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fibromomof4 posted:
Hi. I have been suffering from fibro for years I just didn't know it. I finally have been diagnosed correctly and WOW. I am overwhelmed both in a good way and a bad way (if you know what I mean). I feel helpless. The meds. I am one are not helping and the new med. the dr. put me on has sooo many side effects I am scared to start it. People around me don't understand the severity of my symptoms. I cannot be the person I want to be because of fibro. My family deserves better than what I can give them. I am so depressed. Does anyone else know how I feel?
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alv4n responded:
Absolutely understand how you feel. I was diagnosed almost 7 years ago, and it has waxed and waned. I have tried this and that medication and stopped as many as I've started.

The most interesting thing happened to me yesterday, though, when I was out to lunch with my husband. We were sitting at the table, waiting for our food, and I looked over at him and it occurred to me that, he was just sitting. Just sitting and feeling fine. I asked him, "Are you feeling fine, just sitting here right now, just waiting for our food?" and of course, he was terrified this was some sort of trick question. But once he saw it was safe, he said "yes". I said, "So, you do not have any aches or pains while you're just sitting there" And he said "no". And I told him, that while we were sitting there, doing such a normal everyday thing, I was in agony. I told him my upper back/ shoulders were like on fire, or sort of crampy, but really just painful, hard to describe. And I said to him "you know, I always feel like this when I'm just sitting." And he was completely surprised. He said he thought I was only hurting when I actually complained about it. I said that if I complained every time I was aching, it would be all that came out of my mouth. Even after 7 years with this syndrome and my husband being with me all the way, he still didn't really get it. I don't think anybody can, except for other fibro sufferers.
The single most important factor that has helped me, however, is PACING MYSELF. I don't care how much I thought I had been pacing myself in the past, I absolutely WAS NOT. And fibro sufferers are the people who want to do it all, so pacing is counterintuitive. But believe me, let your family know how you are feeling, tell them it is a fact of your and their lives that you will need to lie down to rest often, that you will need help with heavy to moderate lifting: sometimes even washing large pots in the sink nearly brings tears of pain to my eyes.

You are not alone. :Let yourself be depressed, let yourself be angry, and let yourself be loved.
 
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feelingunsupported replied to alv4n's response:
I really wish I could find the right words to explain to my fianc? and daughter the pain I feel constantly...sometimes worse than others and sometimes totally unbearable but I feel like when I get to the point where my body won't function anymore he thinks I'm mad or or upset then he gets quiet or down and depressed acting. That's the last thing I need. It makes me feel so guilty...to the point I try to get up and pretend like nothing is wrong. My daughter is 13 and most of the time she's very un-sympathetic. Just once I would like to have someone say...honey or mom please sit down and rest...I will take care of dinner or cleaning, etc. or can I run a hot bath for you? Sometimes I just want to crawl in a hole where no one can find me for a day or two ... Just to relieve me from some of this guilt and also the anger towards this stupid disease.


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