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New here. Possible fibromyalgia
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juliebo27 posted:
Hello. I just wanted to introduce myself. I'm 31 and possibly have fibromyalgia. I will be going to my primary care dr Tuesday morning. For the past 6 months I've had chronic pain. My back muscles are in a constant spasm and my neck, shoulders, hips, legs, chest, etc hurt on and off as the pain moves around. I'm also tired most of the time. Sometimes it hurts just to even touch my skin. I'm not sure if anyone else has experienced this. It seems like the pain will be tolerable for a period of time but then flare up again. It's very frustrating as I have 4 young kids who need my attention, not to mention trying to keep up with the cleaning, laundry, and cooking. I usually feel ok from mid-morning-late afternoon. What kind of tests can I expect for a diagnosis? Does anyone have any advice for me on how to deal with this until I can get diagnosed? Thanks all!
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Anon_10089 responded:
Hello and sorry for your symptoms. It sounds like it could be FM but of course you want to rule other stuff out. FM is diagnosed through symptoms and by ruling other conditions out. I'd imagine your doctor will test you for thyroid problems, the level of inflammation in your body (to rule out arthritis, etc), and some other common things. If the doctor doesn't order it him/herself, ask for your Vitamin D levels to be checked.

In the meantime, rest when you can, even if that means leaving laundry unfolded or dishes undone. Heat can go a long way. I use a microwavable rice bag and many use heating pads. Also, for your back, you could try bengay-like products. I've gotten a lot of help from those bengay patches you stick on your skin. You'll smell like menthol, but it can help. Take hot baths/showers when you can.

Also, prepare well for your appointment. I have found good success communicating with doctors when I go in with a written list of my symptoms, how they affect my life, my goals for treatment, and what I'm already doing to help myself. It keeps the appointment organized and shows the doctor you're serious and proactive about your health.

This board is one of the best resources I've come across. People here give great support and advice.
 
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booch007 responded:
http://forums.webmd.com/.f0324a2?@guest @

Look in here for some ideas of the paths we have walked.

When seeing a physian for the first time with this, it helps so much to give a history of the symptoms. Write down the pain desciption WHEN you are in pain...it is the best way to capture it. Our pains come and go, travel from one site to another and it is a tough sell. There is a tender point test he will need to do and standard labs to rule out any connective tissue or immune disease connections.

I hope you get your answers on Tuesday. It took me years for a diagnosis and then when I got it, I fought the label as wrong...so, hope you do well..........Nancy B
 
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katmandulou responded:
Hi Julie and welcome! I hope you find us friendly, amusing and helpful!

Your PC is a great place to start, but don't be surprised if he refers you to a specialist. Many of us here see pain specialists or rheumatologists. A good doc who knows about FM will test to eliminate some stuff, like arthritis, gout, MS or lupus. Unfortunately, FM is an illness of elimination - they have to check for what it's not before they decide what it is. Make sure your doc checks your trigger points, and tells you as he/she does it.



Ask your doc check you for Vitamin D deficiency. Sounds simple, but we who live in the northern hemisphere are usually lacking in D.


It's ok to let a few things slide. Can your children help out? I emember my mom teaching me to fold clothes when I was young.



There are some good resources in the right-hand column. Also check out http://www.butyoudontlooksick.com/ . It has good tips for us, and you have to check out The Spoon Theory - it will help you explain to people what it's like to be in your body.


Have the best day you can possibly have,
Lou


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