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    Wendylyne posted:
    I was diagnosed one year ago and can't find relief tried neurotin lyrica and amitriptyline nothing works also take oxycodone 15mg but they don't seem to even help anymore they did but now stopped! I'm in bed everyday and have a four year old son I can't keep doing this . Does anyone know what meds work? Thank you I'm desperate
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    BetteK responded:
    Sorry, Wendylyne,

    There's nothing that will work for all of us. At least, not yet. It is pretty typical that a drug may work for a while and then not help at all.

    When you and your M.D. decide on a new course of treatment, be sure to ask how long it should take to know whether it will help you. Schedule an appointment for that time now. Then you can reassess the medication's efficacy in a timely manner and not waste a bunch of time waiting for a new appt. if it does not work or if the dosage is wrong.

    Drugs like oxycodone are notorious for working for a while and then not being enough. Then the dosage will have to be increased (and possibly increased, and increased, and increased) in order to get the same coverage. This may be acceptable to you and your doc; it may not.

    For many years, I switched between oxycontin and fentanyl patches. This way, when a med became less effective, I could start a "new" one that was now effective a very low levels.

    I'm off both now, because my most worrisome symptom now is fibrofog. I'm 69 and decided I needed to keep every little bit of awareness I can get. But, for about 20 years, those two very potent medications kept the pain at a tolerable level. My body misses them, but my mind doesn't.

    Hope this or the other answers you get here are right for you in your life and your illness.

    BetteK
     
    avatar
    katmandulou responded:
    Hi Wendylyne, and welcome!

    BetteK is right - what works for one doesn't necessarily work for all of us. While we've all been diagnosed with the same illness, it manifests itself in different ways. And it can't be easy with a little one at home.

    It sounds like you need a different doc. Many of us here see pain specialists or rheumatologists. A good doc who knows about FM will do tests to eliminate some stuff, like MS or lupus, and can refer you to a pain doc/clinic. Specialists are key to our happiness. My rheumy has a sign in each of his exam rooms; it says "You have the right to live without pain."


    There are some good resources in the right-hand column. Also check out http://www.butyoudontlooksick.com/ . It has good tips for us, and you have to check out The Spoon Theory - it will help you explain to people what it's like to be in your body.


    Have your doc check you for Vitamin D deficiency. Sounds simple, but we who live in the northern hemisphere are usually lacking in D.


    Do come back and check in. We're all in this to help each other. I wish you the best day you can possibly have,
    Lou


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