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Fibromyalgia Medication
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marneys posted:
Just wondering if there is a standard medication that people use? I have not been diagnosed, but believe I have FM. I am a T5 complete paraplegic which making diagnosing difficult. I saw a arthritis specialist to get tested a number of years ago but seeing as I do not have "sensation" in most of the 18 points, she could not say anything, other than she does not know the cause of my chronic pain. Since 1985 (now 27 years) when I was first injured I always had pain in my paralyzed areas, a buzzing, burning sensation, which I just figured I had to deal with. pain gets worse when I think of my foot, very intense!!

Then 10 years ago I have this same but worse sensation in pretty much my entire body. I believe it is nerve pain, over use problems, but never have been able to get anyone to admit or find actual nerve,
muscle, ligiament damage or such.


This pain is of course, like everyone here, really getting on my nerves!

Finally found some medication that helps slightly, my pain is now avg 7 every waking moment as apposed to the 15 it was before. Miss a dose and it is back to unbearable.

I recently saw a lady with FM on TV and she said she had to have all her teeth removed/replaced due to medication she takes for her FM.

So can anyone tell me:

1) what medication works for FM generally?
2) Which Rx can harm your teeth?

Thank you for having this community and I look forward to learning and hopefully being able to help.

Cheers, Marney
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dollbug responded:
Hello Marney and welcome....MiMi in NC...I am sure you will find lots of good info here...be sure and check out the "tips" and "resources" sections that you will find to the right of this page...

Yes....I think we all have the problem of FM really getting on the nerves....interesting comment...living with the wrath of the dragon, aka FM...can be quite challenging for all of us...sorry that you are having to deal with so much more...it is all a vicious cycle..

I do hope you will ask your doctor to check your Vitamin D level...which is so very important for a lot of people these days...low Vitamin D can cause additional pain for some of us and it can also affect other illnesses as well..

There are different medicines which may or may not help you cope better with FM...you should know that we are all different though and what helps one may or may not help you...it does takes a trial and error process...which does take time and effort...

I happen to be one of the FMers here....who has tried different medicines but did not find anything which helped me without causing other side effects...I have learned how to *control my FM pain by taking vitamins and supplements and doing other things as well*...

I am glad though that I did not take something that would have harmed my teeth...I have enough issues with them as it is...

I take the following...Fibro Response or Magnesium and malate...(one or the other- not both)...Vitamin D, Super B Complex, Omegas, Calcium...plus others as I have other health issues as well...but these are the ones which help me cope with the FM pain...I also drink plenty of water, try to watch what I eat...do gentle stretches and/or exercises, use a moist heating pad as needed, Stopain Spray as needed...take a hot shower at night using lavender bath salts in a stopped up drain..right before bedtime...this helps my body to relax so that I can sleep better...(getting enough sleep is so very important for us FMers)...

Hang in here with us....I am sure that you will soon find something that will help you cope better..

Take care and good luck.


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
 
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painfullyexhausted responded:
Hello. Like MiMi said everyone is different and probably have tried every FM med known to man. I am one of those people and currently not on the traditional FDA approved FM meds. However my current meds seem to be more effective than any other combonation I've ever tried but that's not to say that I won't have to switch things up in the future. Sometimes you have to tweek your meds a bit or change them all together. It is very frustrating to say the least and even if you're taking meds that are very helpful you will have bad days where nothing works. Heat for me is awesome, bath, shower, and heating pad. I currently take Welbutrin (anti-depressant), but is helpful for FM not to mention the depression that comes with chronic pain, Clonidine (bp med) for sleep, I don't have high bp, Trazadone (old anti-depressant) low dose for sleeping, and slippery elm, herbal supplement that originally was for ulcers, IBS (which most Fm'ers have) sore throats but have found that it works as an anti-inflammatory and helps with generalized pain. So you can see that other meds can be effective for FM. You'll find that others here are on different meds then just the FM meds, there's all kinds of meds and combo of meds that can be helpful. Read other posts from several wks past and you may find some other interesting meds people are on. I wish there was one med for all that actually worked. It's truly trial and error. Some take muscle relaxers, anti-depressants, anxiety meds, or herbal supplements. I hope that you find the answers your looking for, be proactive, ask lots of questions, and have a doctor that listens to you and wants to help. Also I agree with MiMi about staying hydrating, it really helps with all of your organs, makes you feel better in general, and helps with muscle pain. Best of luck.
 
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booch007 responded:
Good morning Marney,
Welcome to the fmily, though sad you feel you are in the FM class as well, I can see how it could happen.

Under Dr P in the upper right is a discussions note. Click on that...in there he posted his norm of mix of meds and supplements he uses for our problems.

We all use just a bit different stuff to be better, never pain free and it is tough to have neuropathy pain all the time. You have mechanical damage there and the few nerves that may miuster function are probably speaking out. **Hence the getting on your nerves/ the few that do speak out!**

Sorry you have been given such a trial to deal with, so much more than us, yet we are similar in pain. A bummer to carry eachday.

So, look under Dr P and I know you will find it. I am on a muscle relaxant Soma, Ultracet, Savella 12.5, Vit D, B Complex, CoQ10 200mg. Mg 250 twice a day and calcium.

If you are having muscle spasms with this issue, I know they use botox to relax the muscle sheaths and help with that. Got a good neurologist? PT is valuable too, having someone passively move the muscle around and in prevent contractures. Massage as well can release some parts.

Well, good luck and God Bless.........Nancy B


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