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MNJeepguy posted:
I posted a while back, can't find it. Anyway, I went from 18 years of shift work to a position in the plant that is 8 hrs a day 5 days a week. I was having a realy hard time with 12hr shifts. I was taking Effexor for the last year. It got me through, but now things have changed.
I don't struggle nearly as much with work. I still have bad days but my new position is far less demanding, and my work stress is gone. I slowly tapered off of Effexor to see how I did withought it. Here are my conclusions:

The good:
-I have my energy back. Too much some days, no more sleeping while driving though. (SCARY)
-I feel like a man again. It greatly reduced my sexual ability, this depressed me terribly, I'm only 36.
-no more crazy dreams or night sweats.

The bad:
- I am very short with my wife and kids. Easily agitated, especially when in pain or fatigued. Way to frequently. It happens before thik.

My doctor has no clue what to do with a fibro, or potential fibro patient. I would like a new doctor, but fear the hunt for one. My wife is only slightly understanding and she just wants me to quit being a jerk. That isn't me:( I'm generaly kindhearted. I have been off of the meds fro 3 weeks totally, I just don't know what to do next. I am ok taking something if I need to but if it hurts other aspects of me I'm not.

I need to cope with this in a way my family can handle. So far on or off of Effexor is not the answer, Savella worked very good for me but the cost is out of reach. I take vitamins, including D, magnesium, calcium, fish oil, and exercise when I feel well.

ANy ideas gang? I need the support of those who understand. Thanks.
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annette030 responded:
Try cognitive behavioural therapy. I adore it. I feel it not only changed my life, it saved it.

You can do it alone or with a therapist. I was moving away and my therapist gave me a book called "Feeling Good" by Dr. David Burns, MD. I read the book and picked out the parts that appealed to me and used those. It would probably be better to use the whole program as written.

I would give yourself a lot longer to recover from the Effexor you were on, 3 weeks is really no time at all. It takes awhile for it all to get out of your system, and for your body to get used to doing things on its own. Talk to your wife and let her take part in you getting better.

We are all different, antidepressants are great for some people with FMS, not for others. I am one who will never take any of them again.

If Savella worked well for you, but is just too expensive, you might try contacting the company that makes it and see if they have any programs to help patients financially.

Take care, Annette
 
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MNJeepguy replied to annette030's response:
I agree on taking a lot more time to get it out of my system to reasses my needs, while doing so is unfortunately, an enormous stress.
 
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xperky responded:
I too, would allow more time off the Effexor. It takes a while to stabilize. I've tried so many types of antidepressants, and didn't like the side effects either. I felt like I lost my true self.

When you feel agitated, is there an activity that makes you feel better? Going on a walk, listening to music, taking a hot bath or shower, reading a good book can be mood modifiers.

As relaxing as a stiff drink might be, alcohol might make the irritation worse in the long run, so be careful to limit alcohol consumption. I like beer, but have found myself to be more energenic and happier by keeping that to a minimum. Darn it.

Are you sleeping OK? If not, you can talk to your doctor about that specific problem. It's a pretty common problem with FM. If we don't sleep, we get really grumpy.

I'm glad you are feeling better overall. Now you just have to fine tune yourself to feel even better!

Be well,
Margaret
Life is wonderful when lived with love and compassion,
Margaret
 
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Dollbug responded:
Hello....MiMi in NC...I wanted to let you know that you can actually find your posts by clicking on your own user id (in nblue on my computer).....and you will be able to locate them...

I am glad you are doing better.....or at least it is a start....as long as you can see an improvement.....at least you have your energy back....I can only dream that I could have too much....just learning how to pace and not bpushing your body helped me...it is so easy though to cross the fine line.....(not meaning to-but too late once it is done)...

I do think that you should allow yourself more time...and perhaps try a Super Vitamin B complex vitamin.....

I hope the your wife will undertand that you do not mean to be a jerk....but coping with the wrath of the dragon is a vicious cycle for a lot of us FMers....

Take care and I hope you will post more....



MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
 
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fibroinsd responded:
I want to agree with Mimi...taking a B-100 Complete..along with a multi vitamin...and the D, magnesium, Calcium..etc...would be a good idea. It really did help me with the "ups and downs"...sort of evened out things for me..and gave me better energy during the day...

I did take Cymbalta for my fm and did find it helped with some depression...but not sure it would be better than the effexor or not..Might be worth the try...It has been found to be effective on both pain and depression, but it isn't for everyone...It was great for me..for about a year and a half..and helped me get other things in better condition...I understand that Cymbalta is also expensive..but I also understand that there is suppose to be a generic coming out soon.

If you don't want to take an anti-depressant...you might try taking a muscle relaxant at night (when you go to sleep) to help you sleep better and hopefully get more rest...I even found that an anti-inflammatory drug seemed to help me...even though it wasn't "suppose to"...

And make sure you are getting that exercise in...schedule it, just like you do work...Somehow, I think for guys especially that is important...even if it is a walk around the high school track with your wife and kids...

hope that is helpful.
cece
Let's put the fun back in dysfunctional !- Mary Englebright
 
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MNJeepguy replied to fibroinsd's response:
I'm doing my best to be aware of my feelings and adjust accordingly. The hardest thing is the lack of understanding from my wife. She sees how my mother is with fibro and thinks that will be me, Luckily I have this great place to help me through:) Thank you all. I will try a B-complex next.
I do try to do things that keep me calm and collected when I'm irritable. I will keep in touch.
 
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fibroinsd replied to MNJeepguy's response:
Thanks for keeping in touch and letting us know how it is going...Just keep working on the communication with your wife..Just keep letting her know that you realize that you are struggling and you need her help and support...It isn't easy...if you can do couples counseling, I think that would be helpful too..

cece
Let's put the fun back in dysfunctional !- Mary Englebright
 
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pinkplatypus responded:
I highly recommend St. John's Wort. My magic dose is 2 pills twice a day. I always use Vitacost.com and I get the NSI (Vitacost) brand. Great products, great price, great shipping.

Now I say I use this, but many years of research and knowing what will/won't will with my prescription meds and I keep my docs informed of what supplements I also take.

I recently (a few weeks ago) started back on it. I had stopped because I was not sure how it would interact with my new drugs (recently diagnosed in an insane flare - I just turned 42). I was in horrible pain in my legs for two days and then in my minds eye I saw a bottle of St. John's Wort - I took two and it was like magic - no more pain for the rest of the weekend.

I do/have done thousands of hours of research over the years, I use many alternative modalities, I listen to my body/cells when it tells me what to get (I intuit many things), I work with advanced energy techniques - I have done this long enough to be able to trust those pictures or whispers from my body.

Right now my body has me eating two bananas in the morning and two for lunch -- I only eat bananas for medicinal purposes so I would not casually eat them, but I am making friends with them now

I can't imagine working 12 hour shifts - it would kill me. I just stopped taking mass transit because it took more time and I got home later. Now I get home in time to take my 2-3 hour nap before I can open a can of something to eat.

Do lots of Research...for females many supplements interfere with hormonal types of birth control as well as your meds.

I wish you lots of luck!
Missie
 
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CrazyTaurensWife replied to MNJeepguy's response:
I have a family member who is unable to work because of multiple health problems. His wife had a hard time accepting that he really is as sick as he is and can't work. It didn't matter how many times they discussed it. What finally did work was her talking to the lawyer handling his case (he's applying for disability). With some people, hearing a professional say that the other person is dealing with a real injury/illness/etc is what it takes to open their minds. Since talking to the lawyer, their relationship has improved dramatically.

Does the problem with your doctor come from him not believing you, or does it come from him not knowing how to treat you? If he believes you, having your wife (and kids, if they're old enough) talk to him may help with more support and understanding in your relationships.
 
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MNJeepguy replied to CrazyTaurensWife's response:
I will have to read up on St. John's Wort, thanks for the help. As for my Dr, he has beed my doctor for over 20 years. In my small town though he has never dealt with this before. I may look ito a specialist if I don't have any better luck soon.
My identical twin was diagnose with arthritis in his 20s, he has mild siezures believed to be epileptic. Oddly though we have similar aches and pains. I was told I do not have any arthritis and was narroed down to Fibro by my rhumatologist.
 
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MNJeepguy responded:
Things are going well this last week. I am trying to go gluten free as a trial. So far it it night and day. I have more energy, almost no gastro issues, and less pain. Being type A blood, it is recommended to stay away from a lot of that anyway so I figured I would try.
My wife is better dealing with me. I am not edgy anymore at all. I'm thinkin that helps a bit. Life is good. I will keep updating.
 
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CrazyTaurensWife replied to MNJeepguy's response:
Glad you've found something that seems to be helping! Life is so much better for everyone when we aren't so irritable. I didn't know that there are dietary recommendations based on blood type...I'll have to look it up later. Have a great weekend
 
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xperky replied to MNJeepguy's response:
Good to hear
Be well,
Margaret
 
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MNJeepguy replied to CrazyTaurensWife's response:
Yes, there is a good book on it. Eat Right for Your Blood Type I believe. If nothing else it's a very interesting read. It has helped my wife a lot and I try to apply it a little too.


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