Fibro Friends
A place for those newly diagnosed to exchange symptoms, feelings, things that ... more
New to the Discussion. Looking to share
strengthening posted:
Hello. I have had symptoms of Fibro for a year now and was "diagnosed" in May. I used this in quotes because we know that diagnosing is a process of eliminating all else.
I am a writer/author and although I find it easy to write about other things it is very difficult for me to put into words how I feel with this chronic illness. Perhaps not because I can't find the words but more because I am frustrated and angry and at times in denial even. Is this really my life now? Tired, depressed, sore, sad, limited, sick...it goes on and on. I am learning to do the best I can moment by moment. It is amazing though how I have changed mentally and emotionally. I am a very spiritually sound person and have great faith. I believe that this can be a sanctifying illness if I can only see it as such. And then again I am only human, which means I cry and want to curl up in a ball some days too.
I have four children and a husband and thanks be to God I have been a stay at home mom for most of my marriage. I am truly trying to see the gift in this illness. Why me? and then again, why not me? Several times I have thought that tomorrow will be different. It will be a better day. All of this will just end and I will wake up from a bad dream. I will be able to go running again and lose these 40 pounds that so quickly have become my unwanted baggage. I will shed this body which has become my prison. I have wasted moments...days... living for the future while watching the present slip away. All the while, my kids are getting bigger and older. My husband is excelling at his career and continues to climb the ladder of success. And I sit in my own world of sorrow and scream silently within.
My New Year's resolution is to take back my life which I feel has been robbed. I won't simply lose weight but will gain life. I will be a part of the moment rather than watching it slip away. I will silently accept the pain and offer it up to God in return for the peace, comfort and strength for someone else who needs it.
May God bless you and care for all of us.
I am a writer/author and although I find it easy to write about other things it is very difficult for me to put into words how I feel with this chronic illness. Perhaps not because I can't find the words but more because I am frustrated and angry and at times in denial even. Is this really my life now? Tired, depressed, sore, sad, limited, sick...it goes on and on. I am learning to do the best I can moment by moment. It is amazing though how I have changed mentally and emotionally. I am a very spiritually sound person and have great faith. I believe that this can be a sanctifying illness if I can only see it as such. And then again I am only human, which means I cry and want to curl up in a ball some days too.
I have four children and a husband and thanks be to God I have been a stay at home mom for most of my marriage. I am truly trying to see the gift in this illness. Why me? and then again, why not me? Several times I have thought that tomorrow will be different. It will be a better day. All of this will just end and I will wake up from a bad dream. I will be able to go running again and lose these 40 pounds that so quickly have become my unwanted baggage. I will shed this body which has become my prison. I have wasted moments...days... living for the future while watching the present slip away. All the while, my kids are getting bigger and older. My husband is excelling at his career and continues to climb the ladder of success. And I sit in my own world of sorrow and scream silently within.
My New Year's resolution is to take back my life which I feel has been robbed. I won't simply lose weight but will gain life. I will be a part of the moment rather than watching it slip away. I will silently accept the pain and offer it up to God in return for the peace, comfort and strength for someone else who needs it.
May God bless you and care for all of us.
1 Replies |Watch This Discussion | Report This| Share this:New to the Discussion. Looking to shareHello. I have had symptoms of Fibro for a year now and was "diagnosed" in May. I used this in quotes because we know that diagnosing is a process of eliminating all else. <br /><br />I am a writer/author and although I find it easy to write about other things it is very difficult for me to put into words how I feel with this chronic illness. Perhaps not because I can't find the words but more because I am frustrated and angry and at times in denial even. Is this really my life now? Tired, depressed, sore, sad, limited, sick...it goes on and on. I am learning to do the best I can moment by moment. It is amazing though how I have changed mentally and emotionally. I am a very spiritually sound person and have great faith. I believe that this can be a sanctifying illness if I can only see it as such. And then again I am only human, which means I cry and want to curl up in a ball some days too.<br /><br />I have four children and a husband and thanks be to God I have been a stay at home mom for most of my marriage. I am truly trying to see the gift in this illness. Why me? and then again, why not me? Several times I have thought that tomorrow will be different. It will be a better day. All of this will just end and I will wake up from a bad dream. I will be able to go running again and lose these 40 pounds that so quickly have become my unwanted baggage. I will shed this body which has become my prison. I have wasted moments...days... living for the future while watching the present slip away. All the while, my kids are getting bigger and older. My husband is excelling at his career and continues to climb the ladder of success. And I sit in my own world of sorrow and scream silently within. <br /><br />My New Year's resolution is to take back my life which I feel has been robbed. I won't simply lose weight but will gain life. I will be a part of the moment rather than watching it slip away. I will silently accept the pain and offer it up to God in return for the peace, comfort and strength for someone else who needs it.<br /><br />May God bless you and care for all of us.
irkedout responded:
I read this and I had to respond -- I was recently diagnosed in October but had been struggling with symptoms for more than 4 years by that point. I want to give you hope that things CAN get better. I promise, I identify with where you are now so well. I have learned how to manage my symptoms without any drugs and live a mostly normal life (I went from being in complete agony for 4 years straight with NO RELIEF to maybe 1-2 "bad" days a week -- which aren't even close to what they used to be)
I did it by making myself and my health a priority above everything else. Some of these things will seem so simple or impossible but just entertain the idea and try it for a few months.
1) GET ENOUGH SLEEP. It doesnt matter how - always always always get enough sleep. Do not compromise that.
2) Go to a chiropractor - I see a upper cervical chiropractor and highly recommend that type of chiropractor
3) Adjust your diet and eat frequently -- one of my symptoms is hypoglycemia so I must manage my blood sugar very well in order to have any amount of energy (if you struggle with this I can give you more pointers) -- eat HIGH quality food (do not eat processed food -- that includes breads, frozen, most dairy - and eat every 3-4 hours without fail)
4) Exercise -- I fell in love with zumba, yoga, and pilates (I know this may seem impossible, but take baby steps... you can get there) -- they help to loosen up your tight muscles, relieve stress, help you sleep, and releases your body's natural pain killers. (Remember, for us this is about mind over matter... your body CAN still exercise, but your brain isnt going to want you to at first thanks to the pain and fatigue... dont let it stop you from getting better - you CAN push through it and the benefits of doing so are worth it)
5) Take supplements - I take magnesium, vitamin B, and vitamin D
6) Find a hobby or something that makes you happy and make time for it -- if you let yourself become depressed over the condition your health is in, this only makes the pain worse because you are constantly concentrating on it. MAKE YOURSELF do it, even when you are hurting or are too tired. You CAN do it.
7) Find someone to confide in -- teach them to understand what it feels like so you can talk to them about it. It helps to not have to hide your symptoms.
Now, I just see FMS as my body being high maintenance to feel good... You CAN feel better again -- it will take some time (it took me around 6-8 months) but you CAN get there, and it IS worth it. You will appreciate those days you feel great so much more once you get there.
I did it by making myself and my health a priority above everything else. Some of these things will seem so simple or impossible but just entertain the idea and try it for a few months.
1) GET ENOUGH SLEEP. It doesnt matter how - always always always get enough sleep. Do not compromise that.
2) Go to a chiropractor - I see a upper cervical chiropractor and highly recommend that type of chiropractor
3) Adjust your diet and eat frequently -- one of my symptoms is hypoglycemia so I must manage my blood sugar very well in order to have any amount of energy (if you struggle with this I can give you more pointers) -- eat HIGH quality food (do not eat processed food -- that includes breads, frozen, most dairy - and eat every 3-4 hours without fail)
4) Exercise -- I fell in love with zumba, yoga, and pilates (I know this may seem impossible, but take baby steps... you can get there) -- they help to loosen up your tight muscles, relieve stress, help you sleep, and releases your body's natural pain killers. (Remember, for us this is about mind over matter... your body CAN still exercise, but your brain isnt going to want you to at first thanks to the pain and fatigue... dont let it stop you from getting better - you CAN push through it and the benefits of doing so are worth it)
5) Take supplements - I take magnesium, vitamin B, and vitamin D
6) Find a hobby or something that makes you happy and make time for it -- if you let yourself become depressed over the condition your health is in, this only makes the pain worse because you are constantly concentrating on it. MAKE YOURSELF do it, even when you are hurting or are too tired. You CAN do it.
7) Find someone to confide in -- teach them to understand what it feels like so you can talk to them about it. It helps to not have to hide your symptoms.
Now, I just see FMS as my body being high maintenance to feel good... You CAN feel better again -- it will take some time (it took me around 6-8 months) but you CAN get there, and it IS worth it. You will appreciate those days you feel great so much more once you get there.
Report This| Share this:New to the Discussion. Looking to shareI read this and I had to respond -- I was recently diagnosed in October but had been struggling with symptoms for more than 4 years by that point. I want to give you hope that things CAN get better. I promise, I identify with where you are now so well. I have learned how to manage my symptoms without any drugs and live a mostly normal life (I went from being in complete agony for 4 years straight with NO RELIEF to maybe 1-2 "bad" days a week -- which aren't even close to what they used to be) <br /> <br />I did it by making myself and my health a priority above everything else. Some of these things will seem so simple or impossible but just entertain the idea and try it for a few months.<br /> <br />1) GET ENOUGH SLEEP. It doesnt matter how - always always always get enough sleep. Do not compromise that.<br />2) Go to a chiropractor - I see a upper cervical chiropractor and highly recommend that type of chiropractor<br />3) Adjust your diet and eat frequently -- one of my symptoms is hypoglycemia so I must manage my blood sugar very well in order to have any amount of energy (if you struggle with this I can give you more pointers) -- eat HIGH quality food (do not eat processed food -- that includes breads, frozen, most dairy - and eat every 3-4 hours without fail)<br />4) Exercise -- I fell in love with zumba, yoga, and pilates (I know this may seem impossible, but take baby steps... you can get there) -- they help to loosen up your tight muscles, relieve stress, help you sleep, and releases your body's natural pain killers. (Remember, for us this is about mind over matter... your body CAN still exercise, but your brain isnt going to want you to at first thanks to the pain and fatigue... dont let it stop you from getting better - you CAN push through it and the benefits of doing so are worth it)<br />5) Take supplements - I take magnesium, vitamin B, and vitamin D<br />6) Find a hobby or something that makes you happy and make time for it -- if you let yourself become depressed over the condition your health is in, this only makes the pain worse because you are constantly concentrating on it. MAKE YOURSELF do it, even when you are hurting or are too tired. You CAN do it. <br />7) Find someone to confide in -- teach them to understand what it feels like so you can talk to them about it. It helps to not have to hide your symptoms.<br /> <br />Now, I just see FMS as my body being high maintenance to feel good... You CAN feel better again -- it will take some time (it took me around 6-8 months) but you CAN get there, and it IS worth it. You will appreciate those days you feel great so much more once you get there.
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