Fibromyalgia Community

Hello Jan.....IT STINKS GETTING OLD....doesn't it? But you know there is only one other choice that we have....(die young) so I guess we really do not have a choice.

My DH is going deaf also. He has some sort of hearing thing now (not the normal one) and he has used it for a while....he is going to have to go and get a regular hearing aid as well. His insurance will help cover it this year though so that is what we were waiting and hoping for. So now it just needs to get better so he can schedule his appointment. It is always something.

It is what it is.....and we just have to do what we can to make it better.

I hope things get better soon for you.

Take care.


MiMi

Dear Jan,

Wouldn't it be wonderful if life were only fair and all of the good people like you, got all of the good things in life? I am so sorry to hear about this newest challenge that you have had thrust upon you.

I wish there were some way we could all pitch in whatever we could afford to help you. Sometimes we feel so powerless to do the right thing, to help someone like you who deserves all of our help.

All I can do right now is to keep you in a corner of my heart and constantly send soft hugs your way. You have been so helpful and giving to so many of us in this community.

I hope and pray that things work out for you.

Many soft hugs,

maggie

Hi... I know I have been challenged for a reason... Perhaps someone out there ... a new friend to become... will enter my life at one of these hearing meetings and I will be able to help them... and look I can get help in person... I only live about an hour away from the organization here and have already got plans to meet with them on the 24th... God willing... No other illness keeps me away... You know how making plans with FM is... throw the mixture of MS.. RSD... Parkinson's Disease... not to mention a few lesser few lol... Keeps me hurting and in bed a lot... But I will rest a lot to take the chance for a decent day to make the trip... It is very important... They have connections that will help me get a phone I can hear on for a while and hearing aids to help me hear a while... We hope any way...

Strange how just last week I was looking for a word program to type for me cuz my shaking and jerking makes typing and writing so difficult... Now I have to deal with going deaf and am sending it back cuz it doesn't like my stuttering fits... keeps asking me to repeat what I say... mmm... I was naughty one night and had to undo a lot lol...but it heard what I heard lol...

Now I am buying a solar alarm clock with a vibrator that goes between my mattress and bedspring... Sound interesting... Does to me... I am curious if it will cause more pain or feel like a good massage... lol... I may be setting alarms for ever and ever lol... If it feels good lol... Oh could I get so lucky lol...


I am looking forward to meeting the people on the end of the phone line... I don't get out much and haven't made many friends here... And those that are here are looking at me funny after this last little problem... They have been frustrated talking to me for a while now... I think they thought what I did and I would get my ears cleaned and put on some drug for the tinitis... and be cured... I talked to a couple who have said they just don't know what to say... Or how to deal with it all... Neither do I but I am trying...I have a feeling they might not be interested in trying anymore... Their loss... I know one thing... Even with all these dastardly illnesses I am a good catch... I give till I can't and help till I can't... And even if I can't hear I will still be the me inside right...

I am getting lengthy here again... Sorry... I am feeling a little bit more myself... and wanted you not to worry as much as I know you are... Yes... I have my shawl wrapping me, my dear Angel... And I am here reading and you have given me inspiration and peace of mind is coming home to my mind... My spirit and soul are becoming the real me again... And I have stopped asking "Why"

Thanks for writing me and thanks for being here...

take care... Love... Jan/Dakota

I feel for you and with you. It's just damn scary to be getting older with new afflictions constantly showing up.

We didn't get the instruction manual for this sh!t either.

Sending good thoughts..

only problem is... i don't call 55 and 1/2 old... i think i have a lot of so called "living" ahead of me... I was looking forward to so many beautiful sounds most I took for granted... Now I wish i hadn't


I need a nap and then to make phone calls... will catch you later...

take care,,, love Jan/Dakota

Oh, Jan, such awful news to learn, but I know you'll get through it. Your FMily right here will help you, and you'll maybe develop another just like this one.
( hugs )
lou.

That's one more thing you didn't plan on dealing with, isn't it? I'm sorry you will be losing your hearing. We count on all our senses and when one goes wrong it is nerve wracking.

One positive note is that you might enjoy teaching your grandkids how to sign! They will benefit from their new knowledge too.

Many hugs for you.

I'm in the same boat with you.....it is awful...I have been learning to read lips. I hope that you can do the same. God Bless you! Teresa