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Has anyone tried thyroid treatment for fibro
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DavaAnne posted:
I was wondering if anyone has been put on Synthroid to see if it helps with their fibro? I saw a new rheumo Dr. that specializes in fibro and wants to try me on this. My pain Management Dr. sent me to him because he heard so many good things about him.

He told me he has had alot of luck treating fibro patients for hypothyroidism even when their blood tests have them in the normal range. He treats on symptoms and not lab work, and feels because both fibro and hypothyroidism have alot of the same symptoms, many people with a low thyroid are going undiagnosed and being told they have fibro.

So I was wondering if anyone else has tried a thyroid med and if it has helped. Wouldn't it be great if something as simple as taking a thyroid med could help all of us. Thanks for any input. Dava



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NeNe_11 responded:
Hi Dava! This was a very interesting post. I have never heard of fibro being treated with synthroid but it makes sense. A messed up thyroid can cause so many problems.

Good luck- I hope it works for you. Let us know how it goes!
Take Care,
Denise
 
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1wareaglefan responded:
Hello, Dava....I take the generic of synthroid, because years ago I was diagnosed with low thyroid. Now my thyroid is in a very healthy range, and I actually have had worsening of fibro symptoms since. In fact, I wasn't diagnosed with fibro until after I got my thyroid under control.

From what I understand, once you're put on thyroid medication, you have to continue taking it to stay within a normal range.

So, to answer your question more simply, yes, I take synthroid but still have fibro symptoms.

I'll be interested to see what others say about it.
 
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booch007 responded:
OK...third time should be a charm here.

I am on firefox now. There is an internist doing this same thing here. I just say, becareful to know the signs of hyperthyroidism......for every action there is a reaction. The best defense is a good offense. Be educated. I would ask Dr P..??? see what he thinks.

Savella kinda did the same thing, but bothering the whole endocrine system with the norepinephrine rise....so. See about it with Dr P? Good luck, Nancy B
 
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fibroinsd responded:
I have tried and tried to talk to my doc about thyroid...and she always gives me the "tests say you are ok"....so I have not tried this...I am also interested in those that may have tried this..

cece
Let's put the fun back in dysfunctional !- Mary Englebright
 
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An_200037 responded:
I would NOT advise using thyroid medication for Fibro. All you will do is mess up your thyroid if it is normal.
 
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Pixe5 responded:
Hi DavaAnne,

Most doctors don't test the thyroid properly. There are more related hormones that they don't test for. All these thyroid hormones work together I'm glad you found someone that that is willing to try that treatment.

I am seeing a chiropracter that wants to test my thyroid the right way. I am hoping that he will find something that will help my energy level.

Pixie
 
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teddybear200 responded:
I have been on thyroid meds since I was 15yrs old I'm now 55 and it has not helped me with my fibro.

Personally I wouldn't take a med for something I didn't have it could mess things up. Deb
Some day I will soar on wings of an Eagle - Teddybear
 
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DavaAnne replied to teddybear200's response:
Thanks everyone so much for the input. My new Dr. says that the lab tests are not that reliable and normal range bloodwork doesn't always mean the thyroid is functioning properly. Through doing some reasearch I have found a few other Docs that feel the same.

He also feels because the symptoms of fibro and hypothyroidism can be the same, and he thinks alot of people diagnosed with fibro may actually have a thyroid problem instead, or a combination of both.

What he has found is alot of his patients respond well to this treatment. I don't know if this means it helps with fibro, or if these patients never had fibro to begin with and it was a thyroid problem all along. Dava

I




 
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rmkjk replied to Pixe5's response:
Hi What is the right way to check the thyriod....I have been on synthroid for 5 years....I had a very bad case of hives and after a LOT of testing and 7 steroid shots went to a specalist the blood work was sent to calif.and 3 weeks later he found I had an infected thyroid....Meds tood the hives away in less than a week. have been on this med since and still have fibro........lol ((((soft hugs to all))))
 
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Pixe5 replied to rmkjk's response:
Hi rmkjk,

I haven't done a lot of reseach on it, but as I understand it, the thyroid gland produces 4 related hormones. Docs only test for one.

I wish I could give you more info but I am fuzzy right now. I suggest that you see what comes up on google.

Good luck,

Pixie
 
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Reba4always responded:
I actually found this my googling about this. I started thyroid treatment because my new Dr said I had low thyroid. After a couple weeks the stabbing shooting pain disappeared, that was constant. Now I have more energy and way less pain. Not perfect but OMG I can feel a huge difference. I am now ordering the book " How to stop the thyroid madness. I really don't know if this is just a few good days. But I may get a day but never almost two weeks. I pray with all my heart this is it. I am on no other meds.
 
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missist replied to Reba4always's response:
I am on a low dose of thyroid med. I haven't really seen it help--but pain is not my main issue anymore-- now its other things.

I will say I have a dear friend who was put on thyroid med about 20 years ago and she has fared far better than I have over the years. I think thyroid was probably most of her problem. So I do think it certainly helped her.
 
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mvazquez1118 responded:
Hi DavaAnne
I am 21 years old and have hypothyroidism but his was diagnosed years before the fibromyalgia. Initially my doctors thought that all the aches and pains I was feeling were related to the low thyroid level so of course I was put on the hormone (Levothyroxine/ generic Synthroid). I've been taking 50mcg for over 3 years now and that has not helped me with the pain at all. After about two years went by and I saw no difference my doctors kept searching for other answers. My endocrinologist told me that many times it takes a while for the meds to kick in and change the body but for me it did not work. Three years went by and I felt worse. My thyroid level which is very important is now stabilized but it has not helped me with my other issues. I have actually worsened throughout the years. I am now seeing a rheumatologist for the fibro but we are still figuring out a treatment plan.
It is interesting to hear this though. I can't see how I doctor could put you on a medication that rises hormone levels if yours is not low; I've never really heard about that but I'm no doctor. I would just do some research on that before I went ahead and tried it. Thyroid levels take time to be stabilized and having it too high or too low is no fun.

I hope this helps.
 
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mvazquez1118 replied to Pixe5's response:
Hi Pixie,

If you see an Endocrinologist which specializes in the endocrine system they actually know more about things so they do test all the hormones related to the thyroid; at least mine does. My primary care tested me because he had a suspicion but once it came back low he referred me to a specialist that knew more about the subject and could help me better. So if anyone has any thyroid issues I suggest going to a specialist instead of just relying on your pcp.

Hope this helps. J


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