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    pre seizure symptoms
    kayceejoe posted:
    I'm new to the eplipesy suport group, but have been wondering about something. Have any of you ever had a strange smell (it reminds me of a chemically/film developing smell) along with "wetting" episodes? I get these smells (even wakes me out of a sound sleep @ times) every once & awhle. I've mentioned this to my neurologist , but she doesn't seem to care one way or the other. This is doctor #4 I'm speaking about. THe only thing I know to do is to more or less accept that it's happened (not that I can do anything about it), change the bedding etc. If this has happened to anyone, what do you/your doctor do about it? kayceejoe
    dancer86442 responded:
    Hello kayceejoe, I get the strange smells. It's a form of seizure, hon. Since my "episodes" are few & far between, I "ignore" them. Here's a site. Do your homework. :) :) The Bed wetting, yes, it, could be EP related, too. I suggest you start taking note of these "episodes." But, you should see a "specialist" (ask your family DR for ref) & get other "possible causes" ruled out. That's what I would do. :) That & start wearing DEPENDS to bed. :ooh: :sheepish: You mentioned in another post that you take Xanax. Possible cause of loss of bladder control???? Maybe! Do some MORE homework! Use the weblinks site above for drug interactions/info. It helps to have "knowledge" when dealing w/ these "dang" DRs. :) But, if he/she doesn't "care", MOVE ON. Time for DR # 5. We call this "the DR/med merrygoround" for a good reason. :) :) If there is no DR # 5, then, keep learning everything about your EP & medications. Use your journal. Take it w/ you. You are your own best advocate. Don't settle for "don't care." If you feel a symptom/side effect is more then just annoying INSIST on tests, treatments. God Bless Love Candi & family
    smiles60540 responded:
    Hi kayceejoe, My daughter doesn't experience a strange smell or wetting episodes but through the research I've done regarding epilepsy, what you are experiencing is not uncommon. Your doctor sounds like my daughter's first neurologist - I'd mention things she was experiencing and he'd look at me like I was crazy. Also, he'd just shrug as if to say, "who cares" and never gave me any advice as to what was going on. Now after being a part of this support group, I have discovered she was experiencing auras. Wendy
    Tammy78660 responded:
    Hi, What you are experiencing is normal for a sz. And yes... neuros are like that. :smile: Those are auras. My daughter woke up this morning not feeling right. Could be an aura for her, or means that she had a sz last night cuz she was sore and very tired. She doesn't get the smells or the wetting, only strange feelings. Tammy

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    Journals posted by Meetz
    Meetz posted: Hi there. I don't want to sound bossy or presumptuous, but after 44 years of practice with E, I have a bit of experience. I ... More
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