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Aging with Fibro
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Mark Pellegrino, MD posted:
Linda R posed a question in a thread about new or worsening fibro symptoms as we get older. Let's explore this! Since your diagnosis of FM, whenever it was, what has happened as you've gotten older. The poll puts you in 3 basic categories, but please comment on specifics if you wish. I'll give my thoughts later as well.

If you haven't gotten any older since your diagnosis, then you can just watch!

Take the Poll

Since your diagnosis of FM, what has happened to your overall fibro over time?
  • I am better
  • I am worse
  • I am the same
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dollbug responded:
Morning again Dr. P.....so now we are being serious, after a good and delightful laugh for the day.....I am still laughing....can you tell?

MiMi in NC....ok....good poll....I am so much better than I was when all of this started.....but I do want to add this also....I have had 6 hand surgeries (3 on each hand) right elbow surgery, cervical surgery, shots in both hips, shots in both knees several times....my 4th knee surgery.....parathyroid surgery.....and all of this has been since 2004....which I had my first carpal tunnel surgery....I met the wrath of the dragon while I was recovering from my first left hand surgery in 2005....

OK....and as everyone knows....my doctor thought that I was just depressed.....I was in bad pain in the beginning....but I guess I had reason to be....in 2005, I had my left hand surgery, started the change of life, and lost my job and all of this was at the same time....

My health issues though started at the end of 2003 early part of 2004....when I had carpal tunnel problems which took the doctors forever to figure this out....I had my first carpal tunnel surgery on right hand in July 2004....my first left hand surgery in Dec 2005....and went downhill from there...

But now....I feel so much better....other than the chronic fatigue that I face every day....I am still trying to find something to help this....

I take my vitamins and supplements.....try to eat right...and do what I can around the house...but I try to stay within my limits.....as I hate the pain that I cause myself when I cross the lines....

This is my 2 cents worth....and thanks for sharing....


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA.... My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
 
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1rmouse responded:
Hi Dr Pellegrino, From 1984 to today I'd have to say that
I feel better in some ways now, even better than when this whole thing hit me. But having said that let me add that I seem to deal with more health issues that are now beginning tagged by my Rheumy as FM related than I did back when. Could be aging, could be medication related or just life style. OR it could be different stages Fibro takes as time goes by. But now, rather than back when, I have medications, doctors and health resources that were not there for me or those like me with FMS.
Most importantly there is the UNDERSTANDING that this is real. There are Doctors who have studied and researched this and can treat us with medications that were not even thought of back then. Thereby making our time down and out with Fibro less frequent and some Fibro 'events' even less painful or debilitating.
Today there is so much more out there for me and for what FM does to me: Depression, aches and pains, Vitamins and supplements, diet, therapy and treatments such as Chiropractic,( which I do use) water and massage. None of which were there for people with FM back when I got the DX. So helpful things,

I will say that the once a month and daily doses of D have been beyond helpful with the bone and leg pain over all. Almost not even there anymore. The stomach issues IBS and GERD are bothersome. Maybe from taking meds for the Fibro muscle pain over time. The depression with the D is under control and over all I feel better, I truly do!

Thanks so much for taking the time to put the poll up. I will be interested in seeing if FMS changes as we age. I'm thinking we get 'add on" FM related/ linked to/ caused by FM
health issues as time goes by.

Soft hugs going out to you..
Linda R
 
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Anjl26 responded:
I am a bit better due to learning how to manage my symptoms. I've only been diagnosed for 4 years, so I don't have much to compare to yet.
Being happy doesn't mean everything's perfect. It means you decide to see beyond the imperfections. hugs Sharon
 
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Socialwrkr responded:
I go through cycles. I have learned new ways to manage and cope and have gotten getting a medication cocktail down to a science.

But, whenever a new health crisis hits, non-FM related, it takes the fibro down a real bad road, and I can't seem to find my way back to where I was.

So overall, I'm worse than I was 10 years ago. I do manage better and I do know and avoid my triggers better.

I just need to have non-FM things stop! I've also had my fair share of new things that are FM related, but I guess I figure those are in for the long haul!
Be Gentle on Yourself!!! ~~Aimee http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee http://www.lumigrate.com/ Fibromyalgia forum writer, Aimee
 
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alispazz responded:
I would have to say no change....I still have totally difficult days and days where its all good....Meaning I can tolerate the pain....worse when I overdue by nature and pay the piper.

Ali
Follow your heart and not your dreams..the dreams are from your mind and can lead you astray, the heart never can..SMOLOL Hugs Ali
 
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Socialwrkr replied to Socialwrkr's response:
I should also clarify, the fibro is significantly worse for me from when I first noticed symptoms. I managed with vitamins and occasional pain meds for a very long time prior to being diagnosed.

I'm on year 33 now with fibro....

I think I need a cake!!
Be Gentle on Yourself!!! ~~Aimee http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee http://www.lumigrate.com/ Fibromyalgia forum writer, Aimee
 
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Mark Pellegrino, MD replied to Socialwrkr's response:
Or let's have a parade for you!!

You are a great inspiration to us, Aimee. Thanks for all you do here! What's your favorite cake? Mine is Red cake. (Yep, you got me thinking about food....)
 
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larmarus responded:
Hi Dr. P.---

The FM is worse but I am better. I have learned some excellent coping skills that help with the FM and the non-FM. Also, I have got a great doctor (pain management specialist) who works with me on all the diagnosis'. I think that helps a lot. He really listens, works with me to find what works and what doesn't, and genuinely cares. He has been my doctor since 1997 which was a little over 6 years from when I was diagnosed. So we have weathered a few storms together.

Be curious to see how people respond to this poll, right now, people are saying worse.

Soft Hugs----Marianne
 
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Socialwrkr replied to Mark Pellegrino, MD's response:
Ohhhh german chocolate with homemade coconut pecan icing made with lots of lard!!

I figure with the nuts, it's health food!!!

Hehehe!
Be Gentle on Yourself!!! ~~Aimee http://www.facebook.com/pages/Fibromyalgia-Support-Groups-by-Aimee http://www.lumigrate.com/ Fibromyalgia forum writer, Aimee
 
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BEACHAHOLIC responded:
I would definately say worse because at first I had moderate relief from pain with Advil(in the beginning)then 1Ultram with the Advil, then 6Ultram/day with the Advil...then came every new med for it on the market....and still stinky....no more true relief....and my MEMORY is the saddest part of me......Sentimental things that no one should forget are sadly long, long gone....worse than senility.....so frightening....
Although coping techniques come and go, it seems harder and harder to get up and truly function rather than just exist, before the next wave rolls over me....sorry to be so glum, but I just I just wanted to be truthful.
Annmarie
 
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fibroKimber responded:
ive only been diagnosed for a little less than 2 years, but my fibro has gotten SIGNIFICANTLY worse in the past 2 years. its so severe right now, i dont know what to do.

also, looking back, ive had some of the symptoms of fibro since i was 5 or 6 years old when i had daily headaches with no known cause... over the years ive added symptom after symptom to the list, but the VERY severe pain didnt start until about 3 1/2 yrs ago.
kimber
 
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booch007 responded:
Dr. P, I had to say I am better. Yes I have my flare setbacks, but I am more knowledgeable and am on the right meds.

I have always worked and pushed through my morning pain and stiffness, even immobility..to the shower. To stretch and soften the muscles.

Because it is hard to remember pain, I can't say the pain is better though. I know with the things learned and the tools honed.......I have my muscles better..

I have 30 spots on my back for shots today, not mention the neck work I need....so this too (trigger point injections) have a valuable role in why I say yes......and the validation mentally of the fmily and my neurologist.

So, that is why I wrote yes.....Nancy B (despite this has been an awful weekend....lost to the dragon, in his mouth, saliva dripping......OY! But I can still find something to laugh about!)
 
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karenrugs responded:
Good morning,

This is a good poll. In all honesty, I'm better. I'm in tune with my multiple syndromes now. Although I can't tell when one is flaring, I've learned to deal with my pain and live my life.

My meds are in synch. All my docs work together and they all have copies of each other's reports. Which I think is very important. And now, my cancer is in remission. Who could ask for more? Well, I could ask that my arthritis stop making my joints hurt so much but then that's another posting.

It's hard at times to read of some not being able to cope with their pain because I know what they're going through. It was a long road to get to where I'm at. Many trials and errors, so to speak, with drugs, exercises, etc. I'm not pain free. I don't think we're ever pain free, but I've learned to cope and work through the pain and learned how to react when it peaks.

My wish is that we could all reach that point. But that's a pipe dream.

Take care,

Hugz,

Karen
A strong positive mental attitude will create more miracles than any wonder drug.
 
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pocotaz responded:
Emotionally in a better place because i have learned how to cope... physically i am worse.. i am one of those who meds are tricky for me because of a thyroid condition.. too many med reactions so i am very limited on what i can take...

But i have learned to use mind over matter onso many days..i block out pain and provide my mind with calming ...positive energy and it works for me.. it takes time to learn but it can be done..

I find i am stronger because of this... i have better knowledge of the tools out there to use... but my physical body ..well ..lets just say.. need mind over matter right now...LOL...

Linda


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