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Tidbits with me, and some great news
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Socialwrkr posted:
Hello everyone,

I'm winding down a day that has been blah, but getting excited about the next few months. To start, I'll be gone Sun-Thursday, our entire family will be meeting at a cabin in Hocking Hills, to celebrate my parents upcoming 50th anniversary. Should be a great time, but no phones, cable, internet... oh my!

And, the great news, I got a call yesterday from the NFA. They are putting on these programs across the country in conjunction with Pfizer Pharmaceuticals. It's called FIbro Focus and they've asked me to host the Ohio meeting. Yay! I get to hire the guest speaker and find the location, Pfizer pays for everything, including food for the masses. The hope is to have 50-100 folks there. So I'll be working on that some, the projected date is in October. I'm so excited to have this opportunity to spread the word some more.

Lastly, I want to make a suggestion to those of us who aren't working. We need to feel useful in our lives, that's a basic human emotional need. So I want to encourage anyone out there who can manage it to find some sort of volunteer work. Do something little, go pet the kitties at the shelter, man the phones for your church, go visit the elderly just to chat, just something to get you out of the house and doing something that helps you feel good about yourself.

I left a social work job due to illness and one of the hardest things for me has been feeling that I have no worth. I've picked up things here and there and tomorrow I start my newest volunteer adventure, manning a desk for 4 hours for a social service agency that is run by the churchs in our community. The work load is very light, they totally understand my health issues and it's someplace I can use my social work knowledge. And just knowing I'm going tomorrow has given me a boost in endorphins and that in turn helps everything!

So just think about what kinds of things you can do, the options are limitles and what a wonderful contribution you can make!

All my best
Be Gentle on Yourself!!!

~~Aimee

http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee

http://www.lumigrate.com/   Fibromyalgia forum writer, Aimee Shannon
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pnaturegirl responded:
Great job Aimee!!

Let me no where it is gonna be and when?
Check out my facebook page called, This Crazy Thing Called Pots My new Exchange on WebMd called, Pots and Dysautonomia Exchange and you can always find me here on FM Exchange or through my email!
 
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icyhotmama responded:
I hope you have a great weekend with your family and friends. Wow 50 years together. That is some thing to celebrate.

And you having the NFA contacting you to organize this meeting here in Ohio, is Awsome! Congrats! Just think about all the people you will be getting the word out to.

Way to go Aimee!


Lydia
 
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Socialwrkr replied to pnaturegirl's response:
Of course!! I expect you and your mom in the front row!!
Be Gentle on Yourself!!! ~~Aimee http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee http://www.lumigrate.com/ Fibromyalgia forum writer, Aimee Shannon
 
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Socialwrkr replied to icyhotmama's response:
Thanks Lydia, I'm so excited!!
Be Gentle on Yourself!!! ~~Aimee http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee http://www.lumigrate.com/ Fibromyalgia forum writer, Aimee Shannon
 
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booch007 responded:
Aimee,
Great thread as usual.

I hope the adventure is exciting and has great memories for you...take LOTS of pictures! 50 is a big one, good for them, that doesn't happen easily. Wise parents there.

This program sounds great for you and the volunteering is awesome. You are a bright light for this board and so *valuable. I am sorry at times you lose your sense of worth, it is as you say.....so important to find meaning in the day.

Making a difference in someone's life.....*priceless.

And you are right, not much effort to do it at times. Talking to the lonely in a nursing home.....petting those animals that need to be touched or walked.....

Often we are just "People, people who need people........" Need a music icon here...Mmmmm Mmmmmm

Have a wonderful time. No technology...a great adventure! Hugs, Nancy B
 
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alispazz responded:
Aimee


Congrats on the NFA, I think its wonderful that you will be doing this....Do they have a criteria that must be followed, and who do you invite to something like this? Gee maybe you coould ask our doc to be a guest speaker.....

Congrats to your parents...50 years is a milestone not reached by many any more.

Doing something for others is the only way to go through life....it is not how much you give in money it is how you give in love of your fellow man that counts.

Hope you have fun with your family,

Hugs

Ali
Follow your heart and not your dreams..the dreams are from your mind and can lead you astray, the heart never can..SMOLOL Hugs Ali
 
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Caprice_WebMD_Staff responded:
Congrats to you, Aimee, and to your parents!

And I totally agree about our basic human need to feel useful. I know that one of the darkest periods in my life was when Fibromyalgia made it impossible for me to continue my volunteer work in the community and working outside the home. It wasn't good at all.

Very well said, Aimee.

I also want to remind everyone that helping out here and other online communities IS making a difference in the lives of others. NONE of you are useless, not here and, I'm sure, not in your own lives with your own friends and families.
Treat people as if they were what they ought to be, and you'll help them to become what they are capable of becoming. ~Goethe
 
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Socialwrkr replied to Caprice_WebMD_Staff's response:
Ohh yes, good points Caprice! Hadn't really thought about all those who can't get out of the house, but most definitely, everyone here does a wonderful service with each post they make. It always amazes me when we see someone say "I thought I was the only one".

So, yes, do whatever you can within your limits, it's all good!

And my first day was WONDERFUL and exhausting!! As I said on Penny's post, I certainly am seeing my deficits that are new for me, but the manager is the most incredibly kind person and she's willing to work with me and my completely zonked memory!
Be Gentle on Yourself!!! ~~Aimee http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee http://www.lumigrate.com/ Fibromyalgia forum writer, Aimee Shannon
 
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pocotaz replied to Socialwrkr's response:
AIMEE,

What a great service you are doing ... you amaze me to no end... keep up the great work and what an honor to be asked to help in getting the word out by the NFA....

I also would like to congratulate your parents on getting to the 50 yr. mark in marriage...That is a bleesing in itself... and something to be proud of... so many give up..marrage is work and when two people love eac other and want to work at it and for this many years ...well that is wonderful...

You will have a great time even without all the perks of life...peace and quiet and being with family...the best way to celebrate ther marriage....

Hugs to you and all of your family...

Linda
 
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Anjl26 responded:
Fabulous news about the Pfizer project! Way to go!
Being happy doesn't mean everything's perfect. It means you decide to see beyond the imperfections. hugs Sharon


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