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fibromyalgia?
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tammyh99341 posted:
Ok, for several years I have been experiencing widespread pain and stiffness. It started mainly in my legs with severe cramping. I suffered a DVT 8 years ago and until I couldnt stand it any longer attributed it to the damage done by that. The longer it went on the more i noticed the pain getting worse and "traveling" throughout my body, one day/week in legs then arms then hips etc. i am always tired and dont sleep well even though I am exhausted! I wake up just as tired as when I went to bed. Have been treated in the past for depression. I have been to my primary care dr who sent me in for tests including ultra sounds, blood work, xrays, catscans and to a vascular specialist who ran more tests. Everything came out within normal limits with no explainations as to why the pain. He gave me Lortab and said to come back in 3 months. He has mentioned fibromyalgia but doesnt seem to want to diagnose it, told me today that in a YEAR if pain still there then more tests! I cant take this much more! what should I do?
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jamesii responded:
Hi Tammy, Jim one of the men with fibro. Have you been seen by a rheumatologist? I would ask to be seen by one. They are usually the ones to dx and treat fibro.

So sorry that you are having to suffer and wait. I went thru a number of years doing the same. I was dx'd with fibro in about 02, but never treated. had Lyme disease and only received antibiotics, had shingles and only got antibiotics. then got very weak, shakey, ached and burned all over. repeatedly went to the ER, and my primary dr. with no relief.

Last year I was finally dx'd again and this time treated for fibro. the meds make a big difference.

Be aware that whatever they give you for fibro, it will only help and not cure or totally relieve the problem. It is nerve damage all over your body. It gets the signals mixed up that got to the brain, or severly intensifies the amount of pain you feel.

I hope you get better soon. If your dr keeps putting you off, ask to see a rheumy dr., or ask for a second opinion.

Good luck. Ark Jim
 
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hisfaithful1 replied to jamesii's response:
I agree with Jim here. How awful to be told to wait a year for tests! This doctor is not taking you seriously. I have learned the hard way, we have to sometimes be assertive with doctors.

Please see someone else or demand a referral to a Rheumy .

Let us know how your doing too. So sorry if it is Fibro, but you have found a good support group here.

Blessings, Debbie
 
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angelldakota responded:
Hi I agree with James and Debbie... and while you are at it ask your Dr to check your vitamin D for it alone can cause more pain if it is low...

I have had my diagnosis of FM for over a year and am still fighting for treatment for it.... It sometimes takes a few Dr's to get heard... and it takes time to put together the right cocktail.,.. that's what we call the tools and meds to deal with it...

Keep coming here and read the tools and resources to the right of this... especially the members toolbox and the minerals and vitamins... you may be able to find some things that might help you... just remember that if you try a new med or vitamin or mineral you need to give it 6 to 8 weeks to let it begin working fully... then if it doesn't seem to work... keep trying... Don't give up...

welcome to our family and come back often... let us know how you are doing...

take care... bless you.. luv... jan/angelldakota
 
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justmetay responded:
I have almost similar symptons you mentioned; widespread burning pain travelling throughout my body and fatigue and localised pain on the legs and arms shifting here and there. My doc was also reluctant to diagnose it as FM. Am experiencing another flare up episode. Now I don't bother to take any medication. Nothing really helps. Will take medical leave to rest a day or two for the pain to subside. Take care.
 
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fibroinsd responded:
Good Morning...Well, the good news is that all those tests came out ok...and you do not have a lot of other stuff...but the bad news...is that it sure sounds like FM. A doctor that put you on Loratab and tells you to come back in a year...ugh...not a good sign...You definitely need to speak to a doctor that treats FM...As Jim said..it is often a Rhuematologist...You can look for doctors in your area on http://www.fmaware.org or you can call doctors...(internists or rhuemys) and ask them if they treat FM. There are things that can be done...

First off, as people said...have your Vit. D checked...this can make quite a difference.

Secondly, read the tips and toolbox section on the right side of this page...has non-medical things you can do to help yourself.

Thirdly...keep writing here...and asking questions...we have been there done that..

Please read up on the main meds...Lyrica, Savelle, and Cymbalta...

Oh yes...and my main advice...go get a heating pad, and use it....it is so helpful..

cece
Let's put the fun back in dysfunctional !- Mary Englebright


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