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Sick of this pain
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KenzieElise posted:
Hi, my name is McKenzie and I am 16 years old. I was diagnosed with fibromyalgia about 2 years ago and am still trying to find ways to deal with it. My main problem is that no one around me really understands. I don't know a single person with fibromyalgia and wish to talk to someone about my age that can relate. I'd also love any relief advice. I really hope this website helps, I could use it.
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vinnie02 responded:
Honey, I am not your age, but I do understand....my husband and kid's don't understand either...but they can't because they don't feel what we do. I am so sorry that at 14 year's old you have to deal with this. Do you take any medicine for FM? I don't want to give you any medication advice 1: because I am not a Dr. and 2: You are only 16...But I do encourage you to talk to your Dr. and make sure he understand's that you are having pain. On a brighter note...once you find what work's for you you will have some good day's, too. I will pray that you will find someone to talk to, a Dr. who can help you, and relief so that you can enjoy your teen year's. Are your paren'ts trying to support you? I hope they do. Not much can stop a Momma trying to fight for her kid's!! Hope you fell better soon
 
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dollbug responded:
Hello McKenzie....and welcome.....MiMi in NC.....I am so sorry that you have met the wrath of the dragon, at such an early age also.....I can not even imagine having to deal with FM and being so very young....I would encourage you though to be sure and ask the doctor to check your Vitamin D level....as it is so important for a lot of us...low Vitamin D can cause some of us FMers to have additional pain...

We are all sick of this pain....but I am sure, that with time and effort....and a trial and error process, that you too, will find something that will help you cope better....I know that I have...but it did not happen overnight....and I have since learned that there are no quick fixes to dealing with this mean illness....

I hope you will read the info under "Tips" and "Resources" that you will find to the right of this page...you might find some things that perhaps you have not thought of trying.......of course, what helps one may or may not help another...as we are all different...be sure and check out the "member toolbox post" and "nutrition and vitamins".

You are so right....no one really understands what we FMers have to deal with each and every day....I think only those of us who have it know....most doctors do not understand....except for our dear Dr. P here, who knows since he, too, faces FM each and every day....and he has been a wonderful asset to our unique FM support group....with sharing both his knowledge and humor with us....

I hope that you will post often, ask questions, make comments or suggestions...

Take care and good luck...



MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA.... My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
 
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fibroinsd responded:
Hi KenzieElise..

I just wanted to welcome you. As mimi said, do check the tips and toolbox posts...

The main ways to deal with this are:

vitamins...a good multi, and good B (I take a B-100 Complete) and maybe a D. Being that you are 16, I would make sure your parents know exactly what you take, and hopefully they will be helpful in getting you the right vitamins.

stretching and exercise...I know it sounds like the LAST thing you want to do...but it does seem to help.

sleep....trying to get the right amount of sleep. I know most 16 year olds have really odd schedules, but you need to try and be very disciplined. Look at what time you get up....mark back eight or nine hours...then make sure you have shut off all the electronics...phone, computer, etc...so they don't distract you...Maybe take a nice relaxing bath before bed, (try putting some Epsom salts in the bath...or if you like, I know several people like things like lavender salts..)and try to do things that will relax you...a nice heating pad for an hour before bed, ...warm milk...treat yourself to nice cozy things to let your body know it is time for sleep.

Doctor...I hope you have a good doctor and that you and your parents have discussed medications...there are some that can be helpful.

I know we are all looking for that magic thing that works, but much of this is trial and error....seeing what works for you...and then making sure you "stay on top of it..."...making sure you put in an effort to take good care of you each and every day. And know we all have some days better than others...

please ask questions any time..
cece
Let's put the fun back in dysfunctional !- Mary Englebright
 
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squarley replied to fibroinsd's response:
So sorry you have this at such a early time in your life. I am 63 and have had it for maybe 20 years. But my grandaughters have it, one since she was 16 ,now is 21. She has hard time with keeping jobs because of the pain and they do not understand what is going on with her. I am here to help her so she is glad of that .I do heat and pain med and massage. Do take care of your self and pace what you do . You will have good and bad days ,but you can do thing s to make it better. Do not let people get you down. They will not understand. But take care,light hugs to you and we are all here to help you. Squarley
 
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jroseland replied to squarley's response:
I am not your age but I definitely had FM at your age, I just didn't know it. It can be very difficult to see your friends with so much energy. I always knew there was something different about me--I took afternoon naps through my Senior year!

Like the others have said, don't give up on finding treatment. I think I would be better off now if I had been diagnosed and treated when I was younger.

At the same time, though, make sure to have fun. The unfortunate truth about FM is that we have pain no matter what. And I know this is so easier said than done, but part of the battle is having a certain mind set. So even if you're hurting, try to go out and be as normal as you can for your age. Your body might not feel better, but your mind definitely will.

I'm sure there are support groups online or elsewhere for teenagers with FM. Or maybe try researching support groups for teenagers with chronic pain, or teenagers with chronic illnesses.

I'm sorry you have to go through this. I was able to have a pretty fun, social, and normal teenage-hood despite the pain I was in, and I hope you can too!
 
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jennston responded:
I cannot imagine Fibromyalgia at 16................. i understand the pain too, i balled all morning yesterday. i can't handle it either so far the new meds i'm on on doing a whole lot.
 
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belafaccia responded:
McKenzie...I truly do understand.

I am 24 years old and I was diagnosed with FM when I was 14 years old. No one understood me either. I was often accused of faking it or that it was all in my head. My mom believed me, but she was frustrated bc she didn't know how to help me. My father didn't understand at the time. My mother now has fibromyalgia as well. She was diagnosed a couple years after I was. High school was rough for me. I was on home instruction for more months out of the school year than not.

Took 6 months of going from specialist to specialist to figure out what was wrong with me. Finally, a rheumatologist diagnosed me. I was crushed but elated at the same time...crushed because I found out that I was gonna have something for the rest of my life, but elated because It had a name and MAYBE they could do something about it to help me.

I must say that while some meds may work for some, they do not work for others. Really all depends on u. Currently, I do not see a Doctor for my FM. For me, they were useless. I've learned that FM calls for a lifestyle change (which I have been super laxed in & therefore miserable as of late).

A lot of it is stress management. I find that the more stressed I am, the worse I feel. I feel completely drained & I feel like I can't hold myself up anymore. My lower back & legs feel so achy & weak, that I just want to collapse some days. Things like meditation, a healthy hobby, or being strongly in touch with your spirituality can help combat stress and therefore, decrease your chances of experiencing a flare.

Another huge part of it is diet and exercise. As hard as it is to get started, exercise is extremely important for managing FM, especially stretching. The key, DON'T OVERDO IT! That's a huge mistake I make over & over again! I end up jumping into a workout program & falling out of it after a month because I run myself into the ground! Start SLOW. They say that walking 30 minutes a day can make a huge difference in your health. Split it up into 15 minutes increments if u have to when you're starting out! If u want to weight train, start out small! Light free-weights with reps. If you're hurting, go even lighter. If u can't handle that...stop, & try again another day. L-glutamine might be a good supplement to get if u start working out to help ur muscles recover better (so you're not hurting for days upon days!)

And diet is just pretty self-explanatory. Just try to follow a healthy diet. Limit sugar & simple carbs. Start opting for whole wheat, whole grain, increase your fruits and veggies, opt for healthy fats (omega-fatty acids) & try to avoid saturated fat and run like heck away from trans fats. I also try to take a good women's multi-vitamin, fish oil, extra vitamin D, & 5-htp.

I've seen some literature about 5-HTP, vitamin D, & SAMe helping with fibromyalgia. They're all things u can read about here on WebMD. I've always used this site for health information & have found it very helpful.

Some misc. tips:
-maintaining a regular sleep schedule & allowing yourself to rest when you need to is extremely important for preventing (and working through) a flare.

-heat helps! A hot bath or hot shower before bed helps relax ur body so you can sleep better. A good heating pad helps with back pain.

-Again, different meds work for different people, but naproxin (Aleve) seems to work pretty well for me!

-Take some time out for yourself once in awhile! Soak ur feet if you've had a hard day, give yourself a pedicure! I have also found massage to be helpful (which some insurances cover). If u can't get a professional one, u can do it yourself! Massage your own feet, hands, neck, and legs!

Just know that you're not alone McKenzie. I can't promise that it'll get better, but you'll learn to cope with it better and it will become more manageable for you once you figure out what works for you. You've got my support! Good Luck and God Bless!

-Nicole


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