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lyrica
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hurting134 posted:
I have just started taking lyrica and I wondered if anyone else out there is taking it also, I would like to know how many mg you take and how it effects you. How long do you have to take this to finally feel any benefits?
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doodlesnana responded:
hi hurting134

I am currently taking lyrica and have been on It about two years,honestly I was at a point were I felt like It was not helping at all until I was off of it for 3 weeks and I was wrong,

I take 150mg 3 times a day I see the dr on monday and will probably have it increased.

You can expect to feel off for about a month and then you should be ok, don't give up on it I'm thankful to have It.

I hope i was helpful and I wish you luck.

Take Care

Vicky
 
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scgrey123076 replied to doodlesnana's response:
Hello hurting 134,
I'm new to FM and Lyrica was the 1st med my doctors had me try. I took it for around 10 days and had a reaction to it. I thought my nerves were jumping through my skin. I was switched over to Savella and have been taking it around 6 weeks now. Honestly, I can tell much of a difference in that I'm still hurting and most all of the other FM symptoms are still with me. Good luck to you. We'll be searching out our "relief" to this terrible pain together. Best to you!
 
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debw216 responded:
Hi, I started taking Lyrica about a month ago. I take 75mgs twice a day. I haven't noticed anything different yet....am still waiting on that one. But I want to give it a good and decent try, so will stay on it for a while longer.

Some meds, have to be in your system and stay at a certain level, for them to work. The first week or so after starting the Lyrica, I slept alot....but now, it doesn't bother me.

Hope this helps!

DebW
 
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zenone responded:
I was told I would get a "high" when I started Lyrica, which I did...I have had Fibro for 3 yrs now....over this time I have upped my Lyrica to 100mgs twice a day. Please remember, everyone and every body is different what works for one may not work for someone else. Do you like an trust your Doc? I know this can be scary, as all of a sudden you may hurt some place you never hurt before an wonder what the hell it could be. There is a Dr. Bennet (you have to search for him by name and fibro) he has done ground breaking work that can educate you IF you choose to work on your own behalf.

Please know just when you think you have control the barometric pressure can throw you for a loop! It is hard to give up control but this is not like a cold where you can battle through it...it can wipe you out at a moments notice..on many sites you will find people who feel damned bedause the pain can be so intense and they are mad it does not cause death...

I have found for me it is to baby myself do what I can do and learn to not over do as I suffer later for it...then again people are different an have different lives...fibro is on the ssd list but the whole process takes about 4 years just so you know an it helps to have something else wrong....document your fibro it would help your lawyer. I have a woman come in through an agency once a week as sweeping motions an simple house cleaning can cause my fibro to flare my lawyer loved getting copies of her weekly note...see what is available in your area.I am sure it will be a very long time to find a cure so don't count on one do what you can for your body (hatha yoga does seem to help) I also have osteo arthiritis (lovely....ugh) but the nanoproxen (otc) I take seems to help also...but that is me.

I love the 30lb weight gain from all my meds why in women does it always go down the body an never across the chest? Oh, I forgot to tell you, I had thought my radiation for breast cancer was the cause of pain then I found out Fibro seems to love our 2nd rib! So if "stuff" starts in the chest area have your doc check it out. Will your doc send you to a neurologist? Can you afford it? GO, if you can.

Pot does nothing for ME, but on very limited occasions I take a 10 mg valium at bedtime an feel like my whole body has gone to the dry cleaners (lovely ) .overnight. Hope some of this helps just keep investigating and education yourself, compare notes with buddies...learn to lean a little on others and live your life well.
 
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rednewbie responded:
I take 50 mg in the morning and 50 mg at night. I have tried several to increase it, and it makes me throw up and very anxious. So, at 100 mg a day is where I stay. My pain doc is very frustrated with me, he feels I should toughen out through the side effects but the side effects of throwing up and feeling so anxious is more effecting my life than the pain. I can take pain meds, sleep more, use pain patches, and tens units to help with the pain. With the side effects I am a total mess. And with my crohns and other issues, throwing up is just not an option. Why don't doc listen to patients?

I have never felt high at any at the dosages level of Lyrica, and I was at one point at 300 mg a day. Does Lyrica help me? Like another poster said, I do not necessary feel better, I just notice I feel much worse when I am off it. I hope that makes sense. It will take awhile for the meds to work. Any benefits maybe so gradual you may not notice it. But, if you ever stop the med for any reason, weeks later you will notice you move stiffer, your joints are cracking, and everything hurts worse.

I hope this helps.
Gin
 
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hopein2009 replied to zenone's response:
I was on Lyrica for about a year along with Cymbalta for a year. The Lyrica worked for a while but after about 6 months it just seemed to quit. I was on 300mg a day. It also made me gain a lot of weight, seemed like water retention. Cymbalta did nothing for my pain levels, and my depression seemed worse than when I was taking Lexapro. These meds were prescribed by my PCP, hr seemed to not really know what to do with me, and was getting more and more frustrated.

So I asked for a referral to a PM doc who treats FM patients. I love him! He put me back on my Lexapro 20 mg daily,
Savella 50 mg BID, Azulfadine(anti-inflammatory) 500 mg TID, Valium 10 mg daily, Norco 10/325 TID as needed daily. Other meds that I take are Flexeril 10 mg at bedtime, Ambien 10 mg at bedtime, Synthroid 200mcg daily, and HCTZ 25 mg daily(HTN). I know this seems like a lot but the last two months my overall pain levels have dropped and my overall feeling of well being has increased. I still have my bad days, but they have been less.

You see I am a nurse and I work long 12 hour shifts that take a huge toll on my body. But I HAVE to work because my income is our main income not to mention the insurance benefits I have are excellent. This has been a four year process and I want to encourage you to continue to try and figure out the regime that works for you. I also take Calcium and Vit D, and B vitamins and an Iron supplement because I am anemic and my Vit D level was only 14 at one time. This can cause additional bone pain and fatigue. Now if they could only come up with a good energy pill.....hmmm, life would be even better! I hope this helps you.

Lisa in WV
 
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Dana419 responded:
I have been on a combination of 60 mg of Cymbalta once daily and up to 150 mg. of Lyrica twice daily for close to two years. I can tell you that these drugs have changed my life ,I still have flare ups and need pain meds such as Tramadol, but I truly don't think I could maintain my employment and get out of bed every day if it weren't for these medications.
 
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hurting134 responded:
I want to thank you all for your input, I have not been diagnosed as of yet because I have no insurance So I have gone to a pain management doc, He has me on hydorcodone 7.5 mg 4 times a day which really helps keep me in my seat from the pain, It doesnt take it away but it helps alot. soma for the bad parts of the days and I asked him for lyrica so I have just started that. I have been to a neurologist he says he cant see anything wrong without taking tests but he doesnt feel I need any intense tests that will just cost more. I have gotten blood tests that show nothing but pre-diabetes. I have gone to a RA doc and he wants me to go to a sleep study which I cannot afford so that is out of the question right now. He thinks I may have sleep apnea But does that cause the cronic pain I am feeling all the time? Again thank you ALL for your input.
 
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jul2010 replied to hurting134's response:
Dear Hurting134:

I just read your response. Sleep Apnea does not cause chronic pain, but, it can contribute to your pain level because you are not truely get rest. This makes things worse because people with Fibro most always have the Alpha wave sleep anomoly. I am concerned for you. This disorder is nothing to blow off. If you have sleep apnea, your body is not getting enough oxygen. That means your brain and your heart have to work harder. My husband has it and he could die in his sleep without his C-pap machine. He has it really bad. He stops breathing for 30 seconds at a time. Most people don't have it that bad. You may or may not have it, but, if your physician thinks you may have it, I would consider doing the sleep study.
 
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zenone replied to hurting134's response:
I have no idea what state you are in an you have remarked, you are low on med funds which leaves me to believe you may not have any or enough coverage...are you aware of the department of human services? that may be a resource for you, just a thought. some states also help with the cost of drugs.

july2010 is correct concerning the sleep matter by the way although "they" feel we have chronic fatigue...

I would love it if there was a computer fibro people could enter their shared symtoms into, to shut up the doc's who tell us to work through it, get a list of meds available so we each could have our doctors learn how to customize to our needs. One that reasearchers could learn from by the facts of the high numbers that were the same in content and other attributes that would cause them to broaden their own search. Hopefully those with auto immune prolems will benefit with the unraveling of genes.

I am blessed with receiving disability, which actually was a fight to get an took years even with a great lawyer. I have no idea what this would be like with a young family and work or how yu all survive on flare days, my heart goes out to you.
 
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hurting134 replied to zenone's response:
Thank you very much, I have applied for social services to get help and hopefully I do get it and I can get my study done and some kind of diagnosis or answers.
 
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zenone replied to hurting134's response:
Yu go girl! Push, even when you'd rather be sleeping! If I can make it YOU can make it. I so wish you the best.
 
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Mothersnature responded:
I noticed releif within about a week of starting Lyrica, @ 50mg/3x a day, increasing ot 75 mg 3x. I definately felt off, like you said for about a month. but it was worht it to get used to a new chemical in order to physically want to get up and do something!
I was a single mom, in my early 30's with 2 young kids when I started Lyrica. I was shocked. for the first time i could keep up 100%! I felt 16 again, physically at least!
Talk to your dr, if they can't or don't help, keep looking ofr a doc that will! Not all meds work the same for all people, even with the same conditions or disease! It sux i know, it would benice if I could take tylenol or anything else for headaches, instead I reduce my stress and work through them. Same is true for chronic pain, having suffered for almost 25 years now.
Keep yyour chin up & remember if it doesn't fell right, it may not be!
 
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Mothersnature replied to zenone's response:
I found FM releif with valium, or Ativan, as well. I just can't handle the zmbie affect even on small doses it takes a toll on me. I agree, those few nights of decent rest though are heavenly!


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