Fibro Friends

I don't know about the cycles, I just know that my doctor told me that I will have to come to terms with living with daily chronic pain and the only thing we can do for you is to manage your pain. Now I know things like MS has cycles and comes and goes, but what I have been experiencing is constant daily pain going on 2 years now, actually it seems to be worse than what it was the first year I had it before I was actually diagnosed with it, coz it takes a doctor awhile to come to that decision when everything else is ruled out, but my doctor had a good idea what it was seeing that he treats alot of patients with this illness. Hang in there we all feel your pain!!

I've had fm for 7yrs, The cycles might be that it gets alot worse some days than others and can last up to a yr at a time. My trouble has been getting my family to understand, my husband thinks i'm lieing about the pain and then my kids (14yr girl, 13 yr girl, and a 10 yr boy) they dont understand why i cant do as much as other moms, it is very frusterating!! I wish my husband could walk a mile in my shoes, as the saying goes! but for now i'm turning to you guys! thanks for letting me post, it does help!

I have had fibro for years, and yes when the barometer reaches a certain point it causes what they say is a trigger, at that point nothing helps me, except tears which only angers me because no one can hurt this much! I usually stay in bed. As far as your children and husband go, if they don't understand tell them to get an education. .

hello ImloOO, I too was diagnosed a year ago. I am still learning everything. I have had problems for several years but my new doc finally said it was fibro. Yeah, you want to talk about bad cycles. everyday seems to be a bad cycle. but there are things you can tdo to make it better. Most of all physical and emotional stress and a good support group. I walk the walk and talk the talk but the only thing is missing is a good support group and that's the most important thing, I beleive. Hang in there and keep learning as much as you can and the people who don't understand can kiss your feet. If you want more info on my treatment just ask. i am curious what your doc is treating you with.

I am on 60mg of cymbalta twice a day with 800mg of Ibuprofen 3 times a day. How about u?

I am really sorry to hear about your husband not believing you. That makes it so hard...it is bad enough that you have to deal with this pain. I have had Fibro for 16 years and my husband didn't believe me either for years. He would put his arms around me and I would cry out in pain. He would say that i just didn't want him to hug me. So, all I could do at the time was keep my pain to my self. But, now that he is older he realizes it is real. Every morning I just lay in bed crying because it is so painful just to move....My shoulders hurt so bad I can't move to pull the blankets off me and my finger on both hands are stuck in a curled position...I can't open them and it takes a long time before I can move. He has to help me get dressed some mornings. The other morning, I get myself dress, but I am crying out with every movement. Then through out the day, I strugle doing most things because of the pain, however it is somewhat better than when I first wake up.It is very discourging, but you have to keep moving, I have learned that through the years. Like when I first started typing this reply, I could hardly move my fingers and the pain was terrible, but now they are feeling better. But, I know because I am writing all this, I will pay for it in the morning.
But, what i want to tell you is to buy a tape by Bob Griswold called Deep Relaxation. It is amazing what it can do for you. You can find it one line. It is very helpful. And I would also recommend doing warm water exercising in a pool. Best of Luck to you....

I know exactly what ur saying. i have an 18 yr old son who is getting ready to go prom in a month and who is graduating in 2 months and he just doesnt understand the daily pain i live with. him being my only child, we were always doing everything together and now i cant get motivated to do ANYTHING and he gets so upset with me, i feel horrible. i have had coversations with him about what fibromyalgia is and how it affects you phyically, mentally and emotionally and he understands a little better. i had my husband read about fibromyalgia and now he completely understands and no longer thinks its all in my head, maybe u may want to try that with ur husband. i really hope things get better for u bcuz believe me, i know exactly what u r going thru

I'm not a doctor or a medical professional BUT wanted to tell you that I, too, took Cymbalta for years and found that it worked very well. Then, out of the blue, I started struggling with my emotions and cried a lot more than before PLUS I started finding it difficult to pee. I consulted my rheumatologist and though the urinary symptom is rare, it was there in the books she said so she changed my meds and I'm better now. Just don't dismiss any symptoms with any meds you take.

I've had fm for approx. 30 years (maybe longer). I'm allergic to Nsaids and can only take meds for pain. My doctor doesn't like narcotics so we use Ultracet and it takes the edge off the pain but never takes it away...... just allows me to function. You learn to cope with it and YES, in my opinions, there are good days and bad days. I've found I do better if I can keep my mental faculties strong (kind of a mind over matter approach). Some days that is easier than others, though; all you can do is do the best you can, listen to your body, and stay ahead of depression. Chronic pain is never easy but I constantly remind myself that it isn't life-threatening, so others do have it worse.

Hope this helps.