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An_252663 posted:
Hello all, just trying to find out more information. My boyfriend is actually the one who is having the seizures. It's been really scary for me, as he had his first grand mal since we've been together while he was driving. He was taking Remeron for awhile and one of the side effects is seizures, and after the grand mal, he's stopped that medication completely. Since then he's still had aura's and pre-seziure symptoms. They seem to happen more at night/early morning, but since I'm not with him every waking moment it's hard to tell when he's been getting the symptoms the worse. To top it off, he's also a heavy drinker. I've been getting on to him about it, telling him that with the heavy drinking, it can cause the aura's as well, but he doesn't believe me, he thinks it helps his situation. I don't know what to do, or how to get through to him!! HELP
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dancer86442 responded:
You need Help, Education & Support! So, does your BF! As a caretaker you are very welcome to visit w/ us Anytime. To Learn, share, comment or vent.

You are rite about the heavy drinking triggering his symptoms. But, Drinking can trigger all kinds/types of seizures. Alcohol elevates the Blood Sugars & that can trigger seizure activity.

He Still needs to be seen by a neurologist or Epilepstologist (seizure specialist). Since he is still experiencing seizure symptoms. If you can get him to a DR Maybe a DR can help make him understand.

If you use our Resources, would he read the Info & believe you? There are Lots more Sites/pages w/ info about seizures & drinking to confirm WebMD's Info. Bookmark & Save these articles for him. Unfortunately, if he is unwilling to Learn, he will have to learn the Hard Way. BTW: He should Not be Driving! Period! Good Luck getting him to accept that Fact, too.

For now, start a Daily Journal for him. More Info under Tips. Record what You Do note! Being a 'heavy drinker' & obviously in denial about his issues I doubt if he will keep up w/ a Journal, too.

Keep in mind that Timing is Important if/when you note seizure activity. Anything that lasts 1-3 minutes is OK. Any activity that lasts Longer, he Needs to be taken to the ER. Take a Deep Breath & talk calmly when he has Episodes. If another gran mal occurs start Proper Seizure first aid. Use our search tool next to Post Now to learn more. Hugs!

Love Candi
 
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augidoggie512 replied to dancer86442's response:
Thank you very much for your help and support. It's been difficult with him not accepting the facts. He's been trying to get into see a doctor and he has an appointment with one next week. Hoping that helps, at least open his eyes, as an unbiased source telling him the same things I have been trying to explain. We're still not sure what causes the seizures. As far as I know they were drug induced. And with the anti-depressant medication it seemed to trigger the symptoms more, and with the drinking. Ugh! It just seems to be a downward spiral. I will definetly keep my own daily journal and mark down when he has symptoms. They usually don't last more than 3 min, but he has several a day sometimes. Just scary...Thank you again. It's nice to know that there is help and support out there!!
 
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dancer86442 replied to augidoggie512's response:
Augi, Please, Go w/ him & go to the exam room/consultation at the DRS. Do not be scared to speak up & tell the DR what you know. What you have seen. Sometimes, seizures brought on by meds/alcohol can be 'fixed' by De-tox & proper nutrition/diets. You can find out more about diets at epilepsytalk.com noted in our resources &/or tips. Also, Note Questions for DR in our Resources. Page 3, I believe.

We are here to Listen, Support & Help. I can tell you, it will be a Long Journey. Education of the Public as well as yoursel is Direly Needed. There are Live Support Groups In every State. Chek EFA.org to see if one is located near you. And have them send you Info!

Keep us Posted. Know we Care! Hugs!

Love Candi
 
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saxofone1 replied to dancer86442's response:
Hi Augio

Welcome to the family. Candi has already said what I'm thinking. Alcohol and seiures simply don't mix!!! Driving in a definite NO.

Keep that journal going. Every bit of info that you can offer to the docs is always appreciated.

You have found some new friends who care about you and your boyfriend. Thanks for being there for him.

Share, rant, or whatever with us when you feel the need to.

angie
 
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augidoggie512 replied to saxofone1's response:
Thank you again. I don't think I would ever be able to express my appreciation enough for you guys. It's easier to know that there are people out there that truly care and are there to help, so thank you from the bottom of my heart. This is a definite learning process for me, and trying to get him educated too. I will definietly keep you all posted to what's going on and what we find out, and anything else You guys are the best

Jessica
 
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dancer86442 replied to augidoggie512's response:
Hi augi,

Thank You for the Kind words. Thank You for wanting to Learn more. Yes, Epilepsy is more than just having a seizure disorder. It is a never ending, forever learning Process. But, what & how much you learn will make you Stronger. Hopefully, it will Help your BF, too! Hugs!

Love Candi
 
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saxofone1 replied to augidoggie512's response:
Thanks augi,

Sorry 'bout the typo of your name in my last post. Forgive me...lol.

Check Amazon for books on ep. There is a wonderful supply. Also check resources for an Epilepsy Foundation. They can possibly send you an info packet. Check the web for local support groups too.

Have a good day. And thanks again for being there for your boyfreind. We appreciate it.

angie
 
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anthonybrownii responded:
The first thing is to ask him when is his next doc appt and go with him and ask questions about your concerns in front of him and the doc. get your research on the effects of drinking and epilepsy from this site or the Epilepsy foundation website. It is a challenge to deal with ep without alcohol but to add it puts you both at risk along with driving . I had to give driving up due to my controlled untimely seizures. When I say that I mean I get a warning but if I'm behind the wheel it could be deadly . Try as hard as you can to drive where you go with him and work with him on the reduction of drinking because due to the price of meds alcohol may be his gap fill for the cost of meds and it really shouldn't be. Good luck with him.
 
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augidoggie512 replied to anthonybrownii's response:
Thank you. It's been getting better. I told him that I was doing research about ep and about the effects of drinking with it especially. Shockingly, he wasn't upset, but thanked me for being supportive and wanting to learn more. So I think we are making strides in the right direction. On the down side, he went to see the pyschiatrist and he prescribed him more remeron, which ( I think) caused a lot of the seizures he was having. And he even talked to the doc about it, questioning if there was anything he can get that doesn't have seizures as a side effect, but apparently the doc couldn't do that until he goes to see another doc that tells this doc that it's bad for him and to prescibe him something else. Ugh! Little steps though. Thank you for all the information. I'm trying to find a ep community in our neck of the woods that maybe has a support group that we can both go to together. I'll keep you guys updated with what's going on and if there's any information that we find out that will help this community Have a wonderful Tuesday!!!
 
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dancer86442 replied to augidoggie512's response:
Augi, Please, try to find an Epileptologist in your area. They are Neuros w/ 2 Extra yrs of training in Epilepsy disorders. If you see a regular Neuro, First question to ask: How much do you know about Epilepsy Disorders?

Glad to hear your BF was not upset about you wanting to Learn More. WebMD has Info about drinking & Seizure Disorders. Just use the Search Tool up top. Hugs!

Love Candi
 
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saxofone1 replied to dancer86442's response:
Hi Augi,

Glad to hear that your boyfriend is being supportive about your research.

Have you thought about checking a local hospital for a support group? Ask the doctor if he has a patient who would be willing to talk to talk with you. Talking with the patient or his/her family can be a great relief/support to you. First hand knowledge is always helpful.

Keep us updated whenever you can.

angie
 
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augidoggie512 replied to saxofone1's response:
Hello all!! I have a question....I'm not sure if this is even possible, but is there anyway that seizures can be brought on by over heating? My boyfriend drinks a lot of coffee and usually does get overheated especially in the summer and with it being so hot out. It seems like his symptoms get worse when it's hot out. Just wondering
 
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dancer86442 replied to augidoggie512's response:
Hello augi,


Yes, heat can trigger seizures. Some of our meds & heat don't tolerate each other, also. It is best to stay hydrated, but, not w/ coffee, if you are going to be in the sun for awhile. Want to Learn some more Weird Triggers. Visit epilepsytalk,com posted on page 3 of Resources. Use her Search Tool located in the Menu on her page/site. He needs to have his Med Levels checked, also. Does he or You keep a Daily Journal? Please read the info in Helpful Hints.

Welcome to Epilepsy Exchange Support Group. Feel free to make yourself at home. Share More of your Journey. Caretakers are Supported here, too. Ask questions, comment or vent. Know we care. Hugs

Love Candi
 
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augidoggie512 replied to dancer86442's response:
Yes I have been keeping a daily journal, thanks to you That's why I thought about the overheating...it seemed like the symptoms seem to come about when he's hot. So I've been trying to keep him hydrated when we're outside and tried to limit down the amount of pop and coffee he drinks, but even so, he loves his coffee I'll have to check out about weird triggers and see if I can find anything else. Thank you for all the support


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