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3 months old with seizure disorder
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niki4lja06 posted:
my 3 month old little boy started to experience seizures on 7-3-10 on the day he turned 3 months old. we went to the er and they said it was a fever seizure which didn't make any sense since he had not been running one. on the 6th of this month we were back in the er because i woke up to him having a seizure in bed. we went to the er where the doctor witnessed another one and called the childrens hospital in kansas. they took him by ambulance and on his way he experienced another. so all in all he had 3 in a 2 hour period. the one on the 3rd and the three on the 6th were full body jerking and a blank left gaze. he was unresponsive to any kind of stimulation. at the childrens hospital they did a ct scan when he arrived. the radiologist said he seen something on the scan but the nuero said he seen nothing. they did an eeg the following day and he had 2 seizures in a matter of 25 minutes. but neither of them involved the full body jerking. they are just the blank left gaze. when the neuro came in to tell us what they found on the eeg he had another just like the ones during the eeg. he said that the eeg showed his seizure activity coming from the midline of his brain and started him on trileptal. the next day they did an mri of his brain that turned up no answers. he's still experiencing the seizures even while on the trileptal. our discharge paperwork said that the resident doctors diagnosed him with complex partial seizures. but reading up on it i found out that those start in the temporal and frontal lobes and the eeg came back as he was seizing in the midline. anyone else know anything about this?? any extra information would be great!!!
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dancer86442 responded:
Hello Niki,

Honey, ya got to give the medication at least 4-6 weeks to see if it will work for your child. In the meantime, get started on a Journal for your son. Start w/ the info you have given us. Add whatever you can remember about B4 seizures. He has had more then 1 seizure, so he does have Epilepsy. The good news is a 'normal' MRI. No cysts, tumors, malformations, scarring, etc. Some more good news is that at his age it is highly possible to outgrow the seizures. Or at least, go into remission till he is much older.

I have never heard of 'midline', but, I am guessing that means it affects both temporal & frontal.

Also, from what you described he may be experiencing 'absence seizures' as well as convulsive seizures. The absence could also be an 'aura'. But, he is to young to tell you anything. So, go by his body language. &&&& Your gut feelings as a Mom.

Keep learning! Use our Resources. Join other sites. Get lots of Opinions. DRS especially! Epilepsy is a never-ending, ever learning disorder. HUGS

Love Candi
 
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lkn4ansrs responded:
I came across your post because a friend of mine's son was just diagnosed with West Syndrome also know as Infantile Spasms. He is about to be 4 months old. Hopefully rhis isn't what your child has, but it would be nice to make sure it is ruled out.

Goodluck
 
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finder25 responded:
I don't know if this ill help but Ill give a try here.

Im 27..seizures all my life, frequent too (as in 6or more an hour).

Now when I was a little kid though I wasnt diagnosed with epilepsy.. doctor didn't give it a thought but other treatment, as in speech therapy and so on.

Well now looking back (the neuro) he confirms they were seizures at that time.. they were caused because of a major fever i had actually in the womb still.

So in other words, the doctor might not percieve them as a seizure disorder or diagnose it as epileptic or something else but it prolly is and an epilepsy/or seizure disorder specialist should be seen as soon as you can I would say just to be fair to your child. Dont get a wrong diagnosis or even be diagnosed without a nuero. seeing and testing him greatfully with all kinds of permitted tests.

I hope that at least may have helped some.
 
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bjulianna responded:
my son had about 16 seizures in three days and they are not sure what caused it but he is on 2 different meds. they said he fell into the catagory of eplispy.
 
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dancer86442 replied to bjulianna's response:
Hello bjulianna,

Welcome to Epland/epilepsy community. May I ask how old your son is? What type of seizures? How long did each episode last? Were any 'back to back' or non-stop w/ no breaks in between? How long he has been on his current dose & Is the medication he is on helping? Has he been seen by an Epileptologist (seizure specialist) or does his Neuro specialize in Epilepsy? (Not all neuros do) Please, tell us More

Yes, more than 2 seizures qualifies as Epilepsy. And it will take Time & Patience to figure out Why or what causes them. Do you keep a daily Journal? Please, read our Journal Info under Helpful Tips to be sure you are including all necessary Info.

The original poster of this discussion is no longer w/ us. (I Think! May be Lurking. ) But, I & others' are here to offer you support & to learn More about Epilepsy. If you have any questions or concerns, please let us know. Hugs

Love Candi


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Journals posted by Meetz
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