Fibromyalgia Community

I'm not sure what I can say to help you, however - as a new community member myself, I find it very discouraging when we post something and NOBODY responds..... I guess some of us come here for some sort of support or acknowledgement.

Keep your chin up. My md has referred me to a Rhuematologist and I am unable to get in until September 9th..... Very frustrating - but I as well have heard that the Rhuematologists (at least here) only take appointmetns by referral so I really don't have much of a choice.

The pain can definitely take a toll on each aspect of our lives. Unfortunately "we" don't realize it until damage has been done. My daughters suffer greatly.... I'm not a bad mom, however, pain keeps me from wanting to do anything "fun" with them. I do what I can. My youngest (9) tells me that I'm not like "normal" moms and why can't I be? That I don't smile or laugh and I always hurt or have a headache...... Her saying that was a bit of a wake up call to me. Enough at least that I try to focus more on my reaction to my kids and my family.

A cure for this would definitley be of great help! You can only see so many doctors and take so many pills before you're just "burnt" out on appointments and pills. I'm there - however, they're relating my diagnosis to car accidents (2 in three weeks) back in 2008. We are still in litigation over these and have our trial date soon. I am not in a situation where I have time to wait for new dr. evaluations. I have to have this stuff noted and documented for my lawsuits. Future medical is going to break me and none of the settlements will be any good to me if I have a stroke from the high bp first....... Viscious circle.

You can vent anytime!

hello and welcome livseyfam4

i dont know of any hotline but we are always here to listen. . you might want to reas and print out the links i will post here and that will give you something to have your hubby read so he might better understand what it is your going thru..

http://www.fmscommunity.org/lettertonormals.htm

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/

http://www.fms-help.com/fibrowheel.htm

also come here anytime as we all understand what you are going thru and will be more than happy to listen. .

hope this helps. . & again welcome

john

Thank you both. I read the links. I started typing a response but it hurts too much. That is why I have been looking for someone to talk to

well if it hurts to much to type do you have yahoo mesenger ot any other chat program andf a mic ? if so my email is in my profile here please send me an email and let me know what program you have and we can try and set up a chat. .

john