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Fibromyalgia's top two symptoms are widespread pain and fatigue. If fatigue were cement, we would be freshly paved with particular heavy concentrations on our eyelids, arms, and feet!
There are multiple factors involved in our fatigue and they include:
1. Non-restorative sleep disorder. As we've previously discussed, restoration that should be occurring during the deep stage 4 of sleep is not happening. Poor sleep leads to increased fatigue.
2. Deconditioned muscles. Our fibro muscles are chronically low in energy molecules called ATP and our muscles do not use oxygen as well as normal muscles.
3. Constant pain. The body's process of monitoring pain, recording pain, and expressing pain is energy consuming so we use up a lot more energy.
4. Cognitive factors. Fatigue is influenced by our difficulty with concentration, attention, absentmindedness, i.e. our fibro fog.
5. Associated conditions contributing to fatigue. This could include depression, a co-morbidity of fibro, and non-fibromyalgia problems such as arthritis, hypothyroidism, etc. that consume a lot of energy and contribute to excessive fatigue.
6. Dysfunctional autonomic nervous system. This leads to dysfunctional breathing, increased heart rate and more stress responses, all of which consume energy or create oxygen delivery inefficiencies.
7. Hormone problems. People with fibro have lower growth hormone levels, usually have lower thyroid levels, and have insulin hypersensitivity and other hormone dysfunctions which decrease energy, metabolism and increase fatigue.
8. Deficiencies. This can include low vitamin D, low magnesium, low B12 and other key ingredients that are used to manufacture ATP or improve our metabolism.
9. Constant muscle movements. We are shifty people! I mean we frequently shift our bodies to find more comfortable positions. We also have habitual movements such as tapping our fingers, bouncing our feet or crossing/uncrossing our legs. The side effect of these movement patterns is increased energy consumption.
I find that fatigue is a difficult problem to treat. But there are many strategies for treating fatigue. Like your fibro pain, fibro fatigue will probably never be completely eliminated but you try to minimize its impact on everyday life. Your doctor will work with you to investigate for underlying diseases or other causes of fatigue.
What steps can be done? Here's a list of strategies I have found helpful:
1. Develop good sleep habits.
2. Avoid long daytime naps. Naps in general are non-refreshing, time consuming, and sleep rhythm disrupting.
3. Proper nutrition. We previously discussed dietary strategies.
4. Supplements. Examples of supplements that have been used include magnesium, vitamin D3, vitamin B12, coQ10, growth hormone, and 5-HTP. I believe supplements should be used only after discussion and recommendation by your treating doctor.
5. Prescribed medicines. These medicines are known as alerting agents and can include SSRIs, central nervous system stimulants, and other medicines under the direction of your treating physician.
6. Perform regular exercise and don't forget about regular relaxation.
7. Make a daily schedule and check off things as you accomplish them. Plan scheduled activities, divide your planned task into smaller projects instead of one big one.
8. Don't forget to follow proper fibronomics!
9. Delegate chores to others. This is one of the best energy saving techniques known where someone else uses his/her energy to do your task!
Hopefully some of these weapons can help you combat fatigue. And hopefully I didn't wear you out with this discussion!
Dr. P
Does the dysfunctional autonomic nervous system have anything to do with my body's inability to handle stress? I keep meaning to ask my doctor about this. When stressful situations happen it feels like my mind can handle it, but my body freaks out. I do not feel the stress mentally, but I start shaking, having heart palpitations and sweating. I would greatly appreciate any input on this.
Also thank you for this post, it was very informative. I also really appreciate your post on profuse sweating. It does not seem like other doctors know about this. I was very frustrated when I mentioned the sweating to my Rheumatologist and he said, "pre-menopause?" I am 40 and have no other symptoms of this, plus he said it in a humorous condescending way.
Thanks again!
My fatigue comes from work. I am trying to show people how to do stuff for when I am off at the end of my mom and another week to help my dad amongst other things
Stress now with my mom's latest diagnosis-3 months or so to live, cancer.
I have energy in the morning but at night after work, I am useless but every once in a while I will get a burst of energy and I will start something and can't finish it because I get tired. I try to do stuff in 5 minute increments with a timer. Then increase by 1-2 minutes each day. I am at 10 minutes and I am not going to try to go any higher.
Another grand discussion, and one that is much needed.
I recently stopped "all" supplements due to an extreme flare with my stomach. I have realized that they were helping a lot with my muscle weakness and pain.
I cannot even fold a load of laundry without stopping to rest my arms!! I would think that this is increasing my fatigue level.
I would like to eventually try taking Magnesium, CoQ10, and Colostrum again! Do you think that these supplements are "stomach irritants"? I am fearful of a repeat stomach flare.
I am, also, interested in "growth hormone". How is this sold? Is the supplement labeled Growth Hormone or something else? Again, do you feel that this would be ok for my stomach?
I have been debating the use of "Provigil" for a long time now. Is it a safe med? I am really getting to the point where I feel that the benefits will outway any side effects.
I would love to delegate chores but I have a 17 year old who won't even take out the garbage! My 29 year old daughter who used to help a lot has stopped for some reason.
I am now struggling to just keep up with daily chores. This is probably, also, increasing my fatigue level.
I wish that "all" doctors were as educated about Fibro as you are! You have definitly helped me to "live" life.
Thank you!
What drugs would you include as central nervous system stimulants for use in FMS? Have any of these been actually tested in FMS or is the information more anecdotal?
Being a child of the sixties, I remember when speed and valium were both heavily prescribed to sharpen us up and put us to sleep. They scare me, frankly. I won't take any benzos, because I had a bad reaction to them twice in the past. I doubt I would ever take any kind of stimulant either due to fear only.
I am interested in your opinion.
Take care, Annette
And yes....I do think that this is part of my health issues....
I do try to follow most everything that you suggested....I have to still sleep in the recliner.....and have done so for so long...I still try every now and then...to lie down on the mattress....
I seem to have problems in this position....I get all stopped up...so I guess the recliner is what I have to do for now...
Maybe...one day I will be able to get one of the adjustable beds...(I can hope)
I have learned how to pace, pace and pace...and I can now tell when I am getting to the point of "crossing my line"....and I know then that it is time to rest....whether I like it or not...
I do get in "trouble" sometimes....and I know that with the holidays approaching....this is going to happen even more....because there are times...when a person can not just stop....(this happened to me last year....as I was cooking)....I was in trouble and knew it....but I was in the middle of cooking...(not a good place to be)...
I know that I can get so much more done....(in my mind) than I can physically do...and I hate this.....as I was one of those people who was more like the energizer bunny....who could keep going and going....and still go some more....and I now know that this is not going to happen...
I do try to plan things...but sometimes, I still get in trouble with myself....(not a good feeling either)
Anyway....thanks again for sharing your wonderful knowledge with us....and your humor too....you know....you fit right in here with our FMily....
Take care.....
MiMi
Central nervous system stimulants that have been used off-label for FM-related fatigue/cognitive symptoms include modafinil (Provigil), pemoline (Cylert), methylphenidate (Ritalin), dextroamphetamine (Adderall). Theses meds are primarily indicated for narcolepsy or ADD, but there are medical studies/medical evidence and anecdotal information that support their use in certain patients with FM-related fatigue and cognitive dysfunction.
Dr. P
You may want to copy and paste it to a document on your computer to keep and refer to and/or click to watch this discussion so you can always find it when you're on WebMD and look at your discussions via the left sidebar when signed in here. :-)
I try VERY hard not to complain. My role models are a friend you has MS and never, ever complains; and my dearest and much loved Uncle who has ALS. It works for me.
Wish me luck
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