Dear Soophie,
I am so sorry to hear about the agony you are going through. My heart goes out to you, and my prayers!
All of you are in my prayers on a regular basis as I know prayers are going up for me too. I have suffered with FM for over 30 years and, believe me, finding a doctor is a very difficult task. I think I may have finally found "my guy". Of course, it remains to be seen and time will tell. You definitely need one who can see not only the single symptoms that you are dealing with but the "big picture" as well.
I also had terrible problems with bosses Anon. FM was not the world-wide phenom that it is now. I finally had to file for "disability" (what a nasty word) benefits. I was the first person in my state to get those benefits because of FM. Believe me, that was the hardest decision I ever made in all of my life. I had never asked for help of any kind but after years of struggling through work each day in such terrible pain, I just had to give in and accept the fact that I could not work any more. It's terrible when you are fighting to continue working and you have people fighting just as strongly to make your life miserable while you do. Sometimes (most of the time) it seemed that FM meant nothing to them. Whatever decisions you have to make regarding dealing with FM, please know that you are not alone but there are literally hundreds of thousands of us out there fighting the good fight daily. I wish you the best of luck on your quest for the right doctor. It's sort of like the quest for the right man. Sometimes you want the man who is kind, understanding and gentle but desire the big buff jock. It's definitely a difficult mix to find but there is one out there. God bless you all.