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Diagnosed in March 2012...and I feel like I'm goin crazy :0)
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misstmreese posted:
Hi there, I was recently diagnosed and have been having some issues coping with my symptoms as well as wrapping my mind around the fact that I am going to have to deal with these issues for the rest of my life. I have dealt with the majority of these symptoms for most of my life as I have had chronic pain and fatigue issues since a teen (I am only 32) and in the beginning thought that it wouldn't been an issue, in fact I felt such relief at having a diagnosis because I then knew that it wasn't all in my head and I wasn't imagining the pain or just lazy like a lot of people in my life said or assumed...over the past few weeks I have had an onset of severe pain like I have not experienced before that lasted longer than before and it wiped me out both physically and emotionally. I am a single mom living an hour and a half away from my family and friends and any support and it is making me see that I need to make some serious changes and get myself closer to some support. Not a lot of people in my life know that I was diagnosed with fibromyalgia because I did not want them to view me differently and I am now questioning whether or not I should start being more open with people about it. My boss knows that I have it as well as my staff as it does effect my ability to function at work, fibro-fog and I go way back not to mention the numerous trips to see my rhuemotologist. While most days have been good, lately it seems the bad ones have been coming more and more often and though I pride myself in working I am starting to question whether or not I can continue doing so. I am very frustrated which is making me very emotional haha.
Now that I have gotten my negatives out of my head, for the positives. My daughter, who is only 6 years old, is absolutely amazing, she doesn't understand what I am going through but she knows that when I am having a bad dayI need quiet and rest and she lets me do so. My boyfriend is very accomodating and understanding and patient, he has been researching what we, not just me but we, can do to help my situation and is even willing to do yoga with me and modify his diet. I currently live 2 hours away from him and we are discussing me moving closer so he can help me more, he wants to turn our room into a sanctuary for me, my sister in-law will take my daughter any time I need her to and is willing to help in anyway she can including driving all the way down here to clean and do our laundry. My boss is a saint, she has let me miss so much work for the numerous tests and appointments and has not docked my pay or made me use vacation time and I had only had this job for 2 months when I was diagnosed.

If anyone has any suggestions for me, they are greatly appreciated. I don't want to sound like a whiner but I am at a loss. I know that this will take time manage and patience has never been a strong point for me!

Thank you for letting me get that all off my chest!
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painmemoirs responded:
I do want to tell you that you are not alone as you may be able to tell by the site. I am only 24 & after yrs of multiple symptoms, ER visits, different DRs, My diagnosis is scoliosis w| a herniated L4 disc that they want to remove & merge the vertebrae, the disc is now crushing my nerves, making it very difficult to function, normally, & most recently I was diagnosed w| fibromyalgia. After researching for yrs it was the conclusion I came to so hearing it from a dr made me feel better even though it really didnt. Since the confirmation of my illnesses, I still feel very alone most days. Even trying to build a new relationship w| a special someone has been stressful. My advice to you in do not take for granted to help & support you have. Its something I wish I had, even when my family pretends to understand its only for the moment, then I'm back to being alone. Anyways, I didnt mean to ramble I just wanted to show support. Being an aggressive former athletic black lesbian who is suffering from invisible illness is a curse but I also have many blessings. Day by day, my friend.
 
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misstmreese replied to painmemoirs's response:
Wow, you have been through so much and are so young! Being an athlete it must be hard! I started having chronic pain at about 15, so even doing normal pe in school was a challenge! Thank you for the support, I really appreciate it. My boyfriend and I are just starting out, only been dating a few months though it feels like its been a lot longer, and so far he is supportive, I hope he continues to be. I have faith that there are good people out there that have love, patience and understanding for people like us :0)


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