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    One sided pain
    Alwayshurting posted:
    I'm new to this site and need some feed back. I have had severe neck, shoulder and upper back pain on the left side of my body. I was in an accident when I was younger and had whiplash. I'm guessing that is why. I have tried everything to relieve the pain. Chiropractor, Mia facia release, massage, medications, tens unit, pain relievers ( can't take NSAID's due to stomache issues.

    Recently my pain has extended down my spine and feels like maybe pinched nerves. Worse is the last couple weeks my hands and feet have been going numb and tingly.

    I have a WONDERFUL internist who I saw this week who is leaning toward fibro myalgia. He has performed many in office tests, as well as a spinal MRI, ultrasound, X-ray. My blood work comes back good. But still no relief.

    After a lot of research I am thinking he is right, although there are a couple things that I'm finding strange. One is that all my pain is strictly on one side of my body, and the intensity seem sudden.

    I was excited for my appointment to figure out my issue because of he intensity but came home disappointed and depressed. Most of all because when I told my husband what the dr thought it was his response was "oh sure he does" in a sarcastic tone, which tells me he isn't gonna be supportive with this diagnosis.

    If anyone could respond, I would greatly appreciate it.

    crystalgreeneyes responded:
    Hi. You will find many "alwayshurting" people here. Sorry to hear you have this possible diagnosis. A number of years ago I fell off a loft (about 10-12') I landed on my back and I was very bruised but did not break anything. This however, was a major trauma to my body and subsequently after a hospital stay and a million tests, the result was fibromyalgia. That was 1 1/2 years ago although I think I had it long before. Trauma of many forms can cause this condition and you mention an accident. All my pain is on my right side, mostly my upper back, neck, around my ribs and sometimes my elbows. The pain can be anywhere as it does tend to move around. Husbands can be difficult with this diagnosis. Mine does not support me at all and this can be a problem. I have sensitivity with medication too so I don't even have the relief of that. My advice is find the right dr. who will send you to the appropriate specialists. You may need to see a rheumatologist, a pain specialist, neurologist, chiro etc.It is tough but I urge you to persevere, fight and learn what you can so you can work with drs and other support people. Counselling can be useful for the emotional issues that often occur. Watch your diet - gluten, sugar, preservatives and chemicals can contribute to your pain. It's not the same for everyone of course, but hopefully you will find the way that works best for you soon. Being in constant pain and having little or no support and dealing with an illness that is somehow "not real" to many people including doctors, can lead to depression. You don't want anything to be wrong but somehow when all the tests come back normal you are left wondering what it is all about.
    You will find very good support here. Ask lots of questions, make lists and try to exercise. I wish you well and feel so badly for everyone that has to endure this.
    BetteK responded:
    Dear Always Hurting,

    I hope you will soon be able to change your byline. If your pain is from fibromyalgia, you will find that it goes in spits and spurts. There are good days. Notice I did not say that there are "pain free" days. In honesty, there will be some very bad days and, hopefully, many days when the pain level is low enough that you will be able to ignore it while you are engaged in activities that distract you from the pain.

    Work with your internist. See any specialists he recommends. Try any meds he prescribes. Ask how long it takes to know whether they will help. Some take 6-8 weeks.
    Call the office if you have side effects that worry you--especially the ones listed on the medication's information sheet as important. Many of us have trouble with some meds available now. Just be on the alert.

    When you are secure in the diagnosis, choose ONE doctor to be your go-to person. You may see others at regular intervals or on an as needed basis, but make sure your main doctor--the one you can talk to and who is willing to work with you-- gets copies of any testing and exams.

    Keep us posted on your progress. We all want to help you.
    At the same time, some of us may have been using the same old meds so long they no longer work for us. Any tips you can pass on could help the rest of us, too.

    Thank you.

    Towards better days,

    booch007 responded:
    Good morning,

    Because of the history you shared and the NOT supportive husband...I have an idea for you. Can you get to a neurologist who does trigger point injections? If you are NOT full body upper and lower tender points you are not FM.

    So in response to this old injury of the neck, you may just have trigger points in the muscles that are affecting the function of that side. A few treatments and you are out of trouble.....

    I wish I did that years ago before one muscle talked to another and I am loaded all the time with these.

    Look up trigger points and trigger point injections on youtibe as well as a WebMD search and learn about them. It might fit here.

    If you move forward with this, ask when you make the appointment if they do trigger point injections and how many patients they do...........

    Good luck, I have been using this therapy for 10 years and though not for the faint of heart, it is amazing how the muscles that never responded to spray and stratch and myofascial release..listen in minutes to this......

    Nancy B RN.

    P.S: bring your husband with you to the neurologist and have him listen and watch (BIG turning point for me and mine.....he is now my defender to ALL who doubt...).
    My trigger points came from chronic lifting of patients in the ICU and I am a neck, shoulder mid back girl....terrible mornings and get better as the day progresses. look in the Members toolbox to the right*. Hugs.
    dollbug responded:
    Hello and welcome.....MiMi in sorry that you are not feeling is a *pain* to deal with the wrath of the dragon, aka should also know that anything and everything is a process....which does take time and effort for you to figure out. Please do NOT expect your DH (dear husband) to understand....nor any other family members and friends to know what you are dealing with....(they don't and probably never will)...heck there are a lot of doctors who have NO IDEA either.

    I can assure you though regardless of who understands or knows what you are facing each and every day....your illness is real....and there are things that can help you. You just have to figure out what they are. You should also remember too what helps one person may or may not help you. There is NO CURE for the mean and ugly illness either. But there are ways to ease the pain that you will endure.

    I would encourage you to ask your doctor to check your Vitamin D level....which is important to a lot of people these days....(not only those of us who have FM)...low Vitamin D can cause some people to have additional pain and it can also affect other illnesses as well. There are some people who say that even though there Vitamin D is/was did not make a difference in their level of pain. But then there are others here...(me included) who have seen a BIG difference in taking the Vitamin D and getting our levels back to within the *normal range* might want to google Vitamin D and read about it....or check out the info right here to find more on the subject.

    I would also encourage you to check out the info here under *tips* and *resources* and be sure and review the *member toolbox* which offers some good things to try which might help you cope better. Will you be painfree? I doubt it....but IF you find something that does help....please share it with other members here....we are a sharing and caring group of people...and we understand just how you feel and what you are dealing with.

    I tried medicines in the beginning and actually found nothing which really helped me enough without causing side I ended up doing my own research and finally found vitamins and supplements and doing other things which helps me *control the level of pain*. So again...I can tell you there is hope for you.

    I do hope things get better for you....and I hope you will post often here....ask questions, make comments and/or suggestions.

    Take care and good luck.


    My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
    Alwayshurting replied to dollbug's response:
    Awesome input, thanks everyone. Mimi, I do have my vit D levels checked regularly and I am on the low side right now. Gonna increase what I already take. Dr also prescribed 10mg nortripdyline. I guess that is supposed to help the tingling and numbness. I also take flexerall and Zoloft. Heating pad seems to help a bit also. I soak in my jacuzzi tub often also, no jets though because I am then in pain for days after.

    Another question I have, does anyone have problems with inflimation of the scalp related to FM? I have allergies to some products but notice it flaring when I'm having my worst pain. Sounds weird but I'm grasping for answers.

    Booch007, I was thinking the same thing. One sided pain does meet the FM criteria. I wonder though why the dr would speak of it knowing its one sided? i will look into trigger point injections. Thanks for the tip.

    I will keep you all posted, and thanks again.
    jillylin replied to Alwayshurting's response:
    Sorry you are suffering but you have landed in a great place for both support and information. Knowledge is definitely power.
    Hope you are able to get the help you need.
    Jilly in the UK

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    Vitamin D level checked ***
    I encourage everyone who is having pain problems to ask your doctor to check your Vitamin D level......a simple blood test...and so very ... More
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