I got sick towards the end of one job. We were told the plant would be closing and moving to new location due to company downsizing. Yippe! Shortly after got sick. Went to doc, after tests sent me to Rhuemy doc. Said Lupus, soft connective tissue disease as well. Got second opinion. Liked new doc better too. Said Lupus and FMS. Great job ending soon and sick. My supervisor there too was great and so understanding when I told him. He worked with me.
Ok, so out of work for 6 months Cobra affordable with new things from govn. Started new job 6 months later, one week into it flare from hell, both Lupus and FMS. So my job performance was affected. NOT understanding like last boss. I was forced to take their bene's after 90 days. They sucked compared to my old bene's and cost a lot more. Well after six months there laid off. Could not afford Cobra this time. So no medical coverage.
My new Rhuemy gave me samples Savella and discount on office benefits. Helped me greatly. I now have to pay myself for Tramadol and Flexeril. Again doc helps with other meds. I go to clinic for diabetes meds, free.
However now I have been unemployed for just over a year. I go on interviews, love resume until realize age on interview. They don't even bother to call back now. My doc asks me all the time if I am unemployed and so much pain how do I expect to work? Last job laid off from it. Well have to explain to him I cannot collect unemployment (my only money) and apply for disability. I will have no money coming in while I wait, which I understand can take some time.

So I am caught in the viscous circle.
However I am lucky I have good friends, spouse and son. My friends know what I used to be like and how I am now. They invite knowing will not always go, but still invite. When do go they will make me go home when see I am overdoing it or look tired. My son and spouse help too. Other family members different story. You know, the you don't look sick. But also know have had R/A since teen and think it is that.
I think we all grieve our old life. It takes a while to accept it. I have learned to accept and cope. I am in pain every day, some days better than others. But I am STILL ALIVE, and thank God for that every day.
Crystal