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No Cure for Fibro
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An_241807 posted:
Hi there My Wonderful Friends: Its been a while since I have written abt. anything on this site so my name may not be familiar. I have had Fibro for approx. 6yrs.now. As with so many others' saying it wont' go away, I'm with you 100%. Yes pain meds', a little exercise. Oh that works' for maybe 1hr. in a day. I also have problems with my back (considering surgery,but terrified). Isn't it embarrassing when you try and go shopping in a store, or bend down and try and get up hanging onto whatever I can for help. People look at you like, your young(er) what is your problem. My legs (especially the right one and right side at top of hip) regardless of standing/sitting are so painful trying to get around. What are you supposed to do, put a sign on our front/back stating I Suffer from Fibro so people just might understand which I feel is still unlikely. For the most prt. you cant' get housework done, or if you do where are you most likely to go after, let me guess BED!! This disease is so depressing at times. Maybe in time they may find a cure however its' not going to be in my lifetime. I also have Psoriasis which I take a needle twice monthly. This is supposed to help, okay...who,how did they come to this conclusion? It certainly hasn't helped me. I've been on Humira for 2yrs.now with no improvement. My psoriasis yes, Fibro "NO". I am on a strong pain med however it is a slow release, by the time it kicks in your ready to take another but you cant'. Then your overdoing it. I have a pad with a vibrater, heat etc. that plugs in. This helps to a degree, lets say 5%. My heart goes out to each and everyone of you with this dilibating disease, you ask your Physician for help and he/she looks at you the same as those on the streets at times. Then they say well we cant' increase your dose of pain meds' (yes you can) but wont'. I'm not one to complain a whole lot, what for. It falls on deaf ears'. Even when the house is falling apart do you think someone would get up and help "NO". Hubby helps as much as he can but he as well has had back surgery and I can see the pain on his face, something I dont' like. I am not one to wish harm on anyone however at times when these people are just staring at you I cant' say I dont' think abt. saying to them, Damn you should try this on for size. It takes over your whole body most days' and on the worst days' you feel as though you have another body attached as well. So people if someone says "oh you will get better" or "you have to think positive" nothing makes my blood boil more.Today is one of those days' that I would just like to crawl in bed and pretend I'm by myself and don't have to worry about anyone else in the house. Like thats' going to happen. Have a rainbow day all of you sufferers' I can honestly say I'm in the same line up as you. Take care and only do what your body allows
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Anon_57995 responded:
re" " Maybe in time they may find a cure however its' not going to be in my lifetime."

Please don't lose hope!
It could happen- and happen soon.

Once hope is lost, all is lost
 
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dollbug responded:
Hello and welcome back....MiMi in NC...sorry that you are dealing with so much right now...and I am sorry that you have not found something that will help you cope better....I have to ask...have you talked to your doctor about checking your Vitamin D level? If not...then perhaps you might just want to do this the next time you have to go in....low Vitamin D can cause some people to have additional pain...(it did for me)...and it can also affect other illnesses as well.

Have you tried vitamins and supplements? After trying several different medications that the doctor thought would help and finding that none of them helped me and actually caused side effects....well...I decided to do my own research and found just which vitamins and supplements helped me....I also use other things as well.

It took a long time for me to figure the right combination of *tools* which worked for me...but I did it..and for the most part, it works...as long as I stay on a schedule of sorts...learning how to pace, pace and pace even more is important and getting enough sleep is also a must for me as well...drinking plenty of water and watching what I eat and doing gentle exercises/stretches is also important.....trying to keep my stress level low is also a must...(this is something that I struggle a lot with though).

I use a heating pad several times a day and I also sleep in a recliner....(not by choice though) on top of pillows...I do whatever it takes to work for me.

I think since most of us DO NOT LOOK SICK....people do not understand just how much we suffer...I am not sure anyone would actually understand even if we did look sick. Most of us have to take it easy and we never really know when the wrath of the dragon might decide to rear its ugly head....we all have to learn how to *dance with the dragon, instead of draggin the dragon, as Nana B says....everything is a process.

Taking a hot shower at night using lavender bath salts also helps me to relax so that I can sleep better.

I am glad that you posted again....we have a lot of people who join and then just disappear....and then eventually pop back in.....there are lots of FMers that I often wonder just what happened to them.

OK....I hope you will find something that will work for you soon. Take care and good luck.


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..


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