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I'm 18: I have PIC/macular degeneration/hemmoraging?
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An_244603 posted:
I'm an 18 year old freshman in college. I have always had bad vision, but last year my eye doctor notice thinning in my right retina. Since I play sports, she suggested I see a specialist, which I did. My exam was fine and they told me to come back yearly to monitor the thinning, however a few months later, I noticed a blind spot in that eye. It looked like I had looked at a light for too long. I found that I has macular degeneration and some sub retinal hemmorages. It is now about 8 months later and I see 3 different eye doctors. I have been diagnosed with an eye disease called PIC (I don't remember what it stands for) with hemmoraging and macular degeneration. I have lost most vision in that eye. I have gone for 6 months of Avastin and then Lucentis injection monthly, and I am about two weeks in to my 60mg (tapering) prednisone and Cellcept. Any clue as to what causes this?! I really can't find anything online. I know this is a rare condition, but I have not found a single thing! I want to know as much as I can, especially since the disease is progressive and can flare up in the other eye. Any and all information is helpful. Thanks!
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Alan M Kozarsky, MD responded:
Punctate Inner Choroidopathy.

An uncommon inflammation of the inner lining of the eye. It generally affects young nearsighted women. Thus, given the inflammation, the rationale for the anti-inflammation treatment. (Prednisone and Cellcept). Occasionally new and unwanted blood vessels can grow under the retina and these can usually be reversed by injecting Avastin or Lucentis. The injections are generally given for many months before stopping.

Many articles can be found if you search under the full name of this condition. Sounds like your current treatment by your multiple doctors is very reasonable but with rare conditions it is sometimes wise to get second and third opinions from experts who actually study this condition. i.e. the authors of recent articles about PIC.


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