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my EEGs
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hawiian_girl11 posted:
Aloha,

WHy do my EEGs all come back abnormal no matter what type of EEG sores they use.

All of them from the g et go starting in Feb of 03 have been that way and I have never had a sz during one. The only clean one I ever had was a year ago when he decided to see what they looked like after almost 11 yrs. That one came back clean, but one month later when he repeated it with a 48 hr Ambulatory EEG it was once again camw back abnormal. no szs then either.

But I do have szs and a lot of them so much that they are intractable so why didn't I have any during the EEGs?

It made me feel like a complete FOOL!

in the last 2 weeks the weather here in HI has in the 70s and clean aired, but the winds are something else and the pressure has risen an fallen due to storms pasing thru on the way to you guys. I have had 3 szs from it.

tell me why everything is abnormal on my EEGs yet I have szs that are random deuring the day and some at night.

Mahola,

NAncy
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ktexas1026 responded:
Hi Nancy,
One of your comments just jumped out at me & I HAD to reply. When you said these random EEG findings made you feel like a fool"026.. I can totally relate! I had an obviously abnormal EEG, even though I wasn't having a seizure at the time (Or, I don't think I was"026 my aren't the grande mal type anyway, so most people don't even notice). And then I had the video EEG where they tried provoking a seizure, & nothing much showed up. It made me question if this is really seizures b/c it doesn't make sense for this to be so random & to have so many mixed results. The only thing my doc has told me was"026 "sometimes this happens & EEGs are inconsistent". I thought "Really??? That's your explanation???". LOL Although the other thing he was"026 that a normal EEG doesn't mean you DON'T have seizures/epilepsy, it just means you weren't having one at the time. But if you have an abnormal one, it is almost always indicative of seizures"026 even if you're not having a seizure at that moment. My very first "normal" EEG, they said some people still show "abnormal" activity even if they aren't having a seizure. And so that's why they assumed b/c there was NO activity at the time, the doc assumed it meant normal all the time. Then when i saw a specialist, he said some people have abnormal activity all the time, whether they're in seizure or not. And then some only have activity during a seizure & are "normal" every other time.

Not sure if I made sense"026 b/c I think I took the long way around to say what I was going to say.
~Kim
 
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hawiian_girl11 replied to ktexas1026's response:
hi kim,

I think you got something mixed up with something else in that post.

I was talking about feeling like a fool having to wear a wrist brace at the same time as a cast. IT was embarrassing.

Not about EEGs, I do not mind EEGs.

I certainly have had my share of them and in any form of them that they could come up with,

Nancy


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