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gsw021597 posted:
Anyone familiar with Savella? How long does it take to start working? I have finished week 7 but only side effects, no pain relief yet.
painfullyexhausted responded:
Hello. I tried Savella, took it for 5 months in hopes that it would eventually work. Not so lucky. It made my insomnia worse and never had any relief from pain. I know that Nancy swears by it and takes a low dose. I've heard more negative than positive feed back on Savella. Like they say, not all meds work for everyone. Best of luck
booch007 responded:
Oh, I am so sorry to hear this. This is my little bow on the box.

I had trouble with the dose pak they start you with, it was TOO MUCH MED for me. BUT I was completely pain\nfree by mid pak, just too much heart rate issues and B/P increasing....couldn't sleep.

I use only the little blue first dose now, 12.5mg and it helps so much with my tramadol and Soma muscle relaxant.

I also have magnesium 250mg twice a day, calcium, Vit D CoQ10 and B Complex in there as my supplements.

It amazes me when we see so clearly we are all so different from eachother. And in saying that, this is why it is so hard fro the physician to not get frustrated with our care. They as well would like to just say "OK, THIS" and you are better....

Not so with us, it is a trial and error condition. Well, I wish only luck in the future with the next avenue he tries. I had also used Cymbalta prior to that and got very ill from it, I developed Seratonin syndrome and we had said....NO SSRI, SNRI drugs for me. But my doc retired and the new neurologist i see, said "Please try this...I think it is a better fit!" WELL, perfect fit is what it was.

Well, all my best for you as you continue to find your "perfect fit". Nancy B
mnjeepguy replied to booch007's response:
I took Savella for 2 months or so, it worked very well for me. My Ins. said no so I had to come off of it. I could tell it is a powerfull med and would not be for everyone, I personally felt better after a couple weeks of starting it.
dollbug replied to mnjeepguy's response:
Cory.....did you try to *appeal the decision to your insurance company?" I learned that this is an option for people....when insurance companies do not want to allow what the doctors is prescribing for you....Insurance companies have NO RIGHT to override what the doctor is suggesting....but it seems like people just accept this as being fact....I found this out when my husband had his they did not want to pay for a lot of what the doctors were doing for him either...

Take care...


My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
mnjeepguy replied to dollbug's response:
Thank you Mimi, when I see my new specialist on the 25th who has a backround in Fibro, I will have this on the top of my list. WHile taking it I was my old self. I was out doing 30 mile bike rides again, feeling so much better. Now some days I struggle to take a walk. I have tried two other meds since then that I did not like. I will deffinately advocate to get it approved. If the Dr. finds that it is the best option for me right now I will get her to push it to my Ins. Is there anything else I need to do?

gsw021597 replied to painfullyexhausted's response:
Thanks for your response. I am now almost finished with week 9 with only side effects. I was hoping that I was one of the few that had great success with Savella, but I don't think so. Thanks again!

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