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    Hearing comes and goes
    rapti41 posted:
    I have fibromyalgia and and have had for many years. I have gone through over $10,000 worth of hearing aids. My problem is that sometimes for about 15 minutes my hearing will return to normal. When it does I can hear the wife across the room with her back turned. Then after it goes I have trouble sometimes when she is in front of me and facing me.
    Anon_10089 responded:

    I'm not sure of a strong connection between hearing loss and FM but many people with FM have ringing in their ears. The ringing can, in turn, affect your hearing.

    I've always kind of had bad hearing -- even as a kid, and now I'm in my 30's. I can hear noise but often cannot distinguish sounds correctly. Like I cannot understand song lyrics very well. But I don't think I have actual hearing loss.

    A couple years ago, a friend mentioned that he doesn't hear well because he has ringing in his ears. I finally made the connection! I have always had ringing ears. I don't even really notice it and it doesn't bother me. If I stop and think about it, I realize it is always there. Now I think the ringing just drowns out more important noise, like people talking to me!

    FM can cause some crazy things but you should always check in with your doctor for different or unusual symptoms.
    dakotaspirit1957 responded:
    Dear Rapti41... I actually had the opportunity to ask a specialist if my FM could have anything to do with my hearing loss... I have ringing in my ears which is tinitis that i caused by what is causing my deafness... My nerves telling my brain to hear things are dieing... Sorta being destroyed... As they are being destroyed my brain is being told it is hearing sounds that aren't really there... The whistling... the tinitis... This sound is like phantom pain is to an amputated leg...

    He said that there isn't a lot of research that he knows of connecting FM and tinitis or going deaf... But in some of his cases he unofficially told me he believes I could go deaf sooner... And have greater risk of hearing the tinitis after deafness... He has had several FM patients and this is what happened to them... He isn't saying that is a positive... Just something he has observed...

    Frankly I was surprised to find him know anything about FM... His Mom suffered it without help for years before she died a few months ago... She did however have almost 9 months almost pain free... Util she died of cancer... Her meds did help her FM... She died flare free...

    I can't say for sure FM will or won't do anything to our hearing... I believe in my case it might have... But I haven't found any one researching it either...

    Bless you with the fact that it isn't a factor... And I am just me... Following in my Great-Grandfather's footsteps... He went deaf very fast... And as far as I know did not have FM...

    Take care... Love... Jan/Dakota
    booch007 responded:
    A couple of things came to mind when I saw this...

    I have had fullness to my ears when the muscles of the neck and face are in a spastic is hard to hear when i get that and it will go away with heating my neck or taking the muscle relaxant. So that is my issue.

    The other thing I thought of was MS, Multiple Sclerosis though a big diagnosis can cause demylenation of nerves and cause interupted function., wether sensory or functional....doesn't come and go in a short period of hours though...maybe days.

    Youhave had full work ups by an audiologist and ENT for this problem? CT scan?/MRI? it sounds fishy as a complaint that I would investigate more.

    Good luck, I have no knowledge of it being in with FM though.
    Nancy B
    rapti41 replied to booch007's response:
    It is very odd that my hearing returns to normal for about 15 mins. I have listened to it fade while listening on the radio. It is weird. Everyone I go to keeps telling me it is not possible while I have family and friends that have watched it happening. I always tell the hearing aid people that if they have a problem with their audio systems, give me a call and I will bring a mike over, It must always be the mike according to their way of thinking. The implant place say my lost in my right ear is almost down to 40% and it could then have an implant. The problem I have with that is that if the problem is in my head is the sound going to go loud for 15 minutes every so often.
    Thanks for you reply,

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