Fibromyalgia Community

Good morning Candy,

Is this trigeminal neuralgia? That is what it sounds like....

If you have pain with this it is neuralgia and palsy is if the nerve is compressed to the point of near paralysis...so palsy.

Hmm. Look up trigeminal neuralgia and see if it fits and see if there are tools for you to help oyurself.

I was diagnosed with A retinal problem, the doc gave ma a name for ti and I couldn't find my problem anywhere....I then saw a specialist who said "no, you have a macular fold" Well when I looked that up....also said a retinal wrinkle*. I found eveything I needed to know and more.

So try this name for this issue. I know my neurologist does injections for this. Don't know where she gores to make it better..but there is treatment. I would also look in to accupuncture. Using meds cand get awfully tricy.

I KNOW THIS IS PAINFUL. So I am so sorry. Good luck, nancy B

Hi, Nancy

I think trigeminal neuralgia is a problem of the fifth cranial nerve not the third.

Take care, Annette

Hello Annette....actually I think there are 3 branches which can be affected...

Take care.


MiMi

Hi,
Thanks very much for the replies. I'm new, and you made me feel welcome. I'm not sure the doc knows which nerve is involved. He thinks it's the 3rd. I'm so glad to get a diagnosis finally, since this is the 2nd flare of it, and the first one lasted 4 months. I'm pushing 2 months of this one. I just told my employer I'm applying for disability. I'm making an average of just over $1000 a month, and asked if there's a way we can lower my wages and still keep my benefits employee benefits. I'll find out whether or not he's on my side.
I've been trying to find a full-time job for over 2 years, after being laid off at a major hospital. Now I'm giving up on that and am declaring my multiple issues -- the typical gambit of back, arm and neck pain, and the depression, anxiety, sleep disorders, etc., plus I'm chemically dependent. With the addition of the head and facial pain, it would be nice to be able to supplement my gabapentin with a pain pill (or 5. I've got a tolerance).
I've been reading the posts from all of you and getting great comfort from it since my diagnosis. I didn't believe the diagnosis for quite a while, thinking it was just a whole bunch of individual issues I kind of created myself because of the stress of being laid off. I tried all kinds of things like chiro, massage, etc., until my insurance ran out. Now I've got new insurance but have a very high deductable.
Sorry I'm rambling. I haven't talked to anyone else who had fibro, and it's kind of spilling out. I do feel better having connected to all of you. Thanks for that.
Candy