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heavenlyangel posted:
Hello all .Nice to meet you . I was 32 yrs old active beyond anyone with add,adhd ocd,,pmd.Go Go Go ,clean ,take the kids to all there stuff missed not a day with them.Then the naps NAPS I do not nap.. So still doing 2 hrs everyday of extreme aerobics.Great shape then depression.,pain these things called naps. I get told by a specialist You have fibro here are the papers to read . I read ..thought not me. Go Go then 5 yrs crash ..back to the specialist yes you still have it .I ask ya know how bad all 18 or more points no energy with no sleep for years to the point i was unable to drive.dosing off and not eating So he said he has not had a patient this bad off.You will never work again in your life. .all do to no energy to much pain.5 years ago I started having this EXTREME PAIN under my right breast like a pole pushing into my front to my back shutting down my throat face and slurring my words.lasted for about half hr. test show nothing except burned my esophagus having acid reflux I take apple cider pills that helps but not for the pole thing still having the episodes ...I`ve have had fibro for 25 years read all about it got so much info . Still off and on with the pole thing
and extreme nerve pain to my neck & face..exrays found 4 chipped vertebrata in my upper and lower neck from car accident 37 years ago where I was hit from a side car running out fast to a busy street hitting my passenger side to send me through to the window & BREAKING IT WITH MY HEAD .got head ex-rays and sent me home .So it takes alll these years to find out all this stuff then I have had 6 surgery's to remove 6 football size cysts from my lower area by 29b I get a full hysterectomy.. then at 31 I have a 7 hrs surgery to remove about 120 cysts from my upper mouth. ....since lost upper teeth to dentures wahooooo great smile `) I know since last 2 weeks ago started to have seizures falling to floor then when come to can not talk & move stubborn me i WANT UP NOW ..not happening as left side is strong right side weak to unable to use at all yes all the tests ..then I .have another one last week & then to go out get grocery's yesterday i AM ALMOST DONE & I PICK UP 2 ORANGES AND LOOK AT FRIEND AND YELL PLEASE LORD NOT HERE PLEASE AND DOWN I GO ..15 or more MINUTES OF THIS REMEMBERING NOTHING TILL IN ELEVATOR WITH PARAMEDICS & I have one in the ambulance now strapped in tight and hooked to intervenes & test test & hospital does head ct scan & ex-rays and blood work .I have never been worried once as I know I will not die from this. The ambulance man said to his friend there is a name for the fibro nerve ending in brain ...walling around on floor as he has had other patience doing the same thing. the brain cannot handle the stress the pain the whole part of the body goes array leaving us with a confused brain and these fibro seizures ya i go for all the eeg`..emg...ep Just my thought we have a great brain but it has decided enough is enough & shuts us down into these sezures. I Pray some day we can have a day where we can feel normal I remember normal. I was at the beach 3 years ago i think that day was normal as it gets .Bla Bla sorry to go on so much I feel at home here reading all your lives..My Love Hugs Prayers to you all I hope to get to know you all better
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Anon_10089 responded:
Hello and sorry for what you're going through. I'm not a doctor but please research "pseudo seizures" or "psycho-genic non-epileptic seizures". These are very real seizures caused by stress, anxiety, etc. I've researched them some because a family member of mine has been diagnosed with this.

We know our bodies and minds must deal with stress. Sometimes, people's bodies deal with stress with these episodes. THESE ARE REAL.

It's good you're getting all the testing done, though. I'm not trying to diagnose you, of course, but thought I'd put this out there for you to look into.

This is a good place for support so I'm glad you found your way here!
 
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maggiethedoglover responded:
Hi Angel,

Welcome to the community. Your story is mindboggling. I am so sorry that you have had to suffer so much. No one should have to go through all that pain.

The seizures sound awful. I pray that all of the tests will reveal a cure for them, that your fibro is under control so that you can have many, many more normal days and that you get to spend a lot of them at the beach.

You will be on my mind and in my heart.

Soft hugs,

maggie

Life is a shipwreck but we must not forget to sing in the lifeboats - Voltaire


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