Fibromyalgia Community

I don 't think it has anything to do with FM.

I was curious how old are you? Also, have you always had this, or just recently noticed it?


I am 54, but just found out about 4 years ago, that I have what's called Roscea,

this can be mild, or even severe.


I almost always have red cheeks, some would think that it's just the normal peachs and cream part of the face, maybe just a tad look of a light sunburn.

I can have this all the time, yet, other times it goes away.

so, ask you doctor about this, as even someone who's dark complexion can have roseca,

my ex-husband who's from Peru South America, which means, Spanish, Indian, even some Asian thrown in.

so, he has dark complexion, yet, he also has roseca, yet he never realized he had this, until he was in his 40's

so ask your doctor.

I will be 44 in March, I had open heart surgery in Sep. of 2008. I was then digannosed with Fibromyalgia, Vitamin B 12 Def. And Vitamin D Def. My Rash is Always There but When I GET Upset,Frustated, Or Hurting Real Bad It Falres Badly And Burns Some. I have the muscle pain and weakness,every joint in my body hurts, I can tell you when it's going to rain and The cold hurts me Sooo Bad, My Hands And Feet Feel like Ice when Cold.Dry Eyes, My Eye Sight has rapidly goteen Worse,If I over do it I'm in the bed for atleast a day If not longer,I suffer from Severe Depression because I can no lonmger do the things i want and used to could do I have Bad Morning Stiffness It Take Me What Seems Like Forever To Get Loosend Up In The Morning, I Used To Love To Write I Can No Longer,No More Jewlery, My Clothes Even hurt Me, You See Me In Loose Pjs More Than Anything... I've been Stuck In the bed for over a week ,Now let me just say this My 1dr dr. Had me on b12 injections once a month and 1000 ius of Vitamin D once a day . This Dr. that I am in the process of changing from has'nt given me the 1st B 12 shot nor will He do anything about my eye siight or any of my other symptoms..He taold me That i have arturitis And I asked him if he could refer me to a Specialist and he says it won't do any good. I asked if my Cholsterol was still high , He said let me look and Then he says Yes But forgets to write me a prescription for it ,The i get a phone call form htme teling me that even though i'm already talking 1000 ius a day of Vitamin D That it is still low and they are calling me in a prescription for it. I am now on 50,000 Units once a week and ...Have a Appt with My New Dr. Jan 3rd. And I Am Past Ready To Know What Is Wrong With Me Because I Know It's More That Just Fibromyalgia..I Know How My Body Feels And what I experience Every Single Day. Thank You For Taking The Time To Listen To Me Ramble On...Sincerely Fallen Angell

I hope your new doctor is able to help and that s/he refers you to a rheumatologist.

And if you've not recently been tested for Lupus , that might be worth looking into as well. (Click on the link here to see if any of that sounds familiar.)

A rash like this should be looked at by a dermatologist and/or rheumatologist to check for Lupus, Rosacea, etc.

A rheumatologist will help diagnose you. They deal with arthritis, and auto-immune diseases like Lupus. Many also treat Fibromyalgia as well. I have found my rheumy to be extremely helpful in treating my FM and Arthritis pain and other symptoms.

If your new doctor can refer you to a rheumatologist, that would be helpful for you! There are treatments to help you!

Don't despair. I'm glad you are getting a new doctor. Be sure to be organized with a list of symptoms, medicines, supplements and questions when you see him.

Good luck. And oh, I like my soft pj's too!

Thank You So Much Responding To Me It Really Helps To Talk To Others And Not Feel Sooo Alone In This : ) Yes Deffinatly Thank The Good Lord Above For PJS : ) And Yes I Am Sooo Ready For My Appt. With Him On Feb 3rd. I Know How My Body Feels And To Be In Pain And Tears Talking To A Dr. That Just Plain Acts Like He Don't Care Has Really Been Heart Breaking And Frustraing But I'm Praying That's All Behind Me Now...Good Luck To You Also,Take Care, Always Sabrina

Yes Mam, I have recently been researching Lupus Because Everything with me is getting Worse and More Symptoms And I Know In My Heart And My Mind That It Is Lupus, It's just a mattter of Getting to the Right Dr. And getting the Diagnosis So that I can Get The Proper Health Care,I have a Appt. With My New Dr. On Feb. And I Am Praying That He Will Refer Me To A Rheumatologist ..I Am Looking Very Forward To This Appt.In Hopes That I Will Get A Diagnois And The Correct Medications So That I Can Get Some Releif And Begin To Get Some Of My Life Back : ) Can I Ask You A Question, I Had Open Heart Surgery In Sep. Of 2008 And was told That my blood clots to fast.So I Am Nw On 325 mgs Of Aspirin a day. Do you know If This Would Affect My Blood Test For Lupus ? Thank You So Much For Your Input And Help, It Means More Than I Can Say....Always Sabrina : )

When you get referred to a rheumatologist, it might be a good idea to ask when you make an appointment if there's anything that might affect the test for lupus.

I'm glad to know you're looking into getting tested for it. When I read the original post the first thing I thought of was when I was getting my fibro diagnosis, and the rheumatologist was relieved to know that I'd always had redness on my face (I think it's rosacea, but it's not bothersome so I never bothered to find out) because it meant it wasn't a new symptom that could indicate lupus.

Thank You So Much It Really Helps Talking To Others : ) I Will Keeo You In My Prayers ..Always Sabrina

My trigger for my fibromyalgia was the labor/delivery of my daughter and it took doctors seven years to figure it out. My face flushed like it was a sunburn and never went away. I went to my doctor and expressed my concerns and was brushed off with, "you'll feel better when the baby sleeps through the night" or "...lose weight". I had pain all over, but especially bad in my hips. The worst of it was the fatigue I felt as though I was wearing concrete boots at all times. When my daughter was 5 I finally got a doctor to listen, but there was over a 6 month wait to get in to see a specialist. I was sent for a sleep study and learned I had sleep apnea, but that didn't resolve my pain so the rheumy diagnosed me with arthritis and put me on immune system suppressants. I was constantly sick, my daughter was in kindergarten and came home with every cold and would be sick for a few days and I'd be sick for 6 weeks. Couldn't use my cpap because my nose was stuffed up, so my fatigue would increase, I was loosing hope...so miserable at times I wanted to die. We then moved and I had to wait a long time for a new rheumy, but when I finally met with him he changed my diagnoses to fibromyalgia in Jan 2012. It's almost a year later and I've seen a dramatic change. He sent me to a pelvic floor therapist and to heated pool therapy. After about 6 months of therapy after work I started to decline because it was too much with full time work so he took me out of work for 9 weeks so I could rest and do therapy and the change was significant! The stronger I got the better I felt. I also sleepwalk, so it took some time to get my sleep meds correct so that I got good sleep, but I landed there. He has me on 8,000 iu's of vitamin D daily, sublingual B12, Savella, nuvigil, cinsulin, cyclebenzaprine, and trazadone. Finally with the pt, cpap, meds and strict diet (gluten, lactose, high fructose corn syrup, MSG, nitrate and artificial sweetener free) the redness is starting to subside. It now serves as a window into how I'm feeling. If my face is red it's a sign that I need to take it easy! I hope you are feeling better and if not that some of this info might help you.