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22 going on 80.
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MissAmandaLynne posted:
Hello to anyone reading this,

I'm a 22 year old mother of a 14 month old, and a 26 month old.
After the birth of my second son, my life has not been the same. I'm 22, and i feel like my life has been taken from me.
It has physically become impossible to be the normal, active, mother, wife and friend i used to be.
Everyday, i live with widespread pain that's unbearable at times, stiffness, constant abnormal fatigue, stomach issues, severe allergies and constant infections, to name a FEW.
I've seen Doctor after doctor after doctor. And it's either in my head, i'm depressed or i'm anxious.
I have always been a healthy, active, energetic person.
And that has been taken from me entirely.
I can't do my laundry, wash my dishes, clean my house or even take care of my children right.
I have no intimate life with my husband because of my constant pain and fatigue, we are on the verge of divorce and i can't blame him because he's married to a zombie.
I come home from working all day, and i go to sleep. And wake up all night in pain or anxiety. And get up at 5 am to do it all over again.
When my husband and i actually do go out, i'm in bed or on the couch for the next 24 hours.
I have been tests for Lupus as well as RA, all negative because of the severity of my symptoms. Over the past year i have been trialed on zoloft, xanax, prozac and hydrocodone with no improvement or relief for even the slightest amount of time.
I decided to try rebuilding my body by taking a multivitamin everyday, liquid b12, oil of oregano, apple cider vinegar, a magnesium supplement, probiotics, drinking ecinachea tea as well as organic green tea, changing my diet to mostly raw foods, and still no improvement.
Apparently there isn't a doctor out there who wants to believe there is more to this than what meets to eye.
I am frustrated and emotionally as well as physically drained fighting this, looking for an answer.
I was diagnosed with major depressive disorder as well as anxiety, costochondritis and thyroiditis, after my symptoms began to progress to where they are, and where they have remained.
No kind of OTC medication does anything for me other than build up in my liver apparently.
On a scale of 1 to 10 my quality of life is at a 2.
Everyday i ask myself why it isn't my time to go because i'm so miserable.
I can't even be a good mother to my children or be the wife any man would want.
I don't know what to do or where to turn.
My life is falling apart.
I've recently learned that i'm pregnant and now this is an even bigger issue because it's not just me in this body anymore.
I am DESPERATE for help, an answer, any kind of word from a professional or experienced person that could point me in the right direction.
I've seen so many Dr's and they've all been a waste of my time and laughed in my face as i sat there and cried explaining my symptoms and problems.
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squarley responded:
O my heart goes out to you. Have you been told you have FM. It sounds just like what I go through. You need some Dr. who will listen to you. The xanx did not help your anxiety,that is what I take it helps ,I take otc meds and vitamins. I am now disabled. You need to pace your self ,use heating pad for pain and try massage. I wish I could help more ,but you are not alone and there will be more come on and try to help you . We are here for you .Vent any time ,many Hugs Squarley
 
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glad2bhere65 responded:
I'm so sorry you are having all these issues at such a young age! I think you need to go to a rheumatologist who can do the trigger point test to see if you may have fibromyalgia. There are many meds that fibro patients can try, but you will need to be extra careful due to your pregnancy, but the doctor should be able to find something that will help you. For pain, I also use a heating pad. You may want to use an electric blanket to warm you all over if the heating pad isn't enough, also warm baths if you can get in and out of the tub, or warm showers may help. I'm praying for you, and I'm glad you came to this message board. I think you will find much support and understanding here.

Linda
 
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me_n_my_4 responded:
Hi Amanda,

I am so sorry to hear you are having such a difficult time right now. I know from experience how hard it can be taking care of a family it's hard to find time to take care of you. I myself to some degree have been through what you are going through right now. I am 29 and I am a wife, mom of four beautiful children ages 9,5,5, and 2 and after having my first daughter I bounced back fine it was a walk in the park but after the twins in 2006 I started having problems mainly widespread pain, and extreme fatigue. Still I was way too busy to go to the doctor and every time I went anyways I got no results. Then right before getting pregnant with my last one I injured myself at work and the pain just kept getting worse and worse. I started to have heat intolerance and shortness of breath (due to increased heart rate) and by the third month in my pregnancy I was diagnosed with hyperthyroidism and had to take medication all through my pregnancy and my daughter had to be monitored for complications from the medications, but it was either take the meds or die myself. After her birth I thought it would go away but it didn't so I got radioactive iodine.

Meanwhile I was still having pain and back and forth from this doctor and that doctor and I got tired of being tossed around so I stopped going all together thinking it would go away (SIKE). For two years after that I dealt with the pain and ignored everything until it got to the point where I couldn't even walk around a store and shop without being in horrible pain. I finally started going back to the doctor in Feb of this year and with the same complaints, but this time I went to my family doctor and I put my foot down and told her I didn't want any more specialist I asked her if she could test for things related to my symptoms and then once we figured out what was going on then I would go to a specialist. After she reviewed charts over the years and my symptoms she asked if I had ever had any blood work done to look for arthritis (of course the answer was no), She ran blood work for RA and it came back positive and I was referred to a Rheumatologist. After going to the Rheumy after about 1 month I was diagnosed with Fibromyalgia as well. I tell you my story in hopes that you can draw so encourage and support.

I have not been diagnosed with depression but if you ask have I ever been depressed YES I think anyone that suffers from any chronic condition, disease, or syndrome at some point gets a little depressed. What get me through it is my kids I look through them and I see life. I love to be around them and being around them helps me draw positive energy from them. On the left hand side of the page you will see tips and resources these things can be rather helpful in helping you cope with the pain and a lot of them are things you can do while you are pregnant. There is light at the end just continue to be persistent as it sounds like you are and no matter how bad you feel don't give up. It's not all in your head and don't let anyone's opinion make you think otherwise. If you think have Fibro try to get into a Rheumatologist they are the ones that seem to understand Fibro the most.

I sincerely empathize with you and I hope you find some relief very soon.

Soft hugs
 
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CLKWC1964 responded:
Amanda Lynne,

I am so sorry to hear that you are having so much pain and going through all you are at such a young age. I am really glad you found this site. It does help to know you are not alone. I agree with the advice to seek treatment from a rheumatologist also. I hope that you can find a doctor that can help you to feel better. Look in the toolbox to the right and see if there are any tips that might help you. Seek help with your children if you need it. Give yourself a break. When you get home maybe a hot bath and some down time before you have to deal with 2 babies. That is a lot for anyone to deal with let alone someone with fibromyalgia and a full time job. Mothering is a full time job by itself.

Remember you are in good company now and come back and vent, share, get advice, whatever you need at the time. I will be praying for you and your family and truly hope you find some answers soon. God bless you. Cat:0)
 
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allewallyn replied to glad2bhere65's response:
I've been to a rheum. and he says I have all the symptoms of FM, the fatigue, headaches, memory loss, upset stomach, pain all over, but when he did the trigger point test I didn't react.....He is having me come back in 6 months to see if anything develops, but I'm wondering if I am just going on another wild goose chase since the last 6 doctors I've gone to since Feb 2010 haven't narrowed anything down. Is that something that develops after? Or am I just going to be given another slammed door?
 
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fibroinsd responded:
So sorry you are going through all this.

First off...have you considered that you are trying to do too much? You have a 14 month old and a 26th month old and you are pregnant?? THAT is a lot...I know...I did just about that...and it was exhausting...and then you say you work also??? Holy cow, woman ! That is more than anyone can do !!! What you need is some rest ! Call in the troops...get some help ! I am trying to say this in a polite...sort of kidding way...but seriously...it is no wonder you are exhausted...

I don't know if you have fibro or not...but I would start with getting some good vitamins...especially now that you are pregnant..and making sure you are getting some rest. I don't know what your situation money wise is...but could you try not working for awhile?

I hope I haven't hurt any feelings here...and I hope you get the help you need..

cece
Let's put the fun back in dysfunctional !- Mary Englebright
 
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MissAmandaLynne replied to fibroinsd's response:
Thank you all for your responses. It really helps. My husband and my family don't listen to me or care to listen, so strangers are the only ones to talk to about all of this at this point. And a Dr. most certainly isn't someone i've found i can talk to at this point.

My husband doesn't help much, and doesn't even work as much as i do. He's a very lazy man. I know when i've had bad flare ups and can do nothing but sleep or lay around, i get harrassed about how i cant do anything, how i'm lazy, how i'm mentally unstable.
Interestingly enough i'm 22 years old, have 2 small children, am almost 8 months pregnant with a 3rd, work 50 or more hours a week, am still expected to be the ONLY ONE to do dishes, laundry, clean the house, bathe and diaper the kids as well as cook. On top of all of my pain, fatigue and awful sensations, headaches, widespread muscle cramping, burning sensations, headaches and oh my it goes on. I never thought i would be saying stuff like this.
This isn't 1920.
I have tried to leave my husband on several occasions simply because a relationship is too much for me. I can hardly take care of myself muchless look after a selfish, mommas boy who can only think of himself all because that's the way his mother raised him. And then i'm expected to be intimate with this man who doesn't support me or believe me when he does nothing for me, not even in bed, but i'm suppose to do something for him? HA!
That was just a little rant there.

Anyway,
I've always been a healthy, active person. I take vitamins everyday. Everyday I take a womens multi vitamin, apple cider vinegar, greens first, magnesium, liquid b12, vitamin c packets, calcium supplements, since i've found out i'm pregnant, i switched to a pre-natal vitamin, took a baby asprin everyday until i found out i was pregnant. Always have and always will take vitamins, but they clearly never prevented and not for one second ever helped any of my symptoms since they started over a year ago.

Will a Rhuematologist still see me or consider me if i'm pregnant? Maybe that sounds crazy. Every dr. i've seen since i've been pregnant tells me i'm selfish for being concerned with anything other than the baby


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