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I am not sure if I have fibromyalgia but Dr has been no help in figureing it out
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maciascl posted:
I have had many 'issues' for years and after a very stressful 4-5 years they are getting worse. I suspect either hypothyroid, fibro, or chronic fatigue, since many symptoms are overlapping. My dr seems to want to blame everything on my anxiety and only suggested I reduce my stress and take an antidepressant.

I am not sure what to do from here. I could go see a different dr but I am tired of trying to convience my dr that something is wrong. I am rying to do my own research but the fibro pain is what really throws me off. I have severe pain in my upper back, left elbow, both wrists and hands/fingers all the time. I am very stiff in the morning and have alot of lower back pain in the morning. Is this enough pain to warrant me continueing to concider fibromyalgia? What else do I need to push my dr to do/look at?

Thanks for any possible help or suggestions!!
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IM_frustrated responded:
Hi Maciascl! It took me years to finally get a diagnosis and I understand your frustration. My initial diagnosis at the age of 21 was osteo-arthritis, and my Dr at the time couldn't even explain why he was giving me that diagnosis. I have pain in my hands and knees, and sometimes my elbows; when I finally went to a Rheumatologist, he explained to me that this pain was actually from "hyper mobility" or being double jointed. It was causing me a lot of stiffness, pain and swelling. That could be part of the problem. Your back pain could absolutely be caused by fibro; obviously I'm not an expert, but I've dealt with this disease and I know what it feels like to complain to your Dr and get no results.Stress makes your body hurt much worse when you have fibro, so if you're noticing the problem being worse when you're stressed, then I think a trip to a specialist is a very good idea.

I sympathize with you and know what you're going through; like I said, it took years for me to finally get my correct diagnosis; I know how defeating and depressing it can be. Just hang in there and like I said, try to see a specialist. If you're curious about my symptoms, feel free to ask and I'll go into detail about mine. I'm here if you need to talk; I'm sure it would be just as therapuetic for me as it would be for you.

Feel better-
IM_miserable
 
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maciascl replied to IM_frustrated's response:
Thank you! I just feel like I don't know which way to go. It could be firbo or soemthing else but I can't get any cooperation so I don't know. No dr will do anything beyond a TSH test for low thyroid which doesn't really tell you how your thyroid is functioning even though it is accepted as a thyroid function test.

I'd love to hear about anyone elses list of symptoms to get a better real life picture of fibromyalgia. I know the possible list is long, but it is also different for everyone.
 
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dollbug responded:
Hello maciascl and welcome....MiMi in NC...your doctor should do the pressure point test....did this happen? Check it out on the internet...this is actually the only sure way for the doctors to know...and if you are like me I had no idea what the *pressure point test* was...there are all sorts of medical issues which it could be...a lot of us FMers have multiple health issues and it is hard for the doctors to figure out exactly what is going on with us to begin with....we do not *fit in the box*, so to speak....we are complicated and complex....

I have to share this with you also....my doctor *thought* also that I was just depressed....and he continued to try to *find the right kind of medicine* to help me...I continued this road for a long time....and never got any better....and then I figured that IF I was going to get any better, then I had to do my own research....I did and I then talked to my doctor about what I thought was going on with me...he assured me that I was not right....but eventually he found out that I knew more about myself than he thought I did...

I want to tell you that you have to keep on keeping on....IF he can not help you, I would suggest that you get a second opinion....and make sure that the doctor treats FM....there are doctors who still do not *get* that FM is really a very ugly and mean illness....and that we need help...

I would like to encourage you to also ask your doctor to check your Vitamin D level....which is important to a lot of people these days....it is a simple blood test...but it is not included in the normal blood work that the doctors do...you MUST ASK the doctor to run it...low Vitamin D can cause some of us to have additional pain and it can also affect other illnesses as well...

I am one of the FMers here who has learned how to *control my FM pain* by taking vitamins and supplements and using other things as well.....as I did not find any medicines which really helped me enough without causing side effects...it took me a long time to do this...we are all different and what helps one person may or may not help you....only you can decide though...and you have to allow at least 6-8 weeks of whatever you decide to try...before making a decision as to whether or not what you are doing is helping you...it takes this long for a person to get the *full potential* of what something is suppose to do...(Now this is only IF you are not getting sicker)....

Have you tried using a heating pads....I could not survive without mine...I use it often....I also use the Stopain Spray (found at walmart for under $8-it is GOOD STUFF)...taking a hot shower at night using lavender bath salts also help the body to relax so that you can sleep better....Sleep is really very important to me...

Watching what I eat and drinking plenty of water is also a must....doing gentle stretching and exercising also helps...(GENTLE, being important here)...

Learning how to pace, pace and pace....Did I mention just how important this is?????? We, FMers, can no longer push ourselves to the limit...and we have to learn to say no....I can not do that today....I need to rest...

The daily journey of living with the wrath of the dragon, aka is FM....is hard...and it takes time to figure it out...but there are lots of good tools and tips that you can try...I am sure you will find something that will help you cope better...

Soaking hands in hot epsom salts also helps or using hot wax therapy helps me....I have had 7 hand surgeries...2 of which where I fell outside and broke each wrist...not at the same time, thank goodness...I also find that sleeping in wrist braces at night helps...especially when my hands are already hurting before I go to sleep....they also have elbow braces...I have used them as well....(I had elbow surgery as well)...

I hope this helps for now....hang out here with us...I am sure you will find lots of good support here...along with tools that might help you..

Take care and good luck...


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..


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