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    How do you explain fibro to family members?
    avatar
    JennieJonz posted:
    I been dealing with fibro for the past year. I am still in the process of finding meds/treatment that works. My husband has a hard time understanding everything. He doesn't understand how I can be in pain one day and not the next, or why I'm tired for days at a time. How can I explain this to him?
    Reply
     
    avatar
    Schrode responded:
    Here are some links that were shared with me. I found them both helpful.

    http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/

    http://www.fmscommunity.org/lettertonormals.htm

    Good luck!

    Deb
     
    avatar
    maryfibro24yrs replied to Schrode's response:
    Great article thanks,
    I have the first one but didn't know the second one existed, I do now though! The only thing I would add is a note to religious leaders, something to the effect that "no I am not a terrible sinner therefore I have this disease and no amount of prayer, healing water or oil or slaps on my forehead are going to change this or make it go away! So unless I come to your church with a sign on my shirt saying "oh yes please do tell me about myself", then let me alone to worship quietly, and pray silently and then leave if I need to,
    Amen
     
    avatar
    JennieJonz replied to Schrode's response:
    Thank so much. I really appreciate it. The letter to normals is amazing, it explains in "laymans" terms. I'm going to print it out and take to my primary and specialist. We had discussed going to support groups, but my husband is not a group therapy type of person.
     
    avatar
    MermaidWishes replied to Schrode's response:
    Hi Deb,

    I applaud both of them. Do you think the Spoon Theory author would mind if I change it to FM for the sake of sending it to family and friends?

    Dee
    You are braver than you believe, stronger than you seem, and smarter than you think.
    ---Christopher Robin
     
    avatar
    MermaidWishes replied to maryfibro24yrs's response:

    Hi Maryfibro24yrs,

    May I just say....EXCELLENT POINT!!!!

    Thank you,

    Dee
    You are braver than you believe, stronger than you seem, and smarter than you think.
    ---Christopher Robin
     
    avatar
    suesyorkies responded:
    I have found that you need to print out what it is and what you go thru every day and have it posted on your frig, I did this and also had my husband go to one of my dr's appointments, and the dr explained to my husband how difficult dealing with Fibromyalgia can be a hard thing to do.
    I also told my husband to think of the worst day of a bad flu he had experienced and remember how his entire body ached, and he just felt he couldn't do anything. and I told him that is how I feel all the time and I have to work thru it.


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