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    My worst symptom
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    SherryLyn111 posted:
    I'm new to this group,but I've had FM for 15 years. My worst symptom is Vulvodynia. My Fibrofog is bad! I find that more upsetting and embarassing, then how uncomfortable the Vulvodynia can be.
    Reply
     
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    Caprice_WebMD_Staff responded:
    Hi SherryLyn,

    I think your post got missed by others so I'm responding to bump it back up to the top.

    Welcome here. You've found a great place of support.
    We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell
     
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    Frustratedintennessee replied to Caprice_WebMD_Staff's response:
    I don't know anything about Vulvodynia. I did go and read about it. I am so sorry you are experiencing this. I can relate to the Fibro Fog. As you said about it being upsetting and embarassing. I feel as though I am going crazy when Fibro Fog hits me. I can't think of simple words, I can finish a sentence. I feel dumb/Stupid and illerate. I have worked since I was 14 years old. Except for 3 years in between when my children were babies. I am now 51 and I have been out of work for 2 years. I feel helpless most of the time, like I should be doing more than I am to help our financially. We are in a terrible financial bind and I feel it is my fault. I have always worked with numbers(Accounts Payable and Receivable, Payroll and accounting and never did I forget anyones phone number. On the days I have Fibro Fog I can't remember anyones phone number, I can barely remember my own Birthday I have to think about that. I hate this. I am praying for a break financially in the near future. I have been denied Disability 3 times and finally my Lawyer got me a hearing on November 7 with Social Security so I hope it goes through this time. Thanks for letting me share and vent....
     
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    katmandulou responded:
    Hi SherryLyn111, and welcome.

    Many members of this group have been through what you're experiencing. I haven't, with me it's loss of desire; my gyn says she wished she could give me "a little pink pill". Some days I wish everything was that simple!

    I went with my sister to a doc visit (she is a cancer survivor) and they talked about "chemo brain". Her doc said I probably couldn't relate, so I said I can, I have FM and it's just like FFog! We had a good laugh. (My sisters Leukemia is cured, BTW!)

    I like to make sure new members know where they can find help. There are some good resources in the right-hand column. Also check out http://www.butyoudontlooksick.com/ . There are some good tips for us, and you have to check out The Spoon Theory - it will help people understand what it's like to be in your body and mind.
    Have your doc check you for Vitamin D deficiency. Sounds simple, but we who live in the northern hemisphere are usually lacking in D.
    Have the best day you can possibly have,Lou
     
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    katmandulou replied to Frustratedintennessee's response:
    Frustratedintennessee - I know exactly what you're talking about. I "own" a small (micro) business, and income is lacking. I just got a part-time job for the Christmas season, and I hope to start feeling better about everything soon. Lou
     
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    dawncostella responded:
    I think I have that too. I didn't know what it was, I just thought I had lost my mind But after I read up on it...I believe I am with you on that one. It sucks.


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