Skip to content
How do you explain fibro to family members?
avatar
JennieJonz posted:
I been dealing with fibro for the past year. I am still in the process of finding meds/treatment that works. My husband has a hard time understanding everything. He doesn't understand how I can be in pain one day and not the next, or why I'm tired for days at a time. How can I explain this to him?
Reply
 
avatar
Schrode responded:
Here are some links that were shared with me. I found them both helpful.

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/

http://www.fmscommunity.org/lettertonormals.htm

Good luck!

Deb
 
avatar
maryfibro24yrs replied to Schrode's response:
Great article thanks,
I have the first one but didn't know the second one existed, I do now though! The only thing I would add is a note to religious leaders, something to the effect that "no I am not a terrible sinner therefore I have this disease and no amount of prayer, healing water or oil or slaps on my forehead are going to change this or make it go away! So unless I come to your church with a sign on my shirt saying "oh yes please do tell me about myself", then let me alone to worship quietly, and pray silently and then leave if I need to,
Amen
 
avatar
JennieJonz replied to Schrode's response:
Thank so much. I really appreciate it. The letter to normals is amazing, it explains in "laymans" terms. I'm going to print it out and take to my primary and specialist. We had discussed going to support groups, but my husband is not a group therapy type of person.
 
avatar
MermaidWishes replied to Schrode's response:
Hi Deb,

I applaud both of them. Do you think the Spoon Theory author would mind if I change it to FM for the sake of sending it to family and friends?

Dee
You are braver than you believe, stronger than you seem, and smarter than you think.
---Christopher Robin
 
avatar
MermaidWishes replied to maryfibro24yrs's response:

Hi Maryfibro24yrs,

May I just say....EXCELLENT POINT!!!!

Thank you,

Dee
You are braver than you believe, stronger than you seem, and smarter than you think.
---Christopher Robin
 
avatar
suesyorkies responded:
I have found that you need to print out what it is and what you go thru every day and have it posted on your frig, I did this and also had my husband go to one of my dr's appointments, and the dr explained to my husband how difficult dealing with Fibromyalgia can be a hard thing to do.
I also told my husband to think of the worst day of a bad flu he had experienced and remember how his entire body ached, and he just felt he couldn't do anything. and I told him that is how I feel all the time and I have to work thru it.


Helpful Tips

~FM TIPS - LIVING W/ FM - TOOLBOX ~WELCOME NEWCOMMERS~
Welcome to Our FMily! My name is MeMe, I'm an FM suffer of 19 years, along with autoimmune diseases & other conditions. ... More
Was this Helpful?
467 of 542 found this helpful

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.