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1st visit with Rheumatologist
tony2tall posted:
White male, age 49, 6'4", 245lbs. Medically retired since 1996.
I have history of Chronic Scaitic/Lumbar pain (Lamenectomy 1990), Osteoarthritis, chronic fatigue and systemic inflamation. Bialaterial partial knee replacements within last 2 years. Weekly Chiropractor adjustment. Any physical activity is very difficult. I exercise in pool 3-4 times weekly. Sleep apnea which I consider to be very minimal. I avoid using CPAP because it is cumbersome and drys nasal passages even using the water attachment.
Today was my first visit with Rheumatologist. Dr was astonished of me being medically retired! Her Diagnosis- Hyper Mobility issue attributed to my height, genetically weak joint cologen. Soft tissue tenderness due to sleep apnea. Dr recommended increaseing low impact exercise, reduce body weight. Mentioned prescribing Neurontin or various antidepressants but encouaged enhanced exercising instead. Fibromyalgia was never addressed.
Very unhappy with this Dr visit.
I'm I being over sensitive?
lazymary1 responded:
Hi Tony,

I don't think you're being oversensitive at all.

We go to the doctors office to get help, not to be brushed aside. Almost makes you want to not tell them anything, they don't seem to want to hear it! I probably shouldn't say that - they are not all alike, but I hate it when they don't take us seriously. It's hard enough living like this, with all the physical limitations we have, and the people that are supposed to help us don't always do that.

I'm sorry you had to go through that, but just know they are not all the same. I know most people have a rheumatologist for their FM, but mine is not right for me, so my primary care handles my meds for FM. If you can, maybe you should look into seeing someone else, finding a good fit for you. Let's face it, if you can't be honest with them, or they're not helping you, what's the point?

Sounds like you are already dealing with a lot of issues, those knee replacements must have been awful! Hang in there Tony, hopefully it will get better soon. I'll send out some good vibes - hope you can feel them!

tony2tall replied to lazymary1's response:
Hello Mary
Appreciate your sympathetic words.
The relief I received from the partial knee replacements has been wonderful. Bone on Bone is a dead end street!
Within the first 60 seconds of the Rheumatologist entering exam room today, I could sense I was wasting my time. I think this doctor only considers visible disabilities as legitiment!
I'm so frustrated with the word Sleep Apnea!
Last night I went to sleep around 11pm and never woke up once until 6am this morning. Did not take any sleep aid medicine either! I'm considering undergoing another sleep study to reevaluate the 7 year old Apnea diagnosis.
lazymary1 replied to tony2tall's response:
Hi again Tony,

Wow! I can't imagine the pain that goes with "bone on bone" in your knees. Glad you got that fixed up, you gotta count your blessings, especially when you don't feel like you have that many.

I think you're right about the visible disabilities thing. "But you don't look sick" is it's own website now (I think-google it). We are not treated the same as those with more obvious issues. It's only natural, but I still think physicians ought to know better. When I was in my mid 20's I asked the doctor about my low back pain, it was really getting bad. He told me I should have my boyfriend take me out for a nice dinner - I'd feel better. It took a very long time before I would go to another doctor for anything. I'm 46 now, unfortunately can't avoid them anymore. Such is life.

Ayway, I'll go back to work now. But I think if you can sleep with no meds, (I can't) and no machine, you may be better off than you think! A lot can change in 7 years!

Take care of yourself Tony,

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