WebMD Epilepsy Community. So sad that your Grandson is no longer in remission. Hopefully his Neuro can find a medication or Alternative Treatment (I recommend Diets such as the Atkins or Ketogenic) to control them again. More Alternatives can be found at coping-with-epilepsy.com. Link provided in our Resources.or use your Search Engine.

    Yes, there are books available for all ages. You can find a List of books on efa.org or epilepsytalk.com Use the Search Tool on either of these sites. No need to join any sites mentioned, to read Info. The majority of these books can be found on Amazon.com. But, I would take note of Titles/Authors & ask your Local Research Librarian about Availability of Books you are interested in. They can Borrow them from another County or even Search Book Stores for 'Used' books.

    Possible solutions that may make him more comfortable at nite. There are now Seizure mats to detect seizure activity at nite. Or the newest invention: a Seizure Detecting Watch. A Cheaper solution would be to place a video/sound Baby Monitor in his room. Chek Thrift Stores or Yard Sales. Or purchase a Spy Cam that are fairly cheap at Radio Shack.

    Please read our Journal Info under Tips. Be sure his caretaker is noting Everything so possible Triggers can be Identified.

    Please keep us posted &/or ask more Questions. Know we Care! HUGS!

    Love Candi
     
    avatar
    saxofone1 responded:
    Hi GrandmaG,

    Welcome to the family.

    Candi, as usual, has voiced my thoughts.

    Does your grandson have any questions for us? If so, please be his spokesperson and ask.

    What type of seizures does this young gentleman have? Seizures can be scarey or so I'm told. My first one was the spring of '75.

    Amazon is loaded with books about epilespy. Hope your grandson and the family can find some relief soon.

    Keep us posted.

    angie


    Helpful Tips

    Want to read "discussions" only?
    Well that's easy too, on the left hand side you see many links one of them is "discussions", click on it and you'll only see the ... More
    Was this Helpful?
    19 of 29 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

    For more information, visit the Duke Health Epilepsy Center