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Mysterious episodes of extreme fatigue and muscle pain with blurred vision...
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An_245383 posted:
My husband was recently diagnosed with fibromyalgia. He's been having symptoms that I don't think are due to the fibro. I'm hoping someone can help me.

He has these "episodes" as we call them, where his body seems to shut down. He looks like he is falling asleep, his vision is blurred, he is unable to grip anything with his hands, and his speech becomes slurred. Sometimes the episodes last for a couple minutes and other times they can last for an hour or more. He has several episodes per day. The episodes start with very little warning and seem to just take over his body.

He suffers from chronic migraines as well, and has more days with migraines than without. He is scheduled for sinus surgery next month, so we are hopeful that will help. He also suffers from severe reflux and sleep apnea.

If anyone has any ideas, I would be so grateful.
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Booch007 responded:
What do he doctors think of this?

Sleep apnea without a CPAP machine can explain the lethargy you speak of. Blurred vision can occur with migraines and FM can affect the occular attachment muscles as well. (In fact I am having a problem myself with this right now.)

I am wondering if my meds are making this worse though. I see the doc on monday.

Unable to grip things or slurred speech sound scary to me. Neurology has seen him? Is he diabetic where his sugars may be dipping low? It takes time for the liver to release secondary sugars to pull him out of it...so without treating him or knowing this is it, this could explain the delay at times to recover.

Please get him checked for diabetes and a good neurologist should see him.

Kuddos for you to reach out and look for help for him, a GOOD WOMAN HERE!

With FM there are times I will say that i "run out of gas" the legs are locked up and getting to the car is an effort....But something else is happening here.

Please keep in touch and let us know what you have found out from the medical community. Thanks, Nancy B
 
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cmuffley74 replied to Booch007's response:
Nancy,

Thank you. It is very scary. What concerns me is that this all happens at once. I forgot to mention that his hands visibly shake also during the "episode" and several minutes before it is in full-swing. He hasn't been checked recently for diabetes, so I will definitely get on that.

Yesterday he had a pre-op for a sinus surgery that he is having at the end of the month (hoping this will help the migraines). When they did the EKG, there was a warning that I wasn't supposed to see that said something to the effect of "possible prior infarct". The nurse asked if he ever had had an abnormal EKG. He hasn't had one in awhile, so I already scheduled a trip to the cardiologist. He has been on blood pressure/cholesterol medication for a few months, but they were prescribed by his general practitioner. He hates going to the doctor, so until yesterday I was unable to convince him the his health is in jeopardy and that he had to see a cardiologist ASAP. He had a neurologist but was sent to a pain mgmt doctor because the neurologist didn't know what else to do for him with the migraines. I am pretty sure he never told the neurologist about the episodes.

I am so grateful I found this forum and will keep you posted on his diagnosis from the cardiologist.

Christy
 
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Booch007 replied to cmuffley74's response:
Good Morning,

Man you have so much on the plate right now.

Many times the EKG machine will say this as the first chest lead patches are too high on the chest and the "R" wave we watch to progeress upward doesn't happen fast enough. NOT TO WORRY...BUT with all that is going on...GET TO THE CARDIOLOGIST. TIA's can do this too. Hoping that he can put this all together for you. (though you don't have this many without actually having a stroke)

Tell him everything you have shared with us. If it is neuro/vascualar the cardiologist should "smell it" and refer you .

We also check diabetes in the office as cardiac issues are so frequent in the diabetic we hunt for the diagnosis to help the patient.

A finding of high trigycerides in the cholesterol panel and cardiac findings often will yeild a hig A1C. With you though you are dipping low, (if this be part of this)

I am also wondering about seizure activity......they can present so suspiciously and not how you would think.

Gosh, I couldn't wait to find your post and see what you words were going to be. Can he also be seen in neuro for an EEG...
I actually think there are EEG recorders now that you go home with and they monitor you for a good length of time. If one of your episodes can be captured on THAT. IT might be your answer.

Hope a good neuro is in your life.

How old is your husband???

So, again...don't worry for the machine reading, I can tell you such silly things it can say. Good thing it didn't have the SEPTAL INFARCT comment we see so much (you little spy!). Leave it to the professional...I always write on the cardiogram "thank God for the nurses overseeing this machine!" The NP's get a kick out of it as it is amazing what that software can say......

Glad he is seeing a pre-op clearance though. Another opinion on this is needed for sure. Good luck, you are on my mind alot...Nancy B
 
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cmuffley74 replied to Booch007's response:
Thank you so much. I am definitely going to pursue the neurology aspect. He had a neurologist for the migraines, but I wasn't impressed with the doctor. My husband didn't really tell all the symptoms he was having. I insist on going to all his appointments now.

He will be 42 in July. I'm very concerned about all of this and I am grateful for all of your advice and thoughtful words. I will certainly keep you posted. He has an appointment this coming week with a cardiologist but I can't remember when. I'll let you know what the outcome is.

Christy
 
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Hottie71 responded:
I read your post and am wondering if he was ever seen a Neurologist .. checked for having mini-strokes or pressure in his brain it seems rather odd that he suffers the way he does and the symptoms ,,, most the shaky hands and not being able to grip objects, migraines ...I have a lot of health issues myself and read a lot I'm no Dr. ,but This is what I would ask my husband to do......Good Luck I wish you the best! Tara
 
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DebraBrooks1960 responded:
Dear An-245383
I am not a doctor, but I have worked for one for 15 years. If a patient called in with those symptoms we would send them to the emergency room right away. He may need a MRI to rule out TIA's or in Englishl, mini strokes. If he has another attack please take him to the ER if his doctor appointment does not come first.I do not want to scare you, but it is better to be safe than sorry that you waited. I am hoping it is nothing, but sometimes you just can not tell.

Sincerely,
Debbie
Your not over the hill until you are under the hill.


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