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Fribro and eye problems
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debfrommesa posted:
Hello all. It has been a while since on last. I have had constant pain now for a long time, can't seem to get it under control even with meds.
I need to ask around about something. I saw my Rheumatologist yesterday, got more meds etc. And at the last of our visit I mentioned my eyes were dry and at my last eye doctor exam the doctor committed on the veins in my eyes were small and squiggly and when he dialated them one pupil had half moon shapes and would not dialate properly. After that my RH dr got very concerned and wants the report on my eyes. I read a pamlet in his room on a certain kind of arrhritis that effect the eyes, Does anyone know anthing about this ? I would really appreciate the help.
Thanks so much Debfrommesa
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annette030 responded:
It just happened that I saw my OD yesterday for new glasses and a tearing right eye (off and on). He said my eyes were in great health and showed my how to massage my tear ducts that drain my eyes of tears. He was not sure if that was the problem or not, we will see.

He is aware of my FMS diagnosis and asked about dry eyes from medication, etc.

I know RA affects many parts of the body, not just the joints, and that there are around 100 different types of arthritis so I am not surprised that one type affects your eyes. Pass the report on to your Rheumy and wait and see what he says. Is your eye doctor an OD or an opthamologist? Different kinds of eye doctors have different kinds of schooling.

Take care, Annette
 
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xperky responded:
Hi Deb. I wonder how many times we end our doctor appointments with "and maybe I ought to mention..." I've done that too, and sometimes it's the most important part of the appointment so the doctor has to start over. Oh well. At least we eventually mentioned the symptom.

Have you posted this question on the webmd rheumatoid arthritis forum? That forum has good activity, although not as much as here. Someone there might know the type of arthritis that affects the eyes. I think rheumatoid arthritis does, but I'm not sure in which ways.

Best of luck with that. I hope your vision is OK.
Margaret
Life is wonderful when lived with love and compassion,
Margaret
 
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annette030 replied to xperky's response:
Hi, xperky

That is so common that doctors actually have a term for it, they call it the "hand on the door knob complaint", when their hand reaches for the door knob to leave, the patient tells them their actual complaint.

I write down my complaints/symptoms in order of their importance to my own well being long before I see the doctor. I take them a copy and hand it to them as soon as they enter the room. This way we deal with my most important problem first. If the list is too long for one appt., I tell the scheduler, I need more than the usual time allotted per visit. I either get a longer appt. or more than one appt. This has only happened to me for the first appt. or two with a pcp. Specialists seem to allow more time per visit, they do charge more though.

After the first few visits I feel my doctor should be able to manage any problems I have in the 5-10 minutes I usually get for a visit, if I am prepared and do not wait until the last moment to tell her why I am really there.

I would also suggest everyone take notes and ask specific questions. I always write down the diagnosis and treatment plan a new doctor gives me, I remember better when I take notes than if I just try and remember a conversation. I have also found doctors are more careful of what they say if you have pen and paper in hand, or even take a friend/family member with you to the visit.

My aunt is a retired teacher, she told me once that I am a visual learner, not an auditory learner, and to always take notes if I felt I remembered better that way. I am 60 years old now and still take notes, lol.

Take care, Annette
 
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debfrommesa replied to annette030's response:
Hi Annette,
I go to an optomologist. There is a specialist in office. After finding problems the specialist looked at my eyes and only said my opict nerves looked good and did not respond to any of my other things. I did write a letter to my eye doctor and ask him to send a report of his findings to my Rh dr. I hope he does so and I have an app. to have my eyes checked again in a couple of weeks. I have had so many strange symptoms over the years that it is hard to think of everything. But, if this is something it is now in the mix. This is a never ending story.
Thanks for the response. I need all the info I can get.
Sincerely Debbie.
 
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debfrommesa replied to annette030's response:
I started writing a type of diary but when I feel really bad I give it up. I did have my eye problem on them, but when I read the pamplet in his office, It did remind me. I am haveing my eye doctor fax him a report on his findings. That was the request from my RA DR. So hopefully he will do this and I can find out more.
Thanks,
Debbie.
 
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annette030 replied to debfrommesa's response:
I have seen several optometrists over the years, and one MD eye specialist. They all seemed very up on FMS, and also never mentioned any specific eye problems related to FMS. They did ask appropriate questions about my meds and their effects on my eyes. My eyes were dilated and examined visually due to the meds I am on.

I am so glad that your rheumie was smart enough to request a report from your eye doctor. Let us know what he discovers, if anything.

Take care, Annette
 
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me_n_my_4 responded:
Hi Deb,

Rheumatoid Arthritis can affect the eyes and several other organs within the body. Have you been having any joint pain or morning stiffness, if so you should bring it up at your next appt with your Rheumy? Eye problems such as Episclera (inflammation of the membrane that covers the sclera) or scleritis (inflammation of the sclera itself) are usually complications of the RA. The most common thing I hear about though with RA is Sjögren's syndrome which is an autoimmune disorder where the immune system attacks the lacrimal gland which can cause dryness of the eyes and mouth; however Sjögren's syndrome can also come secondary to other autoimmune disease but in some people there is no cause. It sounds like you are on the right track continue to keep you Rheumy in the loop with what's going on with your eyes.

Hope things turn out well!!


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