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I'm new here, and in need of support and resources.
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76tigers posted:
I was diagnosed with FM and CFS about 10 months ago after years of unexplained pain and fatigue. I am still in search of a doctor that can help me manage my symptoms. My GP is trying to help me but she is playing a guessing game and suggested I find someone else. She suggested to try 3 different specialists, 2 of which aren't accepting new patients and the other one who told me to see a psychologist. I haven't been able to work since last august and I am also really struggling with depression and am starting to feel hopeless. I have no support system and there are no support groups in my area.
Live life one day at a time and remember, tomorrow is always a new day to start life fresh.
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squarley responded:
WELCOME,HOPE WE CAN HELP SUPPORT YOU,THERE ARE SOME OTHER SUPPORT GROUPS TO ,THAT I GO TO, THERE IS ONE ON DS ,WE NEED ALL THE HELP WE CAN GET,FINDING A DOCTOR IS A HARD ONE I BEEN TO SEVERAL HAD THIS A LONG TIME, I WENT THROUGH LOTS OF MEDS, AND JUST CAME BACK TO TAKING TYLENOL AND XANX, READ UP ON ALL YOU CAN ,AND ASK QUESTIONS HERE MOST CAN HELP YOU, I AM ON DISABILITY BUT I HAVE OTHER THINGS GOING ON MENERE'S AND MIGRAINES IBS AND ACID REFLUX AND ANXIETY,WITH THIS FM, I UNDERSTAND AND YOUR NOT ALONE, LIGHT HUGS,SHIRLEY
 
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dakotaspirit1957 responded:
Dearest 76tigers Welcome... you have found support here... I wish I could tell you that it is an easy road to find a dr and to find the right path to go to find help... Could your dr refer you to a pain management dr or a reumatologist... When you contact new dr's don't just ask them if they are taking new patients... Also ask if they believe in and/or treat fibromyalgia [FM>... So many think it is in our heads or just don't exist... One of mine said it was a pretty word to describe something they couldn't put an answer to...

Also go to your GP and ask if she will test your vitamin D level... Low vitamin D can cause chronic pain to be worse... I also have my vitamin B12 checked for when it is low so is my energy... You generally have to ask for these blood tests for they aren't normally run...

And here... please read our "Tool Box" found here

http://forums.webmd.com/3/fibromyalgia-exchange/tip/4

the tool box is written tips from those here to help others hopefully deal with FM...

The best ammunition I have found is information and acceptance... Here are some websites I read a lot...

http://www.fmnetnews.com/

http://www.fibrocenter.com/index.aspx

There are also more information here... I like to read our Dr. Mark's discussions... He is a remarkable man... He has an inner incite with us having FM also... You can find him in the upper right corner...

As I learned more of what was happening to me I began to fight the battle of acceptance... And when I find myself daily day by day and moment by moment accepting myself and my world... Most of the battle is done...

I can't say that with all my tools and my medications that yes include opiates... Make me pain free... But I have multiple illnesses that cause pain... I am however living with tolerable pain for the greater part of time and for that I am grateful...


I hope you return... Vent anytime you need... Ask questions... Cry we will cry with you... And give you a cyber hug... Laugh and smile we will join you too... And celebrate with you...

Thanks for joining us...

Love... Jan/Dakota
 
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justpicky1 replied to dakotaspirit1957's response:
I am new to this board also , the more I read these comments , the more Im figuring out it's possible I can have Fib....
because you meantion Vit D , that's what I'm lacking and I'm taking pills (once a week ) . I havn't been official been told , I have this by GP . I'm mostly reading Webmd and it's helping me . I also have IBS , Orthritis throughout my body , lack of Vit D , and much pain . My ENT doctor has I have Merie're Diseases (hearing ) Tingling to my face and legs . I am trying to figure out what exactly wrong with me . Family isn't any help ...they just don't understand and I get critize for telling them what's is wrong , my spelling isn't the best at this time . Plus I been understand alot of stress in the last 4 years and it
hasn't helped me at all ...Son and daughter both in the military (deployed Middle East and all I did was cry daily , now I have to take care of my husband grandma who's 97 yrs old , because
grandma , granddaughter will NOT help her at all , wants no part of grandma .. I do Everything another stressor . In the meantime , I have my own health issues .......
 
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franr responded:
Dear 76tigers
Please stay strong.You will get great support from this wonderful group.You need to see a good rhematologist and see a pharmacologist who is a psychartist who can manage the meds also work along with your MD.I am going throuh a major flare after have fibromylgia for 20 years. I recently changed all my MD and at a major medical center in the Boston area who are finally getting to the root of my problem. Please let us know how you are doing.Hugs Fran
 
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booch007 responded:
Well right off, the response of the third one tells you , you didn't want to waste any time and money in that office.

I see neurology with the subspecialty of MYOFASCIAL WORK. I use trigger point injections for relief of the muscle dysfunction we have, in fact I get to be young in 2 days after injections otherwise I am 90 y/o (really 58) !

This is the hardest first phase of the disease...getting the fit of the physician. Then finding your med mix that works. Then it is the building of your toolbox to get out of trouble.

Now we can help you with the toolbox. I will paste it here for you in another note. It is long but many tricks and also will show you the paths others have taken to find relief.

Please stay here and post your issues we can help, this is agreat fmily to have. A board where yoou can vent and share a question or even a funny note is so appreciated. This is the toughest thing I have ever battled with. But in my life I have seen that everyone is given *something to deal with....this is your something right now . Good luck, Nancy B
 
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booch007 responded:
http://forums.webmd.com/.f0324a2?@guest@ So here is the toolbox link. I hope you gain from reading the fmily tricks and tools we have learned to develop over time. Written years ago to help all and it still hold true today. Best of luck, Nancy B


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~FM TIPS - LIVING W/ FM - TOOLBOX ~WELCOME NEWCOMMERS~
Welcome to Our FMily! My name is MeMe, I'm an FM suffer of 19 years, along with autoimmune diseases & other conditions. ... More
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