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Different Fibro Pain
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patsyann64 posted:
I'm hoping that someone out there can help me. I have a contstant "rubber band tightening" like pain. No one seems to know what it is. I have had fibro for 11 years....this pain for one.
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coffeymate responded:
I have had fibro for 7 years now, I have had that same feeling of something tightening sometimes around my throat and other times on one of my limbs. I have just put it off as to another one of fibros symptoms. The doctors cant find anything wrong with me and they too are putting it off to this lovely ailment! Is there anything you find helpful in easing this feeling? For now all I do is rub the spot and wait it out. Also does anyone also find that they feel nauseous a lot and often just downright flue like where you ache everywhere and almost feel like you just cant handle any more of it? I get where it hits me so hard at times I feel like what I would emagine it feels like to be on chemo. I drive a Heavy Hauler and just dont know if I can handle much more of this...and winter is commin on fast....I live in an area where 40 below is a common thing during the winter season. Just the thought of it really,literally makes me cry at times. Sorry don't mean to be a downer but this is the first time I have seen that there are really people out there that know how I feel.I am takin Lyrica and Tridural...it helped at first but I have been on it so long I find it no longer does the trick. My doctor just doesnt seem to get it when I tell him how Im feeling, and there is not that much of a choice in doctors where I live. Wow just finding this sight has me ramblin on. Sorry patsyann didnt mean to go on...but as I said earlier..yes... I know the rubber band feeling. I just add it to all the other joys of having fibro. Hope you find a way to cope with or relieive it, because I truely know how you feel
 
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patsyann64 replied to coffeymate's response:
I'm so glad to be retired. I don't understand why SS doesn't recognize this illness. I also have COPD and recently had a stroke. I was able to go out on disability trough the company I worked for. SWhen I turned 65 I had to switched over to SS disability...didn't recognize the fibro. You may have to switch doctors. As far as my different pain....I just take the muscle relaxers. I now am with a doc who really helps me with all of this. While I was working I was on an anti depressent...it helped...please try to find a doc who can help you....I with I had discovered this group years ago.
 
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Dtaat2 replied to patsyann64's response:
It is recognized by the disability offices around the country now. I think it was July2000 or 2001.
 
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kylersnanna7 replied to Dtaat2's response:
Hi, new here! I was DX in 2000 & went on SS disability in 2005. I can truly understand how you are feeling as I've been in a flare for 15 months. Patsyann, do you ever have that feeling around your chest & back area? I do, almost all the time. At times it kinda makes me short of breath. Yes winter makes things worse but summer does too for me as it zaps me of energy and strength, so I feel like there's no relief. And Coffeemate I also know what you mean about feeling like you can't take anymore, I'm there now. BUT, hang in there, I am, we'll all do it together. OK? One day at a time is all I do & some times one hour & even one minute at a time. Thank God I have this site & a couple of family members who try very hard to understand & be supportive & good docs!! Diane
 
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patsyann64 replied to coffeymate's response:
I also have nausea from time to time, and ache everywhere, that is part of the illness. I have given up on any drugs that could possibly help. Until I retired 2 years ago, I used prozac then cymbalta. I gave them up because of the cost, and I thought that once I retired I'd feel better....HAHA! Thank you for your input.
 
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patsyann64 replied to kylersnanna7's response:
Good Advice! Thats what I do.
 
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patsyann64 replied to kylersnanna7's response:
Thank you for replying...I think my doctor thought I had really lost it! I was hospitalized twice for this same sympton, because of the shortness of breath. I also have COPD. I've been hanging in there for a long time. So everyone, stay positive.
 
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patsyann64 replied to coffeymate's response:
I thank you for you input. I was diagnosed with fibro at least 10 years ago. Lived with it a few years before that. I have COPD and arthritis. I know how you feel about others being out there. I should have looked to a group long before this. One of the things I really try to do is let all my family and friends know what is going on. I live Pennsylvania so weather also plays a part in my pain. Tomorow is Thanksgiving..I am so thankful for my family. My husband is a 4 time cancer survivor and is on a feeding tube and will be the rest of his live. He is my inspiration. Having someone with more disabilities in my life keeps me straight!
 
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patsyann64 replied to Dtaat2's response:
At my hearing, the judge said that fibro would not enter into his decision.
 
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patsyann64 replied to coffeymate's response:
You know, I have re-read your post several times. I think you need a new doctor. Its ok to ramble on, thats what we all have to do. Thats why we are a "support" group. At one tme on another we have all felt the same things. Staying positive is very hard. If we get depressed the pain gets worse. I try not to focus so much on this, but its hard. I now have a wonderful doctor who understands all my aches and pains....I think you need to find one who can do the same for you. Stay positive.
 
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marysxx responded:
Its the fibro!!
 
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rubystix responded:
I'm pretty sure I do, everyday and all day I have that type pain that starts from the left side of my face & head and runs down the neck, shoulder(and blades) and front of my chest. one pain Pain or description of are different or very similar to another.
I have gotten the strangest looks when I've tried to explain or give an example of my pain or discomfort.


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