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    Tingling, Burning, Numb, Cold Feet
    defectivelady posted:
    I was just wondering if anyone has experienced this. I will get this numbing sensation in my feet then they will start tingling and burning and the get very cold. I have talked to all my doctors as well as done my own research and it is not a side effect from any of the meds I am currently taking. Also, I have been checked out for poor circulation and have been told I have no problems with that. I couldn't fit anything else in the title but I have also been experience for years really bad muscle spasms in my back and legs. Does anyone else have these problems?
    Grapedy responded:
    That's FM. Last summer I developed burning/tingling in my feet that's pretty much constant. Some days it's more noticeable than others.
    bookangel responded:
    yep....part of FM...that is how my problems started out....

    You may want to keep a pain journal and see a fibro friendly doctor in your area.

    go to they have a link to finding a fibo friendly doctor in your are...they are mainly Rhum. who can dx this dragon.

    Lish2007 responded:
    Oh yes..i havent had that in myfeet, but here lately its been pretty bad in my legs. I have had FM for almost 3 yrs now and usually its just a very deep, dull ache. The burning feeling that ive had in my legs is almost like it feels wet or real cold next to my clothing, its a very odd feeling and very uncomfortable. I hope u can find something to help ease that pain.

    TJAlex responded:
    Yes, me too. I get it in both my hands and feet. I get the glassy eyed stare when I ask the Drs about it.

    defectivelady responded:
    Thank you everyone. Its nice knowing I am not crazy! That weird thing we are all experiencing does have a name! Upon doing my own research since I posted that I found that it is called Raynaud's Syndrome. It does have a name even though I was told that it wasn't anything important and not an important symptom of anything. It is just one more thing that validates the possibility of me having FM but won't know for sure for another week. I just set up an appointment with my doctor to have him examine me. Hopefully he says yes you have FM. Even though I don't want another diagnoses of something wrong I want an answer as to why I am always in so much pain and why nothing works. I have had MRIs and CTs and MRAs and X-rays and they always turn out normal. Hopefully I will finally have an answer next week!
    keylimediva responded:
    know this is an old post, but i just joined...after extensive searches and finally finding a doctor who understood my disease...i was told in conjunction w/Sjorgren's Syndrome & Fibromyalgia i have Reynaud's Phenomenon.

    symptoms are cold hands, feet to the point of turning blue...triggers are stress, cold air, fatigue...i take a blood pressure med (Norvasc) that is a calcium channel blocker w/helps to keep the arteries/blood vessels dilated(open) -- an adequate oxygen supply stops that "blue" effect on the fingers & toes.

    a heating pad on low setting has been my lifesaver even on days when it might be warm outside..hope this helps!
    Asagrace responded:
    The feet, YES! My feet are burning right now something fierce. They also get hot and very red. I have something called Mitchell's disease, but am suspicious that it is closely tied with fibromyalgia, if not actually part of it. This is the worst flare I've had in years. It's weird (as is all of fibro) because sometimes they are cold and still burn, but the only relief I get from the burning is putting them in cold water. ??? Numbness I get in spots as well. I'm having the muscle spasms and a lot of all over pain as well, ever since winter set in. This seems to be a bad year for me, worse than recent 3 or 4 at least. Hang in there, this too shall pass!
    VR2LRose responded:

    Yes, I have this problem in my left foot 24/7. Mine is from a pinched nerve, due to sciatica which is pretty prevalent in the FM community. Sciatica can also cause very bad muscle spasms in the back and down the backside of your leg. My leg also gets numb in spots sometimes. I also have Renault's Disease, which makes it feel even worse. First I went to an Orthopedic doctor now I am going to see a pain specialist as soon as I can get an appointment.
    treat2c responded:
    I'm so glad to see your post. I get the tingling in my hands and feet but it just started in the last month. I've already been diagnosed with Lupus, RA, Glaucoma, Fibro & Sjorgren's, but I've been dealing with those for 13 years. This tingling/pain is new and driving me crazy and the cold does not appear to be my friend.

    My difficulty is that I also have extremely severe migraines that mimic a stroke at the worst to the point that one side of my body goes numb. I am definitely going to ask my specialist about Reynaud's Phenomenon.
    aed1443 responded:
    I have it too. Requip helps with the cramping. In my case I also have a constant pain in my right heel that causes me to limp most of the time. My pediatrist said my feet were structurally sound and that all of my problems were the FM.
    jbwilson77 responded:
    You might want to ask your doctor about your cholesterol meds. Some people get this kind of neuropath from statins. I had it and it was about halfway up my calves before I quit the statins. It got a lot bettern and now it's only in my foot up to the instep. Since I went off statins I've been diagnosed with diabetes, which can also cause this sort of pain, but mine hasn't gotten worse in 6 years.
    rockymtnhi responded:
    Yesterday I was at my doctor's office, complaining about the burning feet, the tingling, and muscle cramps all over. The worst cramps are down the back of my legs (usually the left).
    Although I have had FMS for years, this is something new! I really feel like I am a canidate for the "home."
    I haven't found anything that gets rid of the pain. My joints ache at night and my feet burn along with the muscle cramps, which doesn't make for a good nights sleep. (Sleeping have become a thing of the past anyhow). Does anyone have any solutions or suggestion to ease this problem?
    Purpleangel48 responded:
    Yes, I have experienced this phenomen only recently. I have had fibromyalgia for over 10 years and only within the last year have I started to get the problems with my feet that you describe. I have had multiple test and all come back normal. I have had bad muscle spasms in my back and legs. I have wondered if it might also be restless leg syndrome but, I don't know. Is this a side effect of fibromyalgia? I don't know.
    Agatha41 responded:
    I have all the symptoms you inquire about. The first time I had a leg spasm I laid on the floor for 20 mins. Knowing that it was one of the symptoms of fibro, I couldn't believe the intense pain and inability to move. The occurances have not been as severe and there is no predicting when its happens. I also was checked out physically ending with the diagnosis of Fibromyalgia after many years of being told my symptoms "were in my head". Unfortunately there are still so many physicians and people in the medical field that will not except our dx. agatha

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