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Are these deja vu episodes actually seizures?
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Snigglefritz posted:
Something happened to me this week, and as I search online it's seeming more like I might've been having seizures. Should I contact a neurologist?

8:05 am - in a weekly meeting suddenly overwhelmed with sensation that I'd dreamed this scene recently. It intensified right at the point of when I thought I was going to remember the memory then I lost the image and I felt waves of dizziness, felt flushed then like all the blood rushed from my head and had intense waves of nausea. Felt like I might vomit. After I was scared and tired.

8:30 am - sales reps giving a presentation in my office. About midway through their presentation I felt like I knew each of them from some other encounter prior to today (I did not). Overwhelming deja vu, flush then blood rushing from face, dizziness and intense waves of nausea again.

10:30 - same feelings but don't remember what the memory was or brought it on.

11:15 - conference call. Overwhelming deja vu (but I don't remember why), flush then blood rushing from face, dizziness and waves of nausea.

Noon - went home sick. I felt exhausted and scared. Thought I might just be exhausted and have a stomach bug.

1pm - I was in the basement bathroom (which I never use) and felt deja vu coming on again. Very vivid as if I was in a dream I'd had before. The dream was very bright white but dark at the same time. All the same physical feelings plus my tongue was tingling, then the room started spinning, I think my ears were ringing and it felt like I was going to black out. I don't remember what happened next. Next thing I remember is bracing myself at the sink and staring in the mirror.

Slept most of the day in front of the TV. wanted to occupy my mind so it didn't happen again.

Stayed home Friday and was completely lethargic all day. No appetite and no desire to even reply to work emails. Went to bed at 8pm and slept till 8:30 Saturday morning.

Felt fine Saturday.

I remember that this has happened to me before, but I can't remember how often or how long ago. It's never happened so intensely like this, and I don't ever remember it happening more than once at a time.
Reply
 
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dancer86442 responded:
Hi Sniggle, First, Welcome to our community. How are you today?

Yes, I would seek a neurologist &/or Neurologist. You know your system, best. It may take more than One Dr opinion/test, but, do Not Ignore your symptoms. W/ Epilepsy,/seizure disorders: If it happened two or more times: Seek advice, help, support. To learn any Triggers/ Your Trigger:.keep up w/ daily Journal (please read info under Useful Tips. ) BTW: You did a Great Job of noting time & events. That is what you Need for DR. But, there are other things you need to know that Drs don't always tell ya. I'm glad to hear you did some Research about your symptoms. Don't stop your learning there though. Education is Power! But, Our experiences & support are Here when you need us.

Keep us posted. Hugs
Love Candi
 
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jenbayly17 responded:
Snigglefritz,
I am glad that you have been keeping such good notes. As Candi said it will help your doctor immensely to know as much info as you can provide. I had felt the deja vu episodes throughout my life up until recently I didn't know for sure they were related to my seizures. I had a medicine change and during the time of getting used to the new med and getting it straightened out it happened more than normal. But it is definitely something you want to discuss with your doctor. When you mentioned you are sleeping through the day it is typical to be that tired if your seizures are happening. Even the smaller seizures can really exhaust your body. Please keep us updated and let us know if there are any other questions that come up.

Jen
 
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Snigglefritz replied to dancer86442's response:
Thanks for your input and advice Candi! I will be making a doctor appt on Monday. This truly scared the wits out of me...felt a little like I was losing my mind(and I'm generally a level-headed, joyful person)
 
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Snigglefritz replied to jenbayly17's response:
Thanks so much Jen! I decided to write it down while it was still fresh, partly because I was just trying to sort out what the heck had just happened to me! At least I have direction and an action plan now. thanks so much for taking the time to give your input. It's really appreciated!
 
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Snigglefritz replied to Snigglefritz's response:
Oh, and I feel fine today...just nervous that it might happen again.
 
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saxofone1 replied to Snigglefritz's response:
Welcome to the family, Snigglefritz,

What you have experienced sounds very much familiar to many of us. As the ladies have already said, "GO SEE A DOCTOR!"

Your notes are wonderful, very precise. They sound similiar to my first seizures...sensation...brain on pause...headaches and uneasy stomach...very tired/sleepy.

Keep up those notes. They are very important and will provide help to you and your medical team. Keep us updated on any new developments. Feel free to ask us anything that comes to mind.

Smiles and hugs,
angie
 
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GrandmaKitties replied to saxofone1's response:
I used to say that my life was 'Ground Hog Day' because it seems that each time I came out of a seizure, usually in a month, thou time had gone by, I was still stuck in one day! And that day was the only day that I could remember.
 
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dancer86442 replied to Snigglefritz's response:
Lost your Mind? Not even! Awesome Logo from a Kids' Epilepsy camp: It takes Brains to have Epilepsy/seizure disorders. I don't know why, but, I never felt scared after my diagnosis. I didn't even Know I had had seizures B4 the diagnosis. Clik on my ID or Photo to read my Journey.

Take a Deep Breath! Seriously! Whenever you start to feel nervous, scared or anxious about recurring seizure activity, find ways to dispel those feelings! Anxiety can lead to Stress. Stress can lead to more Episodes! Consider breathing exercises, meditation or Yoga. Any or all can Help! I wish I had my Bookmarks, but, you can do some Search 'homework' for more Info. Or visit epilepsytalk.com in tips or resources to learn more. No need to join to read her articles. Use the Search Tool in her Menu to locate Stress related articles or scroll thru her pages to see other articles that mite interest you.


BTW: I'm Still a Level-headed, joyful (most times) person. I don't let Epilepsy Rule my Life or Define Me! Keep in mind: You are Still a Very Normal Person! Although there are some new Rules that you will need to adjust to. Mostly Common Sense! No Driving! No Unsupervised Baths. Showers Only! If you work, there are ADA Laws & regulations that can be beneficial to you. Visit efa.org to learn more.

Keep us posted. Hugs! Love Candi
 
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dancer86442 replied to GrandmaKitties's response:
GrandmaKittie,

I used to think a week was common to memory loss after an Episode. At least it was for me. But, lately, on Facebook Groups, I have been seeing more & more comments like yours. A Month or more B4 brain is back to 'norm' w/ no recall of anything in between. DRS are Still unable to explain why & More Research needs to be done to help us 'fix' the problem.

For now: I keep a Chalk Board, Calender & Daily Journal full to remember what's what. Or for things I need or need to do. Hugs!

Love Candi
 
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saxofone1 replied to GrandmaKitties's response:
Hi Grandmakitties,

I had memory/time loss following a seizure. Mine was never as severe as you're descriping. I simply lost a few minutes. I didn't remember changing buses, crossing streets, changing clothes, etc. I was told that it had to do with the location of my epilepsy, the temporal lobe.

The brain surgery(partial right lobectomy) I had in '02 has helped my memory a lot. I started recalling names, streets, phone numbers that I hadn't thought about in years. That was a bit freaky at first.

What you're descriping certainly sounds like your seizures are coming from an area that affects one's memory, the temporal lobe. Somewhere back in the late 70s-early 80s, my then nuero said that my hippocampus, which also helps with memory, could be affected.

Please don't take the above as an amauter diagonosis but simply as suggestions to questions to add to your journal.

angie
 
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saxofone1 replied to Snigglefritz's response:
Hi sniggle,

I was never nervous about the when the next seizure would occur. I simply made a note of it and conitnued what I was doing. The seizures bugged me when my ep would interrupt my daily plans. It really bugged me when my docs asked me to take a break from college. That break seemed like a yearly event.

I am glad to hear that you're doing fine today. Hope it continues.

angie
 
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GrandmaKitties replied to saxofone1's response:
Thank you for your onsite! I am seriously considering surgery to stop the seizures. It sucks when I get up in the morning and I can't remember what I did the night before.
I have seen my posts on FB and am mortified when I see the jumbled words that have no point. At the time that I am typing, I must be having a seizure because nothing makes sense.
After three and one half very long years of the doctors telling me point blank that there was 'nothing wrong with me', the Mayo clinic caught a seizure. Both sides of the frontal lobes were damaged, in that car accident, and I have had five brain bleeds in as many years.
I have tried to kill myself many times especially when my friends, family and 'specialist's' said that I 'didn't have epilepsy' whereas they then stuck me in a psysho ward for days and weeks because they 'didn't know what to do with me'.
And since no one in my family thought that it would be helpful to read up on head injuries, I get the usual 'you are lazy', 'get over it' and my favorite 'it is all in my head'. Well, DAH!
I just don't know what to do. I am so depressed all day long. And the last stint in the locked crazy ward, where I saw, alone, for 62 days [as my family was doing what was best for me>, those days haunt me when I am awake and asleep.
I can't trust my family to not call 911 because I will just get locked up again. I spent the better part of 2008, 2009, 2010 and half of 2011 locked up. No one even tried to find out why I was having these seizures. How these so called specialists could let me walk away, after reading my history, is beyond me. I went to these three dozen doctors and their advice? Talk Therapy! I can talk, it is the uncontrollable seizures and the brain bleeds that are the problem.
I just don't know what to do. I wish that the car accident had killed me.
 
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dancer86442 replied to GrandmaKitties's response:
GrandmaKitties,

You are on Face Book! Do you belong to Any Epilepsy Support Groups there? Please look for National Seizure Disorders Foundation Community & ask to join. Please! Or Search for Terrific Tonya Heathco & send message or request Friend.

What your family has/is doing is Sooo Wrong! I, myself, have Traumatic Blow Injury. Not as bad as yours, but, still, ain't no one Locking me Up! That is such a Medieval custom. I know the Myths & Stigma of Seizure Disorders are Still a big Issue for All of us. But, you need to get away from those you don't trust! ASAP!

OK Talk Therapy! In other words your DRs must be Thinking you have PNES. Psuedo-non-epilepsy seizures. After reading your story, I can't believe they are trying to place that diagnosis on you. Although it is possible to have Both PNES & Seizure Disorders/Epilepsy.

Did you know that Epilepsy has a Side Effect of Depression? Kittie, you are Here for a Reason! You have Survived for a Reason. That reason may not be clear to you yet. So, what to Do? Please, Add vitamin D3 to your daily pill regimen! Start on 1000IU & if no improvement w/in a week increase to 2000IU. You can safely increase up to 5000IU.

Always Remember: You are No Longer Alone. Keep talking to us! Plus, find the group I mentioned! HUGS!

Love Candi
 
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saxofone1 replied to GrandmaKitties's response:
Hey, Miss Kitty,

You have been given a poor dose of support. But now that you have found us, please know that your do have people who care about you. Here you have found friends who have an understanding of what you have been dealing with. We are here to support/help and love you.

Epilepsy has depressed many of us. We have to be stronger than an overactive brain. And I feel that you are.

Please feel share to share/rant/ whatever you feel, whenever you feel. Do not give up on yourself. I have not had the ordeal that you have(clink my pic to read my story) but I strongly feel your pain.

You have come this far for a reason. We need each other.

If you would like to ask me about my lobectomy, please feel free to do so. Please feel free to talk with us about anything.

We're in your corner.

angie


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