Fibromyalgia Community

I am glad to see there is a place to come and to discuss your REAL feelings. I think most of us have been where Seawench has been. It's not pretty! Recently I was struggling particularly with my hips. The pain interupts my sleep and at times I can hardly walk. I have had pain blocks and most recently injections right into the hips. They have helped the most. The Osteo DR. stated this could be related to fm. I can't believe the pain center I've been going to for several years didn't catch that. I have be diagnosed for several years but its been a balancing act mostly feeling like I have to ask for what I need. It frustrates me when I call them for info then they want me to tell them what to give me. I said this is the triage line right? She said yes but you need to tell me what I can do for you??? Go figure. I feel like I am treating myself most of the time. Thank God I'm a nurse!! I did get so mad at this triage nurse that I mentioned taking an overdose..boy did that get her attention. She was actually going to send a police over to check on me and I said that I said it to get your attention!! HELLO! If health care providers would be better listeners the patients usually do tell them what the diagnosis is through communicating their symptoms. The problem being not many are very good listeners because of their time restraints and pt. loads. Its a vicious cycle. I have been trying to educate my family about fm but they are not very supportive because MOM always gets up and does everything and then some. I've had several other health issues such as having my thyroid out a year ago and I'm allergic to or have so many side affects that its nearly impossible to find pain relief. Bottom line I'm just as frustrated as many of you. The question is what can we do about it? Having a group like this is a step in the right direction. I started a group a year ago for essential tremor and it gives me much more back then I ever could give. I have had my tremor since I was 8yrs. old so coupled with fibro, fibro fog, ET and HRT, the frustrations just mount. Yes I've done therapy for nearly 25yrs. off and on. I feel often that I'm hanging on the knot of the rope mentioned and slipping fast. Thanks for listening.
ps. I have tried lyrica,cymbalta, primadone, nuerontin, just to name a few and I'm really afraid to try anything else bc of the weight gain which makes me even more dispondant. "I just want my life to be less complicated!"