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thanks... you are so much of my strength
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DakotaWilsonFM posted:
sorry I haven't been around a couple of days... been looking things up and finding information... I talked to someone at a Parkinson Organization... talked to my new neurologist on the phone... guess he is alright... he gave me time to answer some questions I didn't have the guts or knowledge to ask on Monday...

He said with my history... way back 30 years ago when I was paralyzed... and the jerking started... and the rigidity and the drs had no answers for me he thinks the answer was Parkinson... the odds of things changing even if I go off the meds is pretty low but it might slow it down again...

with ms and fm things are complicated... just leave it to me to be a challenge... lol... It wouldn't be right to have everything sur-real and dealt with... I am not having too bad a time dealing with it... the word dementia came up talking to my dr... that and it is giving me another reason to loose concentration and not remember things... What the hey... I forgot my own name yesterday lol...

I called my gastroenterologist and he abruptly changed my reglan... and my psychiatrist finally got the message today about the abilify... I talked to my counselor and she was talking to her... there is no guarantee that the symptoms will go away... the dr thinks they started 30 years ago when I had the problems with spastisity and paralysis...and no one could find a reason for it... I have had these symptoms a long time and he said the meds just triggered them to enhance them...

Ironically my dear uncle with Parkinson died Monday... about the same time I was at the dr... I can't go to the funeral once again... so I will need to go out and buy me a helium balloon and let it go tomorrow... sorta like letting him go... my way of saying goodbye... He was one of my favorite people in my life... I will love him all ways and always...

Well the kids are wanting a snack... it is medicine time for me... and I guess I have gone on enough... I feel sorta lost today... I might be back for more... I really don't have anyone to talk to but you... My mom is hurting over her brother and mentioning Parkinsons Monday didn't help... they are on the road and I feel I need to be strong for them... my kids I don't think have grasped it... I still haven't told my oldest can't get him to answer the phone... lol...

so... you all take care and hang in there...

soft and gentle hugs... Love... Jan/Dakot
3 Replies |Watch This Discussion | Report This| Share this:thanks... you are so much of my strengthsorry I haven't been around a couple of days... been looking things up and finding information... I talked to someone at a Parkinson Organization... talked to my new neurologist on the phone... guess he is alright... he gave me time to answer some questions I didn't have the guts or knowledge to ask on Monday...<br /><br />He said with my history... way back 30 years ago when I was paralyzed... and the jerking started... and the rigidity and the drs had no answers for me he thinks the answer was Parkinson... the odds of things changing even if I go off the meds is pretty low but it might slow it down again... <br /><br />with ms and fm things are complicated... just leave it to me to be a challenge... lol... It wouldn't be right to have everything sur-real and dealt with... I am not having too bad a time dealing with it... the word dementia came up talking to my dr... that and it is giving me another reason to loose concentration and not remember things... What the hey... I forgot my own name yesterday lol... <br /><br />I called my gastroenterologist and he abruptly changed my reglan... and my psychiatrist finally got the message today about the abilify... I talked to my counselor and she was talking to her... there is no guarantee that the symptoms will go away... the dr thinks they started 30 years ago when I had the problems with spastisity and paralysis...and no one could find a reason for it... I have had these symptoms a long time and he said the meds just triggered them to enhance them... <br /><br />Ironically my dear uncle with Parkinson died Monday... about the same time I was at the dr... I can't go to the funeral once again... so I will need to go out and buy me a helium balloon and let it go tomorrow... sorta like letting him go... my way of saying goodbye... He was one of my favorite people in my life... I will love him all ways and always... <br /><br />Well the kids are wanting a snack... it is medicine time for me... and I guess I have gone on enough... I feel sorta lost today... I might be back for more... I really don't have anyone to talk to but you... My mom is hurting over her brother and mentioning Parkinsons Monday didn't help... they are on the road and I feel I need to be strong for them... my kids I don't think have grasped it... I still haven't told my oldest can't get him to answer the phone... lol... <br /><br />so... you all take care and hang in there...<br /><br />soft and gentle hugs... Love... Jan/Dakot
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KatmanduLou responded:
Jan:
I have no solutions for you. I just wanted to let you know that I'm thinking of you, and hoping you get through this.

We're here for you
((((( hug )))))
Lou
Report This| Share this:thanks... you are so much of my strengthJan:<br />I have no solutions for you. I just wanted to let you know that I'm thinking of you, and hoping you get through this.<br /><br />We're here for you<br />((((( hug )))))<br />Lou
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DakotaWilsonFM replied to KatmanduLou's response:
I thank you for thinking of me and please know I will get thru this... I so appreciate you all being here for me... It helps me gather and hold on to the strength I need to carry on... Without you and my family I don't know if I would be surviving as I do... I have always believed in my strength and know my God won't give me more then I can handle... does feel a little crowded at times lol... But with all the love I am given from my family and from you all here... I stand tall... and thankful...

thanks for messaging me...

take care... soft and gentle hugs... Love... Jan/Dakota
Report This| Share this:thanks... you are so much of my strengthI thank you for thinking of me and please know I will get thru this... I so appreciate you all being here for me... It helps me gather and hold on to the strength I need to carry on... Without you and my family I don't know if I would be surviving as I do... I have always believed in my strength and know my God won't give me more then I can handle... does feel a little crowded at times lol... But with all the love I am given from my family and from you all here... I stand tall... and thankful...<br /><br />thanks for messaging me...<br /><br />take care... soft and gentle hugs... Love... Jan/Dakota
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Caprice_WebMD_Staff replied to DakotaWilsonFM's response:
Grace under fire, that's how I think of you, Jan. (((softhugs)))
We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell
Report This| Share this:thanks... you are so much of my strengthGrace under fire, that's how I think of you, Jan. (((softhugs)))
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