Fibromyalgia Community

Hello-

You may still be having symptoms from getting off the cymbalta. It seems pretty common for people's pain to rebound badly after coming off a med. If you're happy to be off of it, maybe give it a little more time and the pain may subside a bit.

Cymbalta is not just for depression. Studies have shown that the pain we suffer can alter the neurotransmitters in our brains that affect pain, sleep, pleasure, etc. So sometimes those antidepressants can be good meds, even if we're not clinically depressed.

Also, maybe the lyrica is not working at its peak yet either. It's hard because when we're in so much pain, we want relief NOW. I hope your meds can level off for you so you get some relief soon!

Dearest Hollly... Welcome and I hope this finds you in a better space and place... I feel the same way a lot sometimes... irritated that this is me and angry that God chooses to leave me like this... but maybe it isn't his choice either... I am not sure how miracles work for sure do you... I can count my miracles when I wake up not wanting to... and I am still alive and doing good... still here and trying to respond the best way I can...

When we walk with the lord I feel he walks holding us up... He doesn't look upon us and say "you aren't worthy of a life other then this..." He looks at us and says "you are my vessel and you can witness for me no matter the pain..."
And He watches over us nad walks besides us until there is but one footprints and at those times he is carrying us...

I take antidepressants and had to switch a couple of times I hope this new combo will kick in right... and soon... I am a manic shopper and can be broke before payday lol... lol... actually it isn't really funny... it is a curse at times...

I am also on anxiety pills and a couple other for other conditions... but then I was blessed with over 25 conditions... and I am forever ill... He is a busy camper taking care of me lol...

I hope you can find what I found... I have to accept this everyday sometimes over and over... and then pick myself up and come here and read... or answer people like you... or write to you all... or just read...

I meditate a lot to do this... and I also recently went off garbapentine... for a change I am awake more and have more energy... I actually was being over medicated for siesures... I was on 2 siesure meds by 2 different drs... and yeh they knew it but I started with tremors during the day and gained wieght like wild fire... and so they discontinue the one and I am doing much better I don't think I have lost any weight tho.. I also quit smoking a month ago and now I am hungry all the time lol... if it isn't one thing it is another...

I hope you are not hav ing more withdrawl... I wasn't on mine but a few months... it and I never really got along... and I don't miss it at all...

put your first step forward everyday... and do something good just for you every day... a soak in the tub... perhaps with epson salts or bath beads... watch your favorite movie and if you have time watch it again lol...

personally I am going to go and meditate some now... my grand children are a bit noisy and nuts today... not really doing anything bad but the noise is getting to me.. I am ringing bad today and noise surges the ringing...

bless you all... luv dakota

Thank you very much for the encouragement! it really helps to communicate with others who have similar pain. I feel a little better just to hear you. Holly

Hello holly and welcome....MiMi in NC....I wanted to comment about the Vitamin D and Magnesium....I am not quite sure just how these 2 affect the wrath of the dragon, aka FM...but I do know that when I first got sick....I was in major pain...my Vitamin D level was 12 - 14....really low...and the surgeon that I went to for parathyroid issues...thought that my pain was from low Vitamin D...(I did have parathyroid issues also though)....anyway...it took me a while...actually a long time...before I was able to get my Vitamin D level within the "normal range...and it did make a difference for me....

I was taking magnesium and malate....and have since switched to Fibro Response....and it does make a difference in my pain levels....I also take Prestiq for depression....which also helps with pain...I have also read that magnesium can make a difference in headaches....

The chronic fatigue goes along with FM for some of us...
(I have this also)....I have not been able to find anything which really helps this...

Anytime you go off most medicines....you will have some sort of reaction....as your body does without it...I hope that your doctor told you how to take yourself off of the Cymbalta...

I would encourage you to be sure and ask your doctor to check your Vitamin D level....low Vitamin D can cause additional pain for some of us...and it can also affect other illnesses as well...

Take care and good luck...


MiMi

MiMi:

Was your low Vit. D level confirmed by blood tests? And how much Vit. D do you take daily? Do you also take Calcium with it? Just curious, as I do better with Vitamin/Mineral supplements also. I don't take any other medications, but Advil as needed for really bad pain, and melatonin to sleep. Have had fibro for 12 years now.

Hi Holly and Welcome aboard! Am sorry you have fibro and sorry to read about how fibro is effecting you. Fibro effects us in much the same manor and makes us feel so 'out of life'. But having said that let me also say that it does take time to understand how 'your' fibro flares are. And here you will be understood as we all are walking the same path you are.

Each of us gets flares, I've been getting them right along for over 30 years now, but some of us have longer flares, or shorter ones that are more painful. Some drugs help some of us and others no use to us at all. And fibro can be more of one symptom than of another or a combo of each: Headaches/ migraines, balance issues, fog, flu like, burning skin, depression and deep bone and body ache. So some of us just ride these flares out with OTC or herbs. I'm one of those as there was nothing out there for me when I first got the fibro DX.

We all suffer from these throughout the year and yeah, it gets depressing, but none of us want fibro "IT" to win, so like you we get up and make the best of our day.. OUR DAY, not fibro's. Each of us is a warrior and wins each day at a time.

And some of us here are noticing that our symptoms are changing or have changed since getting our fibro DX.

In my case I can attest to that being true as I moved to a state what has seasons and my body does not like cold and snow. My flares are longer and more painful.

And as MiMi mentioned, and it's so true, Vit D is a true helper in our battle with pain, deep bone pain and seasonal depression. Not sure just how the body works with D but it does and it truly helps. Most scans are blood drawn. Your level to be normal should be between 35 60, roughly. And if it is below that your PCP will put you on high doses of Vit D3.

And in no time at all you will notice a lessening of pain, esp. in your legs. You will feel better over all as well. So please ask your pcp for a vit D blood scan.

I hope to see more post from you.. gentle hugs going your way.
Linda R.

I am taking 4,000iu Vit D. I'm taking 250mg magnesium. I
haven't had a Vit D test at the doctor's office that I know of unless it is a regular part of blood work. I take a multi and calcium D. I am back on Cymbalta 30mg & Tramadol for headaches. Doc also put me on diazapem. I am weaning off Lyrica because it didn't seem to be working for me. I'm not sure how this will all wk, but am hopeful! Thanks for the input!

Hello iforgotmyself....and welcome....I do not think I have actually "talked" to you....

Yes...I did get my Vitamin D level checked....which is really important....it is a simple blood test...BUT you MUST ASK the doctor to run it...as it is not included in the normal bloodwork.....

My level was either 12 or 14...when I had it checked...BUT my doctor did not tell me just how low it was....and I only took the prescription strength for just a short time....It took me a long time....to actually get my level back up....

My daughter's level was 2....and she is still on the prescription dose...of 50,000 iu....she is doing so much better....has lost a lot of weight....and she says it is because of the Vitamin D....something about the fat absorption...I did research this...

I do take Vitamin D, Calcium, Super B complex, Omegas, and Fibro Response...(this is replacing the magnesium and malate that I was taking)...

You dose of Vitamin D should be based on your Vitamin D levels....but please read up on this...as I am not sure that a lot of doctors really understand the D issue....

My doctor did tell me that I would have to continue taking Vitamin D the rest of my life....

I hope this helps...

Take care and good luck...


MiMi

I am back on the cymbalta I am taking Vit D & Magnesium too. I also have had botox recently for my headache pain. Still hurting everywhere! I was wondering if anyone has tried colostrum for fibro?