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Epilepsy Diaries
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sbncmo posted:
Epilepsy.com has one of the best seizure diaries I've seen & worked with - my personal favorite.

Some others that look good are:

seizuretracker.com

healthvault.com (pretty much the same as epilepsy.com, a few more bells & whistles)

patientslikeme.com ( I can't give a real recommendation on this one as I didn't access it without being registered, but it seems to allow you to share your seizure info with others)

Shelia
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An_200660 responded:
dailystrength.com has a Journal option, too. But, like Patientslike me site, you have to register/join & others you designate as 'Friends' can read it. If you want to share your info. This site, also, provides AtoZ Info/Support Groups & you can chat online w/ designated 'Friends' who are members.
 
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An_200661 replied to An_200660's response:
Pardon Me! That is dailystrength.org/
 
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sbncmo responded:
Just a further comment about epilepsy.com diary - there is a bit of work to it. You have to enter your seizure & medical history & meds, any allergies, etc. When you want to print it out, that takes a little work as well because when you print your diary data, it doesn't print your notes - that is done with a separate printing. Personally, I copy & paste both reports to a word processor, then tweak them so that all the information - seizure activity & notes - are on the same row. It may seem cmplicated the first time, but after that it's a breeze. So if anyone needs help on this, I'm more than happy to help.
Shelia
 
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Haylen_WebMD_Staff replied to sbncmo's response:
Just wanted to alert you to the post I just put up about milestone tracking...Would love your feedback on this. (It's not intended as a medical tracker like the epilepsy.com diary)

I'm the mod here and am just learning about epilepsy so your suggestions would be great. (I would have lots of ideas about milestone tracking in the parenting community as I have a 2.5 and 6 year old!)

Thanks!

Haylen


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