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Thyroiditis
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michmorn posted:
I have fibromyalgia. But recently have experienced new and very painful symptoms. I woke up yesterday with the lower right side of my thyroid gland inflamed and VERY painful. They found a "nodule" on my thyroid 12 years ago. Haven't checked it since. My hair has been falling out, sweating and much more. Can't eat as it hurts too much. Have to take painkillers it is so bad. Went for TSH blood work this morning and going for ultrasound on my thyroid asap. Thyroid disease runs in my family. Many relatives have it. I'm wondering if anyone else has had thyroiditis? Hashimotos has been mentioned. I also have been diagnosed with mental illness recently and wonder if all of this is actually my thyroid. Thanks in advance for any info you may have on this.
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sp2001 responded:
Your post caught my eye, I too have hypothyroidism that was diagnosed about 5 years ago. By then, I had several nodules and goiters, and my thyroid was barely functioning. I've been on synthroid and my neck has actually shrank. But I still feel pain and fatigue daily. So glad your getting it checked out, good luck. Just wanted to commiserate lol
 
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michmorn replied to sp2001's response:
Thank you for replying sp2001. I am actually hoping that something is off with the TSH results, so then I can treat it and move on. This is incredibly painful. The only other thing I can find on thyroiditis is some sort of a virus. Says it is rare and usually follows an upper respiratory infection, measles or mumps. I have not been sick at all, and I rarely leave my house so that seems bizarre.

Sorry to hear about your hypothyroidism. Was your thyroid really painful? I cried when the dr touched it. Don't know what that means either. Thanks again for replying. take care.
 
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sp2001 replied to michmorn's response:
I hear you about hoping to hear something is wrong, I used to cry after blood work came back all good (except for Vitamin deficiencies). I knew something was wrong, but there were no answers. It's frustrating.

I honestly can't remember if my neck hurt before I found out. I do remember having to "adjust my throat/neck" to swallow food. I know that sounds crazy, but it's true. I didn't know my thyroid was swollen, and it was affecting my throat. I thought it was just me! LOL!

I was told that my fatigue, dry skin, excessive sweating, inability to lose weight, etc. were all caused by hypothyroidism. When I was diagnosed, the Dr. did mention Hashimoto's Disease too. It's pretty much hypothyroidism. I know I mentioned the goiters & nodules too. Pretty gross. LOL


Don't worry too much, (easier said than done) if it is your thyroid, your Dr. will prescribe something like Synthroid.


Let us know when you find out! Hang in there!
 
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Anon_2912 responded:
You will be amazed on what that thyroid controls...and how awful you will feel mentally/physically when the levels are off.

I had graves/hyper almost 19yrs ago. I am on medication since. They had to take my thyroid out due to thyroid storms. I tried the radiation iodine pill, but it did not work for me.

I hope it turns out good for you...
 
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sp2001 replied to Anon_2912's response:
Just wondering how your doing and if you got your test results back... Hope your feeling better!
 
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michmorn replied to sp2001's response:
Hi sp2001,
My bloodwork is back. TSH is normal. How can my TSH be normal if my thyroid gland is inflammed and so painful? Thyroiditis, is that normal? Now I'm wondering if this is yet another fibro symptom. Although I can't find anyone who has had this with no thyroid problems. Still waiting on a date for a scan of my thyroid. Still feel awful.

Thanks so much for caring.
 
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michmorn replied to Anon_2912's response:
Hi anon_2912

Thanks for your reply. My TSH test came back normal. Now I'm really confused. Sometimes feels hard to swallow food. As though something is in the way. Pain in my thyroid radiates to my ear. Waiting on scan.

I'm sorry you've been through all that. Hope you are doing better now. Thanks for caring.
 
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annette030 replied to michmorn's response:
I have FMS, but I also have a normal thyroid.

What do you mean by "this" in the sentence that goes "Although I can't find anyone who has had this with no thyroid problems." I took "this" to be FMS. Is that what you meant?

I hope you feel better soon.

Take care, Annette
 
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annette030 replied to michmorn's response:
What does your doctor say?

Take care, Annette
 
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booch007 responded:
Good morning,
I have to say....what ever it is, endocrinology can help it. THANK GOD. The thyroid has been helped for years and they are better and better at tuning it up to normal.

Sorry you have added on your plate and feel so awful right now, the hair will come back too once you are treated.

Sad if this is so familial your doctor didn't find it sooner so hair loss and eating were not effected.......Best of luck, Nancy B
 
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dollbug replied to michmorn's response:
Hello michmom and welcome....MiMi in NC....I just want to comment about your swallowing problem....I also had problems with this and had a cough when I had parathyroid problem....do not know if the doctors have checked your parathyroids or not....but they probably will when they do your ultrasound...

I ended up and they had to remove one of mine which had tried to attach itself to my esophagus...even though the surgeon assured me that my cough and choking problem was NOT related to it...sometimes doctors do not know what is going on with us...or at least this has been my personal experience...

I know that when I first got sick...the doctor tried to tell me that I was just depressed and actually treated me for being depressed for a long time...I did not get better with the medicines he was prescribing for me...and I finally did my own research and figured out what part of the problem was...

Only you know how you feel and you know when something is not right...so I hope you will continue to find the answers...we FMers, must get to the root of our problems....before things will get better for us...I have been there done this...

I would like to encourage you to be sure and talk to your doctor about checking your Vitamin D level...which is so very important to a lot of people these days...

Low Vitamin D can cause additional pain for some of us and it can also affect other illnesses as well.

Take care and good luck...



MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
 
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michmorn replied to annette030's response:
Hi Annette030,

Thank you for your reply. No, I didn't mean "this" as in fibromyalgia. Sorry for the confusion. What I meant was, I can not seem to find anyone who suffers from fibro, WITH a painful inflammed thyroid but a normal TSH. "this" meaning the inflammed thyroid. Doctor has so far ordered the bloodwork and referral for a scan of my thyroid and said it is thyroiditis. Which only means inflammation of the thyroid. The cause is still a mystery.
 
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michmorn replied to booch007's response:
Hi Nancy B!

I expect an Endocrinologist is where I will end up. I'm in Canada, where all health related issues wait forever because everything is so backed up. Waits of up to a year for specialists or surgery or nuclear medicine just to name a few. Is it possible to have a normal TSH (although mine is always right on the border of "normal" at the lowest end) with an inflammed thyroid and this kind of pain radiating to my ear? I don't see it as being yet another fibro symptom, but then nothing surprises me much anymore. Luckily I have such a thick head of hair that it's not noticable! Thank you for your reply and for caring, Nancy.
 
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michmorn replied to dollbug's response:
Hi Mimi,

Thanks for replying. I've been on top of the vitamin D because thankfully people like yourself have educated me on that. Have not had parathyroids checked as far as I know. Yes, hopefully the ultrasound would show any abnormalities there. I agree some doctors just seem lost. Hoping for a call with the scan date soon so I know what's going on...and get it treated!

Thanks again, Mimi.


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