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catpug posted:
Been a few weeks since I've been on. First, diagnosed with Fibromyalgia in March. Rheumatologist wanted to wait for cardiac work up due to syncope episodes to start treatment. Now, 3 months later, Neurocardiogenic Syncope diagnosed with tilt table and started Fludrocortisone twice daily. Heart cath this Wednesday showed a 20-30% blockage in my aorta. Cardiologist says plaque build up but I've never had an elevated cholesterol level and carotids are completely clear as well as other vessels. PCP started me on Cymbalta and yesterday I met with a neurologist for the first time and he put me on Provigil for chronic daytime fatigue. Sleep study showed no Stage 3 or 4 sleep. I just need to know that others are dealing with similar problems and that there is some light at the end of the tunnel.
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RacerLady503 responded:
I'm right there with you Cat.....

Have not seen a neurologist as of yet. Was in car accident(s) (rear ended twice in a three week period) back in 2008. I've been through my chiropractor, massage therapist, physical therapist, spine / pain management doctor, regular MD and next week an rheumatologist.......

BP has spiked uncontrollably since the accidents and has just gradually gotten worse as with my pain areas spreading. EKG's, Echo Cardiograms, MRI's, CT Scans, XRays, Blood Tests, Ultrasounds, etc, etc - On paper I'm healthy.....

I did an at home sleep study which showed many disturbances as well. I take Inderol for migraines and the hi bp, wellbutrin for depression.... I call it more of frustration, but it also keeps my pulse low, Flexeril to help me sleep, which doesn't really, but if I don't take it, I definitely feel it in the morning when I can hardly move. Savella new meds within the last month for FM, and Spironolact new this week for the bp. Mind you - this morning, the bp was still 196/139...... 3 days at those numbers now. I am 35, 125lbs (due to meds, used to be 115), 5'3", healthy and active person but yet overnight (so it seems) I feel as if my body has aged 30 years. I can at any time lie down and sleep for hours..... 8-10 hours of sleep (or toss & turn) at night and still can go back to sleep for 4 more hours.... Weird. I'm just exhausted.
It only holds me back if I 'let' it
 
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catpug replied to RacerLady503's response:
RacerLady--All I can say is hang in there. I've been in pain for so long that I just learned to live with it until 2009 when I was injured at my job by a psychotic 300 lb patient. He hit me hard and I injured my back and my neck again (had cervical fusion in 2001). Have been taking Narco since then, just a half because of my job. I switched jobs after coming back from my injury, working as a treatment team nurse (I'm an RN and have been since 1979). I sit at a computer and go to meetings. Use a heating pad all day on my back. The best thing that has happened to me is my neurologist putting me on Provigil. I'm awake in the mornings and don't nap but a couple of times a week compared to napping after work and until I went to bed. And staying on the couch in my pj's all weekend. I'm also on Flexeril at night along with Lyrica, which I just started last night. I take Cymbalta in the morning and Trazadone at night. My cardiac work up is over and I'm letting my primary care physician and his NP treat me. I see the Neurologist every 3 months. I'm on Synthroid and Boniva, along with Aspirin. Also take calcium and a multivitamin. Need to start exercising. I feel better thanI have felt in a long time. Don't get me wrong though. I still hurt especially in the mornings. I'm so stiff I can hardly get out of bed and start the morning off with a hot shower, extra hot on my neck and back. The best hours of my day are mornings. I'm just thankful that I am able to do more than I could a couple of months ago. Hope this helps to talk to someone. I'm 53 and have 3 grown daughters living with me that help and when my husband is home, he helps, too. I'm also 5'3" and have gained 10 pounds in the last month. Medicine? or getting my appetite back? Who knows. I look forward to your response. Sorry it took me so long to respond.


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