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What Kind of Doctor Treats YOU?
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Caprice_WebMD_Staff posted:
This new WebMD article on Finding the Right Doctor for You has made me wonder what kind of doctor gave you your original Fibromyalgia diagnosis? Do you see a specialist for treatment or your general practitioner? Are you satisfied with your current level of medical care?
We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell
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Teelady1 responded:
Caprice,

It was my Primary Care Dr which first suggested that I had Fibro. I sought a 2nd opinion from a rheumatologist who I learned treat fibro patients.

The rheumatologist agreed with my primary Dr in the diagnosis and for the most part agreed with the medications prescribed by my regular Dr. (The rheumy would have tried a different antidepressant first - but if it was working for me, she would not recommend changing it.)

I also wanted to see the rheumatologist to rule out RA as the cause of some of my joint pain. My Mother had RA and in so many ways I take after her. She was never diagnosed with Fibro, but after what I've learned about it, I'm convinced my Mother also had it.

After some blood work and x-rays - and not finding anything else like RA, the rheumatologist suggested I continue under the care of my regular Dr and his prescribed treatment.

I'm okay with this as I feel my regular Dr is providing good care.
 
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LIDEBRAS replied to Teelady1's response:
I just wanted to mention that my sister has RA and other illnesses like I do. A long, long, time ago, many years after I was being treated for Fibro, all of a sudden, she was also diagnosed as having it. I have OA, RA, Fibromyalgia, chronic migraines, piched nerves, ETC... the list goes on. All my blood work for RA was negative. My sister who is 8 years older than I am has had positive and negative tests for RA during her lifetime of 67 years and she was in the study to bring Remicade to the market. I learned that
25 % of people can have negative blood tests and still have Rheumatoid Arthritis. So, after I started going to a Rheumatologist and the blood tests were negavtive but my joints were indicative of having RA, I began treatment for RA. Enbrel wasn't so good and then I tried Remicade, that had worked for my sister, but not for me. I am now on ORENCIA and I feel much, much better! MY HANDS AREN'T ALL TIGHT AND BUNCHED UP IN THE MORNING AND SO STIFF NOW THAT I AM ON ORENCIA WHICH IS AN INFUSION AT THE DR'S OFFICE ONCE A
MONTH. What I am trying to say is that " if it looks like a duck, quacks like a duck, waddles like a duck...it's a DUCK! "
I wish you the best of luck!
 
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booch007 responded:
Good morning,

After seeing my GP(internist), Chiropractor, Physical Medicine and rehab, a Neurologist (wrong sub specialty) and even a plastic surgeon thinking my hands needed to be opened. A STUPID neurologist in another town and I paid* out of pocket for......a neurologist that did EMG's of my neck....I was finally referred to the neurolgist from Boston who's specialty or subspecialty was myofascial issues..........she diagnosed me as I spoke, each complaint had an answer. It was the most liberating day of my life! Hearing there is no cure for this or that I would have to fight this everyday . Not a great day.

A day at a time, YUP...a day at a time.

So, I chose neurology for the nerve entrapment symptoms I had. Burning pain, numbness....sleep disorder at the time.
That was over 15 years ago......time does pass.

Thanks for the question, interested to see other responses. I saw a total of 9 physicians for the complaints I had, and always told...nope I can't find anything.

You can't get a screw diagnosed by someone with a hammer.....they only see NAILS! You need the right fit of Doctor with the eye to SEE the whole picture. I think there is more open knowledge of this issue in these times. Still it is the hardest part of the disease. "the right fit MD".

Nancy B
 
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georgia888 responded:
Hello Caprice,
Like many of us, I hopped from doctor to doctor in search of a diagnosis for symptoms that were almost inexplicable. Because most of my original symptoms were throughout my spine, I eventually saw a neurosurgeon. After reviewing MRI's I brought with me (ordered by a previous doctor) he agreed that I had some osteoarthritis however, he felt my symptoms were not related to the oa.

After examining me & closely listening to my symptoms, he broke the news that I was suffering from the beginning stages of a myofascial condition. He never mentioned the word "fibromyalgia." The look on his face warned me that I was in for a lifetime of pain.

Following that diagnosis, I saw a physiatrist, rheumatlogist & my PCP. The only drug I agreed to was amitriptyline, which did help but after being on it a couple of years I stopped & decided to stick with various vitamin & mineral supplements.

All the doctors recommended warm water exercises & I use the warm water pool at my neighborhood gym every day. It's been very therapeutic.

Thank you for another great discussion.

georgia
 
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Caprice_WebMD_Staff responded:
Thank you all for sharing your own experiences with your doctors. As seems to be so often the case with FM, getting a diagnosis can sometimes take time.
We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell


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